A new initiative, launched today at HealthDataRights.org, brings together all manner of patients’ rights activists — doctors, researchers, software developers, writers, entrepreneurs, health economists, and of course, health and medical bloggers — calling for “the right to access all health data about ourselves, so we can make the most effective health decisions using the resources we feel are most appropriate.”
Here is the Manifesto we are putting forth:
In an era when technology is…
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More contest entries worth featuring… these ideas stood out as incredibly creative. So creative, in fact, that the judges struggled with rating them, either due to uncertainty whether they’d be implementable any time in the foreseeable future, or the fact that the target audience may be a small slice of the D-world. Still, as we noted, lots of great ideas from some very visionary people:
Diabetic Data Cloud
- the notion that our digital…
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By
AmyT on
April 28, 2009
Traditionally, a “prescription” meant a piece of paper that got you a vial of pills or other medication you were meant to take until your next meeting with your doctor. Today, health professionals increasingly recognize that LEARNING is part of the prescription -– if you want people to thrive with their condition, that is.
The Health 2.0 conference I attended last week was all about different approaches to this topic: how do patients best learn…
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By
AmyT on
December 18, 2008
When former “Good Morning America” anchor Joan Lunden, who is now a paid spokeswoman for PassportMD, was recently interviewed by ABC News about “the new world of online medical records, one of the first things she said was: “Ten years from now we’ll laugh that we were even having this conversation, because everybody will keep their family’s health records online.”
The way things are going — with nearly every other aspect of our lives now…
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By
AmyT on
October 14, 2008
When Microsoft launched its HealthVault application last year — the first major commercial Personal Health Record (PHR) system on the open web — the Wall Street Journal reported that “Consumers are just not that excited about these services.” A year later, I’m wondering: have they given us reason to be more excited now? Last week, I grilled HealthVault’s rival Google Health about the progress they are making. Are these big players trying too hard to…
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