By
MikeH on
September 11, 2012
Today we’re marking National Invisible Chronic Illness Awareness Week, a worldwide effort to bring together people who live with unseen chronic conditions by sharing their stories. Running through Sunday, Sept. 16, this annual online initiative is now celebrating its first-decade anniversary.
A year ago, I shared a simple message: My diabetes can be visible on my own terms, so if I want to wear it on my sleeve, that’s my choice. But if I choose…
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We like to think we’re educated, empowered ePatients here at the ‘Mine, doing everything we can to stay healthy… But what if we don’t necessarily agree with a doctor’s recommendation?
As type 1 PWDs, Amy and I have both had to accept that we need insulin, but having diabetes has also left open the door to other possible meds, like a statin or an ACE inhibitor, which have clear pros and cons. In other words,…
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A new initiative, launched today at HealthDataRights.org, brings together all manner of patients’ rights activists — doctors, researchers, software developers, writers, entrepreneurs, health economists, and of course, health and medical bloggers — calling for “the right to access all health data about ourselves, so we can make the most effective health decisions using the resources we feel are most appropriate.”
Here is the Manifesto we are putting forth:
In an era when technology is…
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