Last Friday, I had the opportunity to attend the first-of-its kind e-Patient Bootcamp program held at the offices of Edelman PR in New York City. The event was hosted by the venerable leader of the e-Patient movement, Dave deBronkart. e-Patient Dave, as he’s more commonly known, has an incredibly moving story: after being diagnosed with “terminal” metastasized kidney cancer, he managed to beat the odds by using the internet and his own stubborn persistence to…Read more »
This year is the Seventh Annual D-Blog Day, started by the wonderful Gina Capone, founder of Diabetes Talkfest and moderator on JDRF’s Juvenation community site. D-Blog Day is essentially one day a year in which everyone in the DOC is encouraged to write about their experiences blogging about diabetes — as a way to increase the chatter even more, and also to include bloggers who may not necessarily identify themselves as D-bloggers but who are…Read more »
In our emerging world of web-based health offerings and Net-informed patients, it looks like the name-game is still heating up. Recently I sounded off about whether we should be referred to now as patients or consumers, and don’t forget the term “ePatients” — along with eHeath Consumers, Cybercitizens, etc., etc.
Now Manhattan Research, a highly respected pharmaceutical and healthcare market research firm, has invented a new buzz-term for consumers who use the Internet to research…
In honor of THANKSGIVING this year, a special message about life and death from Alexandra Drane and the Engage With Grace team. This initiative was born from the story of a young woman, a mom just 32 years old, who was dying of glioblastoma and desperately wanted to do so at home, with grace, rather than in the hospital. Have you and your family considered how you might handle end-of-life choices when the day comes? …Read more »
Birdie is one of my favorite fellow D-bloggers. Her colorful images and sincere words are always worth a double-take. She recently compiled a coffee table book that will evoke the same reaction from your party guests — or anyone you know living with illness.
A Guest Post by Birdie B, creator of Aiming for Grace
I’m feeling a lot better lately. I’ve had diabetes for 22+ years and rather than feeling like things are getting…Read more »