Many of us patient advocates who make the rounds at e-patient and health 2.0 conferences hear an awful lot of talk about “what the patient wants” and how Pharma and device companies should reach out to our communities online. Meanwhile, they’ve been slow to embrace Social Media, and given the controversy over FDA regulations for this, who knows what’s happening internally at these companies as they struggle to form a viable strategy for getting involved?…Read more »
This week is my very first time at the annual BlogWorld & New Media Expo in Las Vegas. In a word: BIG.
The hotel seems to spread for miles and miles, including six restaurants, a huge casino and a lower level with sweeping spa and beach area (no, I haven’t checked that out yet). My hotel room here is very nearly bigger than the one my whole family is living in back home. Errr.
Last week I offered to “open the kimono” by answering pretty much anything (within reason) that readers cared to ask. Looks like in response, I got a couple of “nuts & bolts” questions on day-to-day D-stuff, along with one call for my perspective on the Big Picture. That one will take some soul-searching, so let me start with the easy stuff:
Reader Q) As a fellow OmniPodder, how do you manage scar tissue? I rotate…Read more »
Back in 2004/2005 when I started this blog, who would have thought that patient bloggers and advocates would soon be flying around the country as honored speakers at forward-thinking health events? Look how far we’ve come, and I’m very excited to be part of it!
A few relevant dispatches from the ePatient world today:
D-OC members Manny and Kerri have just returned from speaking at the ePatient Connections (ePC) conference in Philadelphia, which brings together “experts…
If you run a diabetes blog, web site, or small organization doing some kind of diabetes advocacy work, you will want to know about this: a new ‘Diabetes Advocates Program‘ that can help you and your work get noticed.
Basically, TuDiabetes founder Manny Hernandez and David Edelman of DiabetesDaily put on their thinking caps after last summer’s Diabetes Social Media Summit hosted by Roche. Everyone in attendance was in the same boat: working hard on…