A new initiative, launched today at HealthDataRights.org, brings together all manner of patients’ rights activists — doctors, researchers, software developers, writers, entrepreneurs, health economists, and of course, health and medical bloggers — calling for “the right to access all health data about ourselves, so we can make the most effective health decisions using the resources we feel are most appropriate.”
Here is the Manifesto we are putting forth:
In an era when technology is…
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Time again for an update on some of the myriad new online health tools that may actually add value to a PWD’s life:
Need some help understanding and/or reducing the costs of your diabetes? Try this Diabetes Cost Calculator. It helps you break down what you’re spending on your diabetes now, and even offers tips on ways to get your supplies for less.
Despite the many Google Ads, this Carb Counter comes highly recommended from…
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Is it OK for patients to chatter away about their doctors online, while those doctors remain under oath not to disclose patient information? And yet, some doctors do blog about interactions with their patients.
Last Friday, I was a guest on a Podcast hosted by Albert Maruggi, creator of the Social Media Throwdown series, on this topic. I was there to discuss the value of patients sharing their experiences online. The counterpoint was brought by…
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By
AmyT on
April 29, 2009
We bloggers and social network afficionados have been calling for the medical establishment to wake up and smell the Java, and recognize that we patients have a new place to congregate and a new communal voice on the web. Why don’t they recognize us and engage with us, we ask?
Well now I know that at least one big Pharma company producing glucose meters and pumps is listening. Not only listening, but they’d like to…
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By
AmyT on
April 28, 2009
Traditionally, a “prescription” meant a piece of paper that got you a vial of pills or other medication you were meant to take until your next meeting with your doctor. Today, health professionals increasingly recognize that LEARNING is part of the prescription -– if you want people to thrive with their condition, that is.
The Health 2.0 conference I attended last week was all about different approaches to this topic: how do patients best learn…
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