Although many people with diabetes tend to think just in terms of our own community, PWDs are actually part of a much larger community of folks with chronic illnesses; we are residents of the “Kingdom of the Sick,” a term coined by cancer patient and writer Susan Sontag. That’s also the title of a new book being released tomorrow, In the Kingdom of the Sick, written by Bostonian and college science writing professor Laurie Edwards.…
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By
AmyT on
January 15, 2013
Welcome to the PATIENTS FOR A MOMENT (PFAM) patient-centered blog carnival, founded in part by Leslie of Getting Closer to Myself. We are delighted to be hosting this month, with the New Year’s-inspired theme of Renewals.
We put out a call for patient bloggers to share anything fresh they’re planning for 2013, be it changing doctors, updating meds, new exercise routine, or just committing yourself to being more active in patient communities.
Personally here at…
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By
AmyT on
September 6, 2012
We don’t talk about it all that much in the heart of the diabetes online community (DOC), but there’s actually an incredibly vibrant and growing larger community of online patient advocates out there who are banding together to do great things. No matter if you have prostate cancer, fibromyalgia, chronic migranes, or… diabetes.
I’m a member of a group called the Society for Participatory Medicine and on their email list, so I get to see…
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By
MikeH on
August 10, 2012
We all need a little perspective sometimes.
Mine came on the heels of a week of diabetes conference activity and advocacy talk, and it was a reality check that slapped me upside the head while screaming at me about how much bigger the world is than diabetes.
One phone call was enough to remind me that, in the grand scheme, diabetes isn’t that big of a deal. Really. There are a whole lot of worse…
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By
AmyT on
March 14, 2012
{Editor’s note: This is the first of a two-part interview with ADA CEO Larry Hausner}
We grassroots patient advocates are typically pretty skeptical of the ADA: Aren’t they tied too closely to industry? Who knows what their real agenda is…? My interest was piqued when we at the ‘Mine received the organization’s statement about a new four-year strategic plan, for our year-end preview of the 2012 plans of the country’s top advocacy groups. The ADA…
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