Many of us patient advocates who make the rounds at e-patient and health 2.0 conferences hear an awful lot of talk about “what the patient wants” and how Pharma and device companies should reach out to our communities online. Meanwhile, they’ve been slow to embrace Social Media, and given the controversy over FDA regulations for this, who knows what’s happening internally at these companies as they struggle to form a viable strategy for getting involved?…Read more »
When I featured the Joe Toucan Diabetes Project a few weeks ago, created by Hollywood producer and diabetes advocate Rocky Lang, I discovered that Rocky is not the only D-advocate in the LA-based Lang family. His 18-year-old daughter, Nikki, who was diagnosed at age 10, is a talented singer and songwriter whose most recent project is supporting the American Diabetes Association’s “Stop Diabetes” campaign. Nikki and her family have been involved with the American Diabetes…Read more »
Last week I offered to “open the kimono” by answering pretty much anything (within reason) that readers cared to ask. Looks like in response, I got a couple of “nuts & bolts” questions on day-to-day D-stuff, along with one call for my perspective on the Big Picture. That one will take some soul-searching, so let me start with the easy stuff:
Reader Q) As a fellow OmniPodder, how do you manage scar tissue? I rotate…Read more »
Sticking with yesterday’s theme of physical activities that help people cope with diabetes —please meet Chloe Steepe, who like many of us diagnosed with type 1 diabetes as adults (she was 18) didn’t know another single soul with this illness. For Chloe, it wasn’t until several years later, when visiting Australia on an outdoor adventure trip, that she found herself surrounded by PWDs just like her.
Upon returning home to Canada, she was inspired to…
I’ve been writing DiabetesMine for six years now: 1,425 posts and over 15,000 (legitimate) comments to date, most of it all about what’s happening in the diabetes world and the industry that serves us. Only a little bit of it is personal stuff about me. So as I’ve been watching this meme bouncing around the diabetes online community (D-OC) for a while, I’m thinking it’s about time I shared a little piece of me, too.…Read more »