As the Diabetes Social Media Summit hosted by Roche approaches, I’ve been thinking and reading a lot about the question of Pharma engagement here. Is Social Media destined to be just another forum for them to push marketing mantras and build brands? Or can there really be valuable two-way interaction between the chronically drug-dependent (us PWDs, for example) and the industry that sells us our meds?
A whole lot of blogosphere debate is going on,…
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From the “Advice Column” file today:
Sometimes finding a good endo can seem harder than finding your soul mate! Whether it’s disagreements over treatment or they seem to be stuck in the stone-age on A1c levels, it’s discouraging how difficult it is to find Dr. Right. We have all witnessed stories of people who have had to fight tooth and nail to get the right treatment or had to put up with a technophobic doctor. …
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Since I got Type 1 diabetes at the ripe old age of 30+, I never had the experience of “leaving the nest” with the Big D. So I recently asked fellow blogger and advocate Allison Blass what that was like: Did your parents fall apart? Were you scared to death, or more elated? What she came back with was actually more of a practical nature: the top tips she wished she’d known at the time.…
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When I was a guest on cancer-patients podcast last week, the hosts asked me if we PWDs don’t get frustrated: cancer seems to have all the big celebrities behind it, and make all the big headlines. Does it ever bother your community that diabetes doesn’t get that level of attention? I was a bit dumbfounded. But then I thought of the Children’s Congress. Today, a close look at what some (big AND little) folks are…
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A new initiative, launched today at HealthDataRights.org, brings together all manner of patients’ rights activists — doctors, researchers, software developers, writers, entrepreneurs, health economists, and of course, health and medical bloggers — calling for “the right to access all health data about ourselves, so we can make the most effective health decisions using the resources we feel are most appropriate.”
Here is the Manifesto we are putting forth:
In an era when technology is…
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