By
AmyT on
February 7, 2012
Sophie Lee has an obsession with toilets – not because it’s some kind of fetish, but because all of her adult life, she’s never known when she’s going to urgently need one nearby, or suffer the consequences. It’s a pretty icky topic, I know, but Sophie’s new narrative describing her 20-year struggle with Irritable Bowel Syndrome (IBS) is one of the best-written “empowered patient” testimonials I’ve read.
Sophie grew up in the UK and went…
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Last Friday, I had the opportunity to attend the first-of-its kind e-Patient Bootcamp program held at the offices of Edelman PR in New York City. The event was hosted by the venerable leader of the e-Patient movement, Dave deBronkart. e-Patient Dave, as he’s more commonly known, has an incredibly moving story: after being diagnosed with “terminal” metastasized kidney cancer, he managed to beat the odds by using the internet and his own stubborn persistence to…
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This year is coming to an end, and over the past 12 months, we’ve been sharing our favorite posts each month from all around the DOC. Today, we’re reviewing a few of our overall favorites from 2011, plus a couple of excellent stand-outs from December. Enjoy!
Inspired by Dan Savage’s “It Gets Better” initiative, Kim Vlasnik launched the You Can Do This Project earlier this summer. Her goal: to inspire PWDs everywhere that they…
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