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12 Responses

  1. Misty
    Misty July 28, 2014 at 7:22 am | | Reply

    Your review of this book has me intrigued. I have had many conversations this week about technology vs. cure. Can’t say that I expect to agree with the author’s viewpoint, but intrigued nonetheless. Thanks Mike!

  2. Sue Green
    Sue Green July 28, 2014 at 9:58 am | | Reply

    I am very interested in this book not only for me but my daughter who is type 1. We have had many discussions about cure and her becoming a mom. I would like a hard cover so I can give it to her after I have had the chance to read it. I am excited that it is faith based as this is how I raise my children. The code is DMbooks and I do not want the e-book format. Thank you for your time and have a blessed day.

  3. Michelle
    Michelle July 28, 2014 at 12:31 pm | | Reply

    Because I’m awake and aware of Pharmaceutical Industry practice, I fully agree with the authors’ stance.

  4. Kimberly beaudoin
    Kimberly beaudoin July 28, 2014 at 6:07 pm | | Reply

    I’d love to win the paper copy, dmbooks

  5. Kelly Maschmann
    Kelly Maschmann July 28, 2014 at 6:39 pm | | Reply

    I’d like the paper copy. Thanks!

  6. Dan
    Dan July 28, 2014 at 8:24 pm | | Reply

    I think this author has the fire in her belly to advocate and put voice to some uncomfortable realities.

    First of all, why is it that it takes the ADA or JDRF to be the backbone of funding for this disease? Why has not the Institutes of Health played a bigger role funding useful research? Because of this, we are slow at making any breakthroughs whether a cure or technological.

    Second, why is it when you go into a local pharmacy 100 diabetic strips, if you don’t have insurance, costs 100 to 140 dollars?

    Third, why is it that even though their is more competition in pumps, the prices are still as high as a good used car?

    I am not saying there is an outright conspiracy. However, the fact is that the big players in the industry (insulin makers, strip makers, pump makers) has much to gain and little to lose from delaying breakthroughs.

    So, we now have CGM that is somewhat accurate for about 5 days and then it is wild guess the next two before the insertion (Dexcom). We have pumps that sit outside ourselves that become more and more difficult to manage as scare tissue builds. And now, we have the possibly of a closed end loop system based upon the above.

    Not good news.

    We should all be upset. We should all be advocating.

    The author might not have it correct in all respects. But we need to support people who have had enough. Together, we can start to make a difference.

    There are many excellent minds and good intentions out there in the research and development communities. They need funding, freedom from big corporate interests, and supported in taking leaps that will eventually provide us a cure, or at least a solid step forward toward it.

    What we have now is none of these. Including a so called closed end loop system that will never be trusted with my life based upon the technology we have today and what I see so far coming in the near future.

  7. Lesley
    Lesley July 29, 2014 at 12:14 pm | | Reply

    I haven’t read the book and I’m not sure that I’m likely to but I’m glad to read your take on it. One of the most interesting things to me (and probably a very small part of this family’s story) is their experience of the pediatrician/office saying that statistically they had never diagnosed T1 in the child of a T1 (implying that this child likely didn’t have T1). Though it wasn’t stated that bluntly, I heard a very similar message throughout my pregnancy (as a T1) and when I brought my daughter in to confirm what I already knew – that she had T1. I can’t say if or how it would have impacted our decision to have a child, but all of the genetic & medical counseling we got before I got pregnant and during pregnancy seemed to be trying to assure us that the chance of our child developing T1 was so miniscule as to be impossible. And this was just in 2007. I don’t want to see prospective parents with T1 being scared away from having children because of a possibility of a child developing T1 (or any other autoimmune or other disorder) but I do find it strange that doctors are still thinking & telling people that the chance doesn’t exist.
    Thanks for your thoughtful look at this book!

  8. Jennifer
    Jennifer July 31, 2014 at 6:05 am | | Reply

    Intrigued to read this after your thoughtful and thorough review! DMBooks

  9. David Parker
    David Parker August 1, 2014 at 8:42 am | | Reply

    I don’t want to read the book after learning that this author is another religious-conservative-Christian espousing a conspiracy theory to explain a complicated topic. Thanks, but I’ll pass.

  10. Jennifer
    Jennifer August 1, 2014 at 11:08 am | | Reply

    It is always fascinating to me to read DMBooks about other people’s experiences with diabetes. It helps to know other people out there are going through the same tasks and emotions as I am. I love learning from them. Can’t wait to read it!

  11. Gary
    Gary August 3, 2014 at 2:32 pm | | Reply

    Yes, there has been a tremendous amount of progress with diabetes over the last 15 years. I challenge those who don’t think there has been to explain what other diseases have had outcomes changed like diabetes has.

    Cancer? MS? ALS? Parkinson’s?

    No, insulin and CGMs aren’t cures, but the have expanded our life spans and lessened complications. And the companies have done so in a market economy.

    1. Puddin
      Puddin August 6, 2014 at 3:35 pm | | Reply

      Gary – I agree. The fact is that medical science has ‘cured’ 8 or 12 diseases (depending on who you ask and what country you live in) in the 20th-21st century. And none of the diseases cured have genetic components to them – they are all external like smallpox or diphtheria. The fact that we have not cured diabetes in any form is not a surprise to me.

      I believe that scientists are working very hard to find a cure, many if not most for altruistic reasons.

      I also believe that technology has vastly improved the quality and duration of life for those with T1 and T2. That is not to say Big Pharma is not raking it in, because they are. I think the profits made off of insulin alone are immoral and reprehensible. But I hold hope that this paradigm will also shift. There was a point in time when penicillin was impossibly expensive and rare to boot.

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