3 Responses

  1. Mary Dexter
    Mary Dexter May 20, 2014 at 5:22 pm | | Reply

    Thank you for this marvelous story. Hopefully, things are slowly changing.

    Two years ago, I received a Diabetes Hands Foundation Seed grant to write and produce a play about diabetes. It premiered at Broom Street Theater last October and a video of it is now on YouTube (The Sweet Lowdown stage version). People are still watching the video, and I hope they will continue to do so.

    When I started the project, my aim was to change people’s perceptions of diabetes from something we somehow brought upon ourselves to a challenging disease caused by a malfunctioning pancreas. Throughout the creative process, I wondered if the show would do any good at all. At one performance the stage was flanked by CDEs and endos from competing HMOs. The next month, at my endo appointment, she didn’t ask me what I was doing wrong. Instead we discussed how my thyroid and pancreas have changed since I was first diagnosed and how those changes make managing my blood sugars and weight more challenging.

    If we really want to change diabetes, we have to stop looking at it as a moral issue, the result of Gluttony and Sloth, and look at it as a biological issue. We need to know more about the intricate interplay of the endocrine system. We need to know more about the other forms diabetes takes: LADA, MODY, MMDM, PCOS. If the numbers projected are correct, everyone, especially those in government and in healthcare, need to know what diabetes is and isn’t.

    Thank you for keeping us all informed.

    1. Ingrid Glass
      Ingrid Glass May 24, 2014 at 4:26 pm | | Reply

      Mary – loved it. Thanks for doing your bit to educate others about the difficulties we face every day and the blame game surrounding diabetes, in such a clever and entertaining way. X

  2. riva
    riva May 20, 2014 at 8:01 pm | | Reply

    Thank you Mary. It’s amazing just how misunderstood diabetes is and how complex it is. I remember when I was writing my first book, my Aunt who has type 2 diabetes asked me, “What is there to say that you could fill a book?” I said, “Writing about diabetes is like peeling an onion, every time you tear away a layer there is another layer underneath.” It is not surprising the general public has such a blurry idea of diabetes and health care providers are taught to treat the medical condition almost eliminating the patient from the equation.

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