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11 Responses

  1. Doug
    Doug May 22, 2014 at 6:13 am | | Reply

    sounds VERY discouraging actually …. That unfortunate

  2. StephenS
    StephenS May 22, 2014 at 6:48 am | | Reply

    This part of the consensus statement troubles me:

    “But pediatric would-be pumpers will have to show evidence of severe hypos, widely fluctuating blood sugars, and supportive and pump-interested families before they can get a prescription. ”

    Really? A kid NEEDS to experience severe hypos to become eligible for pump therapy, in their opinion? How Many? How severe? Sounds dangerous and unnecessary to me. How does this get documented? I understand the concern, but I might phrase it as “Any would-be pumpers should know and understand pump therapy, possible dangers, and specifically, how their pump works.” Even if a doctor okays a pump for a patient, it’s up to the patient to handle it between endo visits.

  3. David
    David May 22, 2014 at 7:21 am | | Reply

    @StephensS, absolutely. My life on a pump is much smoother and more flexible. The requirements are simple: 1) T1 dx and 2) willingness to learn how to operate the pump. That’s it.

  4. Mike Ratrie
    Mike Ratrie May 22, 2014 at 10:07 am | | Reply

    I totally agree with StephenS and David.

    Taking the statement, “And docs must be prepare to take away the device if the child is unable or willing to “perform the minimal required tasks.” to its logical, uncomfortable conclusion, leads either to the removal of insulin or hospitalizing/institutionalizing those who won’t “perform the minimal required tasks”, doesn’t it? Why limit this to kids??

    Bottom line is there is so much to be concerned about in a statement like this because they have to be “politically correct” while speaking to multiple constituencies – doctors, patients, insurers, etc.

    I think they would have been better off just saying, “Go to the web site – http://betterisbetter.wordpress.com/. It has been around since 2008, so please get on board!”

  5. Alex
    Alex May 22, 2014 at 10:31 am | | Reply

    ”This may be intimidating and discouraging, and that’s fine. Our concern is safety. We have hundreds of thousands of adverse events reported through FDA, so we (physicians) have to be concerned, as they are, with these devices being used properly. Only the physicians have the ability to make the call on treatment.”

    — Dr. George Grunberger, AACE president-elect and insulin pump task force chair

    To hell with Dr. Grunberger and all other physicians who try to make decisions for patients rather than with patients. I have fired two doctors for this very reason. My body, my choice.

  6. Amy Dunn
    Amy Dunn May 22, 2014 at 1:33 pm | | Reply

    As the mother of a recently diagnosed T1 child I find this report discouraging. My daughter really wants a pump and we really want her to have one. We’ve been cautioned that because she manages her diabetes ‘too well’ she’s an unlikely candidate for a pump. I can’t even begin to wrap my brain around this illogical thought. She is being penalized for good management skills? And the penalty is quality of life? Unacceptable!

  7. Mary Dexter
    Mary Dexter May 22, 2014 at 6:45 pm | | Reply

    Pumps aren’t perfect.

    1. Mike Ratrie
      Mike Ratrie May 22, 2014 at 7:21 pm | | Reply

      Mary,

      Absolutely correct!

      However, I expect my endocrinologist to be up to speed on all the mainstream treatment protocols, at a minimum. I can only hope that the AACE/ACE supports this concept as well.

  8. Joan McGinnis
    Joan McGinnis May 23, 2014 at 10:17 am | | Reply

    Surely there are Certified Diabetes Educators who could be part of a team at a physician office who could be consulted for pump patients having problems. If doctors would use their team, nurses, dietitians, pharmacists who really do understand the pump backward and forward and may even use pumps themselves, a lot could be achieved for patient care. I think the position statement sounds rather punitive . the doctor needs to learn but if he had a team he would . A collaborative practice agreement was used where I worked and actions to be taken were spelled out.

  9. Progress on Glucose Meter Accuracy Surveillance...

    [...] Big News this week in the world of diabetes devices, Folks! Two leading endocrinologist organizations have, for the first time in four years, updated their position on who should be able to get access to insulin pumps, while the Diabetes Technology Society (DTS) is launching a post-market surveillance program aimed at ensuring glucose meters and…  [...]

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