14 Responses

  1. Dr. Cyrus Khambatta
    Dr. Cyrus Khambatta December 3, 2013 at 6:36 am | | Reply

    I wish I too was at the DiabetesMine Innovation Summit but your report on the summit makes up for the loss quite nicely.
    I am super-excited to know about Tidepool’s free open-source D-data platform. Such initiatives must be supported as much as possible.

  2. Kristin W
    Kristin W December 3, 2013 at 6:56 am | | Reply

    Thanks for the recap, Wil. Always enjoy reading your posts. Not surprised by your report of how discussions went with the health insurance folks at all, sadly….

  3. David
    David December 3, 2013 at 7:41 am | | Reply

    There should be minimal paperwork for pump and CGM. Coverage for T1 should be nearly automatic anyway.

  4. Scott Strange
    Scott Strange December 3, 2013 at 8:28 am | | Reply

    Hi Wil,

    Great recap, I posted yesterday on some of the reasons why there may have been so much rotten fruit…

  5. Bernard Farrell
    Bernard Farrell December 3, 2013 at 9:33 am | | Reply

    Thanks for an excellent summary Wil. I’d like to have been there when the insurers were being howled at. I know they have to make money to stay in business, but they consistently take such a short term view of life with diabetes and what it takes to stay well for the long-term.

  6. Scott S
    Scott S December 3, 2013 at 10:43 am | | Reply

    I think the discussion with payers is actually something that has been missing. The payers’ clients are companies who buy insurance as benefits for their employees. It’s unfortunate that we seem to overlook this, but the reality is that’s the way the U.S. healthcare system works. The same applies to appeals for denials. I think that’s something D-Mine did that was unique, but needs to have a bigger conversation in the future.

  7. StephenS
    StephenS December 3, 2013 at 2:35 pm | | Reply

    Wil, thanks for the recap. I had read snippets about the summit all over, but this was a good source of everything that was talked about there. Thanks

  8. Ginger Vieira
    Ginger Vieira December 3, 2013 at 3:43 pm | | Reply

    Amazing re-cap, Will! Wow, thank you so much for making this so easy to digest and for giving such a clear roundup of what was being discussed!

  9. Ruth
    Ruth December 4, 2013 at 6:40 am | | Reply

    thanks so much for keeping the rest of us informed. Let us know if there’s something the “masses” can do.

  10. Shara
    Shara December 4, 2013 at 7:29 pm | | Reply

    Thanks for this great synopsis, Wil! Maybe it’s a good thing I wasn’t back at the conference this year…I think the heated argument would have exploded had I been given a chance to fan the flames. Despite the episodic anger, it sounds like you all made some signifiant steps forward. Kudos to Amy and your whole crew on another successful year!

  11. Tricia Finigan
    Tricia Finigan December 4, 2013 at 9:11 pm | | Reply

    Thank you for being such a great source of information and insight into PWD struggles. I am looking for help with my medtronic CGM sensors. My insurance covers them but…no longer has a contracted vendor. This was my wtf moment. As mentioned in your summary, I am told to have my MD call the “provider line” after two weeks of trying to solve this myself. The hoop jumping is endless.

  12. Scott E
    Scott E December 5, 2013 at 5:42 pm | | Reply

    Great summary. I always appreciate your unrestrained, I’m-not-here-to-make-friends way of storytelling.But will it make a difference (other than the Payers distancing themselves from forums like this in the future)? I think that the message got through to the Dexcom executive — and I also am re-evaluating my earlier opinions of the FDA.

  13. Jay Kauffman
    Jay Kauffman December 8, 2013 at 10:35 am | | Reply

    Really interesting article and summary. Thank you, and thanks for doing this.

    I was confused initially by the term “payers” —obviously someone has to pay for healthcare, and in this country, it ultimately falls on the patients. Whatever cost they incur in doing an incredibly complex and timeconsuming job they inevitably pass on to us, the patients, plus whatever profits they take on top of that. So we are really the payers,not them. Using “Payers” for the insurance carriers is the term that gets used? Strikes me as unconscious denial in the form of jargon.

    Why, in all the hullabaloo about Obamacare, is it so hard to get people to even vaguely consider the option that is considered to be basic morality and economic logic in most of the world, that it fht “Payers” weren’t part of the equation, the real payers would be a lot better off and have less to pay.

    Why do we continually think that everything HAS to be solved entirely by corporate driven free market capitalism, even when it’s so obvious that this doesn’t work as a framework for public health and healthcare, neither morally or practically because the pharmaceutical and insurance industries become far too powerful and lobby for laws that turn ALL the advantages in favor of their continual (parasitic) growth?

    Why do we as patients continually get called “health care consumers?”
    If we were really consumers we’d have the CHOICE not to pay for what we don’t want or need, which we don’t, because we’d die. If we were really consumers the market would at least reflect our ability to ‘walk away” from exorbitant prices, which we can’t.

    Quoting an article about Harvard’s David Cutler, who advised Obama on healthcare.:

    “So when the severe debilitating chest pain hits, I The Consumer comparison shop for the best ambulance, and while I’m on the road, I direct the driver, between spasms, to the in-network hospital, even though it’s thirty miles away, and then I comparison shop for the cheapest room, and when I’m in bed, I pop open my laptop, and comparison shop for the cheapest surgeon…. And the cheapest drugs… Because I’ve got “skin in the game”…. Even if it’s not a game…. To me… Well, Cutler puts it less vividly but more succinctly:

    The trend in health care nationally is to put more and more on the patient.

  14. Why Tidepool is Open and Non-profit
    Why Tidepool is Open and Non-profit January 7, 2014 at 10:03 am |

    [...] Dubois at “A Skeptic’s View of Our Summit: Anger and Hope in Palo Alto,”  Dec 3, [...]

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