4 Responses

  1. Jenni
    Jenni May 17, 2013 at 11:05 am | | Reply

    I think your courage is inspiring to say the least. As a new mom, I have a responsibility to my child to facilitate a healthy lifestyle for him. You are setting a great example for new mothers like myself. I’ve been researching a gluten free diet and it’s something I am interested in but don’t necessarily want to commit to until I am sure I can stick with it. Keep spreading your positive experiences they are most helpful.

  2. Nikki
    Nikki May 17, 2013 at 5:40 pm | | Reply

    What a great article- thank you for posting this on your site! I love Wendy’s tips- they are great ideas for T1 Celiacs of any age! I had to LOL about the daughter hauling her toaster around to other people’s houses- I thought I might be the only one doing that.

  3. Eric Thompson
    Eric Thompson May 18, 2013 at 11:36 am | | Reply

    I happened to have a friend with a son with type 1 diabetes whose mother was also type 1 and had celiac disease. As time passed, maybe a year or so, she encouraged me to have further testing done. We met with a different Gastroenterologist and she explained that with a low number like 19, the previous Gastro probably felt that the chance of a positive biopsy was low. She agreed that it was a good decision to wait. But by this time his number had risen (again, I don’t recall what it was, but I want to say closer to 100.) and she agreed it was time to do a biopsy. In May, (Or maybe it was June by the time they called with the results) 2005, at the age of 7, Westin was diagnosed with Celiac Disease. We were informed of the diagnosis by a phone call from someone in the Gastro’s office, with instructions that the dietician would be contacting us. We waited. Finally, we just started to change over to a gluten free diet. We didn’t go cold turkey with Westin at first. Slowly, over that summer, he made the choice to completely cut the gluten out of his diet. He had zero outward symptoms of the disease, so he never felt bad from eating gluten. But as his body got used to being gluten free, he started to have symptoms of diarrhea when he would consume regular gluten foods, like bread. This made his decision to go completely gluten free a bit easier. He once said that he didn’t want to be stuck on the toilet for a week! I have never wanted to be the food police. Letting him get to that place himself made the transition so much easier. Oh, and by the time the dietician called, it was way later in the summer and we were already well on our way to gluten free. We never did meet with her.

  4. Sarah
    Sarah May 20, 2013 at 6:43 pm | | Reply

    In our search for a very small toaster for our daughter, who has celiac disease, my husband and I came across Toastabags ( reusable teflon bags into which you insert GF bread and then toast in a non-GF toaster, avoiding cross-contamination. Much lighter and more convenient than carrying around a GF toaster!

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