9 Responses

  1. What’s Next for Diabetes Social Media Summits? | Knowledge of Medicine

    [...] post What’s Next for Diabetes Social Media Summits? appeared first on DiabetesMine:the all things diabetes [...]

  2. Suzanne Harmon
    Suzanne Harmon April 12, 2013 at 7:02 am | | Reply

    Thanks for this article, I’ve had a very good experience with the Sick Kids hospital near me. When people give reviews and tell friends about their experiences, it rewards the nurses, doctors and secretaries for their hard work!
    Love this!

  3. Bernard Farrell
    Bernard Farrell April 12, 2013 at 8:09 am | | Reply

    Thanks for an insightful and informative article Mike.

    I’ve attended several of the Roche summits and found they worked best when we talked about challenges facing people living with diabetes. We’ve talked about ways to spread the word about the DOC and the great blogs and sites out there. I remember clearly our discussions about meter accuracy and the importance of this. I found summits where other organization participated (ADA, JDRF, AADE, etc.) were useful, though participants were often very direct in criticizing they also offered suggestions for improvement.

    I think these continuing summits will only work if everyone benefits from attending. The summit giver needs to hear directly from the DOC people in the room, we all need to brainstorm on ways to improve life with diabetes and then be enabled to take action. I think Diabetes Advocates would not be around except for the Roche summits.

    I’m looking forward to seeing how summits evolve in the future.

  4. David Edelman
    David Edelman April 12, 2013 at 9:51 am | | Reply

    This is an excellent summary! I agree with everything that Bernard says above.

    I also think that summits need to become increasingly action-oriented. There is enormous potential for patient advocates to push for change in government, non-profits, and the private sector. We need to move mountains to increase research funding, change public perceptions, and improve access to diabetes care.

    The only people who can push to make that happen is us. As individuals, through organizations, and through loose affiliations like these blog posts.

    We’ve come so far in a few short years… and we can almost see the mountain top! (Or at least Base Camp 2)

  5. StephenS
    StephenS April 12, 2013 at 1:22 pm | | Reply

    Mike, thanks for such a detailed look at these summits. There are probably a lot of dynamics involved, from both sides of the table.

    I was saying to someone last week…
    Why shouldn’t you be in a discussion with these companies? Patients deserve to be part of the conversation. But don’t take it for granted (not that I think anyone is doing so). It’s great that these entities are engaging patient advocates.

    A couple of questions: Do attendees ever get together in advance of the summits and discuss the questions they’ll ask and what they want to advocate for? And has there ever been discussion of a social media summit where DOCers welcome companies into the discussion, rather than the other way around?

  6. Vicki Baker
    Vicki Baker April 12, 2013 at 4:13 pm | | Reply

    Same here. I have been envolved with a diabetes camp for children that has decided to not do any diabetes education this year. My thoughts were to have a focus group with parents as they are our customers also and know what their kids need plus what they expect their kids to learn at camp.. Yes it comes from the people that deal with diabetes 24/7.

  7. Judi
    Judi April 13, 2013 at 10:35 am | | Reply

    An additional idea would be for these companies to read blogs from people new to blogging, maybe invite a certain percentage of bloggers who have not been to their past summits. New people might add some different ideas and perspectives the pool.

  8. {Type 1 Tuesday} 04.16.13
    {Type 1 Tuesday} 04.16.13 April 16, 2013 at 5:00 am |

    [...] Mine What’s Next For Social Media Summits? (Since I have attended a few social media summits, I’m interested to see the direction that [...]

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