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20 Responses

  1. Jennifer Beneke
    Jennifer Beneke April 8, 2013 at 6:49 am | | Reply

    DM Books This book sounds really interesting. I have done some reading on the history of diabetes and it would be very interesting to learn more about the history of other chronic illnesses.

  2. Scott S
    Scott S April 8, 2013 at 9:08 am | | Reply

    DMBooks Very interesting on the issue of chronic illness groups working together. From my perspective, I have tried to reference various other groups, such as when the FDA draft guidance for biosimilar medicines came out last year, my comments referenced not only diabetes. In fact, my first paragraph in my comment read as follows:

    “People with chronic medical conditions (many of which are autoimmune diseases without cures including type 1 diabetes mellitus and rheumatoid arthritis) are typically treated with biologic medicines such as biosynthetic insulin on permanent basis. This makes our concerns somewhat unique relative to other patient groups, such as those with acute illnesses like various forms of cancer where treatments with biologics may occur for a limited duration, but will likely be discontinued later. In the case of patients with type 1 diabetes mellitus, we as patients are treated with biosynthetic insulin many times per day, or in some cases, CONTINUOUSLY via subcutaneous insulin infusion (CSII) using an insulin pump. Our concerns, therefore, are somewhat unique and I believe deserve appropriate consideration from the FDA.”

    In any event, I do see the need for all groups of patients do need to learn to work together. I see autoimmune diseases in particular as having a shared need to collaborate, but there’s no reason to limit ourselves to that alone, as all chronic illnesses have similarities in terms to access to care and whatnot, therefore we have common concerns.

  3. Laura G.
    Laura G. April 8, 2013 at 10:30 am | | Reply

    DM Books. Sounds like a wonderful, timely, necessary book.

  4. Pre-Pub Date Announcements and Excitement | Laurie Edwards

    [...] who are participating. Want to win a free copy of In the Kingdom of the Sick? Click on over to this great Q&A Allison Nimlos did at DiabetesMine and enter to win in the comments section. Allison asked some [...]

  5. Michael
    Michael April 8, 2013 at 3:07 pm | | Reply

    As more and more people are affected by chronic illness, people have to face up that we need to address the issue and not hide about it, like headless orstrichs.
    DM Books

  6. Ali
    Ali April 8, 2013 at 3:54 pm | | Reply

    I really enjoyed Laurie’s last book so looking forward to reading this one.
    DMBooks

  7. Mar
    Mar April 8, 2013 at 6:27 pm | | Reply

    Laurie is such a great writer and it’s good to know that there’s a new book coming out, I’ll definitely buy one of these. She is an inspiration and she keeps on motivating people with chronic illness. Thank you for this.

  8. Helen
    Helen April 9, 2013 at 9:24 pm | | Reply

    I am so looking forward to reading this book! Having lived well with type 1 diabetes for 39 years, I often feel like I am in a very separate fringe subculture than the ‘Normals’. Watching the social milieu change over the decades as other autoimmune conditions become more widespread, has been quite the journey. The psychology of chronic disease is such an overlooked yet fascinating subject. Can’t wait to read this!
    DMBooks

  9. Michael
    Michael April 10, 2013 at 4:02 am | | Reply

    I am very interesting in this book as someone who has many chronic illnesses in my family, diabetes, als, to name just a couple. Thank you very much for the giveaway opportunity DMBooks!!

  10. Andrea
    Andrea April 10, 2013 at 8:50 pm | | Reply

    Sounds like a very interesting book. I look forward to what Laura has to say about celiac disease. I lead a celiac support group for the CDF and one of the concerns I hear the most from those who have celiac disease is that they are saddened and frustrated by family members who don’t seem to understand and support them. It’s not like we CHOOSE to have this disease. I also want to make people aware that diabetes and celiac disease ride on the same gene, so it’s a good idea for those with diabetes to be tested for celiac disease, even if you don’t have symptoms. Celiac disease is hereditary and many people are asymptomatic.

  11. Kristinayellow
    Kristinayellow April 11, 2013 at 9:20 am | | Reply

    iLiving with multiple chronic and jnvisible illness makes me very interested in this book. Dmbooks

  12. david wasserman
    david wasserman April 11, 2013 at 1:24 pm | | Reply

    I was made aware of Laurie Edwards new book due to being a daily listener of FRESH AIR radio show. I am always interested in the subjects of chronic illness/pain and innovative treatments, let alone the topics being discussed in ‘public square’. DM BOOKS

  13. Andrew L Wheelock
    Andrew L Wheelock April 11, 2013 at 10:43 pm | | Reply

    DM Books. I caught part of the Fresh Air broadcast Thursday driving from NH to NY. I was quite taken a back by the new book Kingdom…….
    My girlfriend has diabetes, fibro’, and chronic pains. She is 65…. I am 67 and still driving tractor trailers. I will give this book to Kathy!

    1. david wasserman
      david wasserman April 12, 2013 at 10:06 am | | Reply

      Andrew…look into WHEATBELLY book to diminish fibro for your girlfriend and END OF DIABETES by Dr Fuhrman for your self

      wish you both well

  14. Jacoba Magrietha Meyer
    Jacoba Magrietha Meyer April 12, 2013 at 4:37 am | | Reply

    DM Books are just what I need for furthering my education to diabetes, as I live in a very small town where you do not get much help from anyone. I have been diagnosed with diabetes in 1997.
    I have to use the injection twice daily.
    DM Books sound very interesting
    Thank you.
    Grieta Meyer

  15. Myra
    Myra April 12, 2013 at 5:06 am | | Reply

    I heard Laurie Edwards on NPR yesterday talking about the book and I decided I had to have this DM book.

  16. Ellen
    Ellen April 12, 2013 at 8:35 am | | Reply

    I look forward to reading this…. My husband has been disabled for over 25 years, and I am now challenged with arthritis & diabetes… The abuse from his family who didn’t “believe” in his illness has been incredible… Activism is so important.. thank you DMBooks

  17. Brenda Curtiss
    Brenda Curtiss April 12, 2013 at 9:00 am | | Reply

    This interview was even better than listening to your NPR interview with Terry Gross.
    Chronic conditions do present many similarities in the whole living process. I worked in the Independent Living community for many years. Colleagues came to realize that many of their issues dealing with an obvious physical disability had commonalities with mine as a person with type 1 diabetes for many years.
    Can’t wait to read your book!

  18. Laurie Edwards
    Laurie Edwards April 13, 2013 at 11:01 am | | Reply

    Thanks so much for the comments and the interest, everyone! Allison asked some fantastic questions and I had a great time answering them. I hope the book is helpful and resonates with your experiences, and if you are able to read it, I’d love to hear your feedback.

    All the best,
    Laurie

  19. Chronic Illness, Employment, and Kickstarting Your Career | Laurie Edwards

    [...] question that has come up in several In the Kingdom of the Sick posts—including this great Q&A over at DiabetesMine—is how disability rights have influenced chronic illness, particularly in the work place. [...]

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