13 Responses

  1. Bob Fenton
    Bob Fenton March 18, 2013 at 9:57 am | | Reply

    Thanks for being fairly honest about the AADE. I do have problems with their “feel good” hype when thy are unable to deliver.

    This may be of interest for some and may be the organization to break the lock against lay people – http://www.cdc.gov/diabetes/prevention/about.htm There is quite a bit of information in the left column on the different parts of this program.

  2. Terry Keelan
    Terry Keelan March 18, 2013 at 2:50 pm | | Reply

    No surprise that an organization wants to protect its own, but you might think it would want to find ways to increase its membership, too.

  3. Tami Ross, AADE President
    Tami Ross, AADE President March 18, 2013 at 3:09 pm | | Reply

    As current President of the American Association of Diabetes Educators (AADE), I would like to respond. AADE will review the constructive criticisms raised by this piece as we continually strive to meet the needs of diabetes educators. We do, however, appreciate the opportunity to correct several misstatements in the post:

    First, to be clear, as it appears there may be misunderstanding on Diabetes Mine’s part, AADE is not a patient advocacy organization. As AADE’s name reflects, we are a professional membership organization for diabetes educators – an organization whose objective and mission is to support the needs of diabetes educators. Obviously, in order to do that we must be attuned to the needs of those living with diabetes, and we are. In fact, many members of the leadership teams who developed the strategic plan, are individuals with diabetes. And, a significant portion of AADE’s membership base are people with diabetes, as we pointed out in our email correspondence with Diabetes Mine. Certainly, there’s always opportunity for further engagement.

    Second, contrary to the assertions raised, membership in AADE is not shrinking. In fact, membership has grown by more than 20 percent in the past 4 years.

    Third, in regard to the length of the strategic plan document; Diabetes Mine reviewed only the overview that was posted on AADE’s web site. The full report is an internal document that is much longer and more detailed. Diabetes Mine’s comments did not reflect the many strategies encompassed within the strategic plan’s four key priorities. Notably missing were mention of AADE’s advocacy efforts,
    which include updates to Medicare billing that would ultimately provide expanded access to diabetes education for those individuals with diabetes, and state licensure initiatives to insure that quality diabetes education is provided by qualified health care professionals. Also missing was mention of AADE’s focus on diabetes prevention. Ten percent of AADE’s annual budget is now dedicated to diabetes prevention efforts.

    In addition to programs and services that are designed for diabetes educators, AADE will be executing a number of outreach initiatives directed toward people with diabetes. We take our cues and directions for these programs, and how to best implement them, from our members.

    Without a doubt, fighting diabetes is the goal of everyone in the diabetes community, whether a patient awareness and advocacy organization, a medical society, or a professional membership-based association, such as the American Association of Diabetes Educators (AADE).

    AADE’s vision, as stated in our strategic plan, is optimal health and wellness for people with diabetes and related chronic conditions. AADE’s mission to accomplish this is through ensuring the success of diabetes educators. Our members are our focus. We are proud of our heritage and our plan to move diabetes education forward.

    1. AmyT
      AmyT March 18, 2013 at 10:56 pm | | Reply

      @Tami Ross – a huge THANK YOU for taking the time to reply here and address the patient community directly.

      Clearly AADE is a professional membership organization rather than one focused on patient advocacy — that is the point of this post, i.e. the disconnect highlighted at the outset. Now that social media has put such a public face on organizations like AADE, patients naturally have high expectations that such a vital organization will be advocating on their behalf.

      Tami – we’d love to have your perspective on bridging this disconnect in a subsequent guest post if you’re willing.

      Note: we do outline AADE’s new state licensure initiatives in some detail in the post. If there are other oversights or factual errors, we apologize and will be looking into that. Without public access to the full plan, we were of course forced to rely on the “overview” that was published.

  4. Bob Fenton
    Bob Fenton March 18, 2013 at 3:43 pm | | Reply

    “The full report is an internal document that is much longer and more detailed. Diabetes Mine’s comments did not reflect the many strategies encompassed within the strategic plan’s four key priorities.”

    If this plan is so important, why is it hid from public view? Bloggers and others can only report on the facts provided by AADE. If you are keeping this an internal document, don’t complain when we report what we see.

    Your membership may have grown by 20%, but what about those retiring and leaving the practice. This might serve to give us confidence that we are hearing the full story. Of the 13,000 members, how many are actually doing certified diabetes education? My guess is less than 8,000. Or is this information that would confirm how ineffective the AADE and it’s members have become. The listing of 13,000 members has not changed for several years, so I must ask where did the growth come from?

  5. Vicki Baker
    Vicki Baker March 18, 2013 at 3:51 pm | | Reply

    What PWD want is real help. Not off the shelf diabetes education but what really works in ours lives with diabetes. Thanks to my diabetes educator Gary Scheiner he gave that to me with his experience with living with diabetes and using
    the same technology. We don’t want text book diabetes education. Give something that will help us in real life with diabetes. That’s all!

  6. Terry Keelan
    Terry Keelan March 18, 2013 at 8:48 pm | | Reply

    1. It’s a testament to the influence of Diabetesmine that the AADE has responded here.

    2. I don’t see any reason for the AADE to release its internal documents.

    3. I am curious whether the AADE is taking steps to making it easier for people to enter the CDE field without requiring that they first be a member of another medical profession. Why shouldn’t the designation of CDE be earned independently as a separate field of knowledge or practice?

    1. AllisonN
      AllisonN March 20, 2013 at 5:05 am | | Reply

      There is a reason diabetes clinics are in hospitals. It is medical condition, which involves a whole host of complex medications, the body’s entire organ system, co-mornidities, and impacts / is impacted by other illnesses or medications. Medical conditions require medical professionals to some degree. The AADE is developing certificate programs for more general lay and health care professionals, but I doubt you will ever see a CDE who doesn’t have sufficient knowledge about how the entire body works and why. It’s more complicated than what a single PWD would be exposed to, and I don’t think you could really teach someone without essentially putting them through the same medical program. Everything is foundational.

  7. Sam
    Sam March 19, 2013 at 1:48 pm | | Reply

    Just gonna say something that’s gonna irk people – privatize!

  8. Erin Krupp
    Erin Krupp March 20, 2013 at 7:13 am | | Reply

    Diabetes education is really important. People need to be aware of this disease even more because it is too complex and people who don’t seek medical management might increase their risk in having such complications. The AADE must focus on educating people with this kind of disease rather than focusing on the organization or the membership itself.

  9. Karl Fenn
    Karl Fenn March 22, 2013 at 10:21 pm | | Reply

    It is clear there are problems with diabetes education, particulary with the NHS at the momnet in chaos, I have thought much about this problem, but feel in some cases particularly with diet issues and control of the condition much
    could be passed on to the patients via DVD, although there
    are many booklets given to patients, I think many do not
    read them, some are unable to read. I think diabetic education
    on DVD would be a great idea with advice on how to manage
    the condition, with such topics as foot care, hypo treatment
    diet, this would save the NHS and hospitals a huge amount
    of money to use in research areas.

  10. Deborah Greenwood
    Deborah Greenwood March 24, 2013 at 9:58 am | | Reply

    Hi my name is Deborah Greenwood, I am a diabetes educator and a past AADE board member, and Perry Gee is Nurse Informaticist, we are both PhD students focusing our research on how technology can support self-management and improve the health and quality of life for PWD.
    We are preparing a presentation for the AADE annual meeting in August titled, “The e-Patient Revolution, Personal Health Records and Diabetes Self-Management Support,” on Wednesday August 7 at 2pm. Our presentation is based on a recent paper we published in Nursing Outlook, July 2012 about e-Patients and our strong interest in the wisdom that can be created when PWD and clinicians collaborate and learn from each other. Both Perry and I are members of the Society for Participatory Medicine and actively keep up with current issues and concerns important to all health consumers.
    As nurses we are advocates for PWD and using our own clinical experience we have drafted our presentation. However, after reading this blog, we thought it created an opportunity to have some discussion with passionate PWD who are actively engaged here in this online community and then to share this information during our presentation.
    If you would be willing to speak with us, to help us enhance our presentation, and incorporate the DOC views on how PWD and diabetes educators can improve partnership and collaboration using technology, please email us. deborah.greenwood@ucdmc.ucdavis.edu or perry.gee@ucdmc.ucdavis.edu
    We believe this blog has generated important discussion and we value the wealth of knowledge and experience of PWD.

  11. Raeanne Madison
    Raeanne Madison April 8, 2013 at 10:55 am | | Reply

    Did you see that MCHES professionals will be eligible to sit for the CDE exam starting in 2014? I’d love to hear your thoughts on this.

    http://www.sophe.org/MCHES_Diabetes_Educator.cfm

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