10 Responses

  1. StephenS
    StephenS March 25, 2013 at 6:35 am | | Reply

    Mike, great information. I’m going to do my research on the legislative items and then contact my House rep and both Senators. Thanks

  2. Jill Geisendorfer
    Jill Geisendorfer March 25, 2013 at 11:38 am | | Reply

    JDRF’s Promise To Remember Me campaign begins August 1 and gives people impacted by T1D the chance to meet with their federal legislators in their home districts. Go to Jdrf.org to register as an advocate and you will be notified by email when there is a meeting with your Representative or Senator!

  3. Camille
    Camille March 25, 2013 at 12:11 pm | | Reply

    Thanks for such a comprehensive article, Mike.

    I participated in JDRF’s Government Day last week. The $245 billion dollar annual cost of diabetes really puts the $150 million dollar investment in the SDP into perspective! The SDP has allowed researchers to build on what’s been learned through research and clinical trials to provide better therapies and will eventually lead us to a cure. Until that time, providing improved treatments, including the Artificial Pancreas, now in outpatient clinical trials will allow those living with T1D to lead a safer, healthier life. JDRF families have raised over $1.7 billion since this organization was formed in 1970. We put our money where out mouth is, partnering with the federal government to fund research, and that gives us a lot of credibility.

    Renewing the SDP as part of the fiscal cliff budget deal was a huge accomplishment. It was the result of bipartisan support and the hard work of many people. Our work isn’t done, though. We’ll be seeking renewal again in the months ahead. Our lawmakers must hear from everyone that renewal is important. And that it’s something we will work hard for and care passionately about.

    Signing up (through the links Mike has provided) will take just a second. When renewal efforts begin, making your voice heard is as easy as making a phone call or sending in emails to your legislators. I couldn’t be easier…..or more important.

  4. Jessica
    Jessica March 25, 2013 at 12:58 pm | | Reply

    Great to see what the ADA is doing. Nice reporting Mike.

    Just signed up via ADA link in post. It’s really not that hard. Everything is setup for you. You just need to post support signatures.

    Everyone should be doing this.

  5. Kelly Yamauchi
    Kelly Yamauchi March 26, 2013 at 1:28 am | | Reply

    Hi Mike,

    My father had diabetes for decades now and it seems that the disease makes him suffer more this year. I think this is a great program and people with diabetes including their family should support this! Thanks for sharing!

  6. kathy
    kathy March 26, 2013 at 4:25 am | | Reply

    The funds that come through these governmental agencies is what drives the research projects that are getting so close to our cure. It’s so important that there are no gaps in this funding that might cause a gap in this research.

    Advocating to your representatives is empowering and somewhat therapeutic. Signing up and following the directions to contact your Reps is easier than facebook. Really.

  7. Jennifer
    Jennifer March 27, 2013 at 7:27 am | | Reply

    I really wish that the ban on GIGANTIC sodas at restaurants had gone through. That would have renewed my faith in politicians.

  8. Kristin
    Kristin March 28, 2013 at 9:59 pm | | Reply

    What a great summary of advocacy efforts! I’m involved in JDRF, so love getting the big picture like this. Scary how easily we could lose research funding in the next year due to sheer obliviousness. We cannot let that happen. Thanks for laying out all the ways to get involved!

  9. mybustedpancreas
    mybustedpancreas April 4, 2013 at 9:46 am | | Reply

    What irks me about these legislative activities is that many fail to distinguish between the different types of diabetes. The term “diabetes” does not refer to a single disease, but rather a cluster of conditions that all have different causes (T1, T2, gestational, MODY, LADA). The treatment and attention that each needs is vastly different and this needs to be somehow reflected. If this isn’t done, it will continue to be the T2s (which are the majority) that get attention. I just read through the Senate version of the National Diabetes and Clinical Care Act and was disappointed to see (as always) statistics lumping all diabetes together and a failure to distinguish between the different forms. This is important I don’t understand why folks can’t differentiate!! The needs and concerns of your typical T1 who is diagnosed in childhood or early adulthood are VASTLY different than a middle-aged person diagnosed with mild T2.

  10. Steve
    Steve April 23, 2013 at 6:33 pm | | Reply

    good points from mybustedpanreas! And thanks, ADA. I developed T1 as a 31 yr old adult. & was fortunate to be an FAA air traffic controller, so had excellent health insurance. Ochsner Clinic in New Orleans started off my education about how to manage T1 diabetes, and that was in 1981. Since then I’ve upgraded to using an insulin pump, which is a blessing. One thing I’d love to see happen with the Affordable Health Care Act (talk about your oxymorons) is the Tax on medical device manufacturers gross profits repealed

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