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5 Responses

  1. Seth Rothberg
    Seth Rothberg August 28, 2012 at 5:00 am | | Reply

    O.k, I’m in a bad mood. I’m going to turn a longstanding private irritation into a public rant. Even though I loved the stuff here about the CDP and the successes and difficulties of islet cell transplants. That’s real info. But I am sick and tired of hearing about PWDs who run marathons. I take nothing away from their accomplishments. I can imagine what hard work it is. PWDs who complete a marathon should be proud of themselves–more than proud, but I can’t think of a word for that.

    Why do PWD athletic feats need to be broadcast to the whole world? Am I the only one in the world who is not inspired by marathon runners with diabetes? Why aren’t PWD novelists considered as inspirational as PWD athletes? The fact that some PWDs run triathlons or compete in iron man contests doesn’t make it any easier or any harder for me to get sweaty on my exercycle.

    1. AmyT
      AmyT August 28, 2012 at 11:03 am | | Reply

      @Seth – Um, “Why aren’t PWD novelists considered as inspirational as PWD athletes?”… To state the very obvious: this disease threatens to put severe limitations on our PHYSICAL accomplishments, not our brains or writing abilities.

      As in, just a few short years ago, PWDs were being told they could NEVER do something as physically grueling as a marathon.

      Many PWDs find inspiration in these examples of “no limits” accomplishments. Apparently you do not. No problem – to each his own.

  2. kathy
    kathy August 28, 2012 at 7:45 am | | Reply

    For now, islet cell transplants are a bridge to the cure. The immunosuppressants are the down side, but they are tolerable.

    For anyone interested in a close up and personal view of what its like to have an islet cell transplant, check out this facebook page.

    http://www.facebook.com/groups/113713851975220/

    Its called Pancreatic Islet Cell Transplant Recipients and is where many of us come together to share our experiences. We’re a very happy group :)

  3. Carrie C.
    Carrie C. September 7, 2012 at 9:14 am | | Reply

    My friend is hosting a fabulous fundraiser for CDP Oct. 3rd in Chicago. Check it out!
    http://www.brownpapertickets.com/event/271538!

  4. John
    John June 17, 2014 at 5:55 pm | | Reply

    I’m tired of reading about islet transplants. It’s been happening since 1996 and it’s still not mainstream. Why isn’t research getting to human clinical trials at a faster rate? And, is supply really an issue when there are daily google alerts about breakthroughs in islet cell regeneration. I’m tired of the irresponsible writings.

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