22 Responses

  1. Sysy
    Sysy June 13, 2012 at 6:11 am | | Reply

    When I lived like most people around me, I couldn’t meet the ADA below 7% recommendation. When I began to eat and live differently from most, lower my carbs, cut out processed food, I quickly lowered it and have maintained it under 7% for years now. (There is more to it than that) But I really think our entire way of life needs to be modified. It clearly isn’t working.

    I’m with you, knowledge is power. I’m sure awareness on this will only help :)

    1. Robert
      Robert June 13, 2012 at 11:17 am | | Reply

      Amen Sys,

      As long as the ADA continues to recommend a carbohydrate based diet things won’t change and will get worse. My a1C was 5.9 in April by eating a low carb (less than 50grams per day), no artificial sweeteners, high fat, protein and veggie – eating fabulous foods including Almond Meal based baked goods. On the pump and CGM, my daily average insulin is 15units, mostly basal. 40 years old – Type 1.

      1. Kim
        Kim November 27, 2012 at 10:53 am | | Reply

        Hi Robert, I’m 32 and been type 1 diabetic since i was 12. I’m on the pump and well controlled (AIc is usually 6.2) but I want to get a better grasp on things and i’m sick of eating the same old stuff! Being T1D yourself and on Paleo, is there a meal plan you can recommend for me just so i can see the types of foods that are working for you? thank you in advance, Kim

  2. Ken
    Ken June 13, 2012 at 10:15 am | | Reply

    I’m also surprised by the T1 A1C stats. I wonder how the numbers break down for those on a pump vs injections

  3. MikeC
    MikeC June 13, 2012 at 2:34 pm | | Reply

    “Most people with type 1 in the U.S. fail to meet ADA treatment targets of an A1C of 7 or below”

    - because they are continuously advised to eat carbs. so counter-intuitive.

  4. MikeC
    MikeC June 13, 2012 at 2:35 pm | | Reply

    sorry, I see everyone beat me to it.

    1. Koraphat
      Koraphat July 12, 2012 at 7:41 pm | | Reply

      it all so well. People don’t understand what I mean when I say that Diabetes is my nubmer one priority but those people often don’t understand that EVERY decision you make, you HAVE to think about how it will effect your diabetes. So thanks again…it’s nice to not feel so alone with this disease

  5. MikeC
    MikeC June 13, 2012 at 2:46 pm | | Reply

    Robert, my daily insulin has dropped from ~120 to ~65 since switching to the Bernstein plan. no BGs over 200 in 2 weeks. I can think clearly, I can exercise without pain, sleep is better. etc, etc.

    1. Robert
      Robert June 14, 2012 at 6:15 am | | Reply

      MikeC – Awesome Job! Bernstein was an early proponent of this – I got his book years ago and the latest activity around the Paleo diet has created a wealth of info for diabetics.

      1. Janine
        Janine November 7, 2012 at 11:58 pm | | Reply

        Hi Robert I would like to find out how can I get hold of Dr Berstein’s book as I live in South Africa and if I want to order the book it will be a waiting period of around 3 months if there is more people wanting it or it can take even longer. I am T1D struggling to get my A1c below the recommended standards of below 7% but really would love to reach my target. As I am a fire fighter to and doc says in my work I need to be below 7% and I am at 8.2 now?? Please help???

  6. HopeW
    HopeW June 13, 2012 at 9:21 pm | | Reply

    I get tired of hearing/reading about “treatment” for type 1 diabetes. How about no more “treatment” and just “cure”? Dr. Denise Faustman has found the cure, but I fear that the ADA and the pharmaceutical companies will never allow PWDs to ever have it.

  7. Tim
    Tim June 13, 2012 at 10:32 pm | | Reply

    It is possible to have respectable a1Cs and still eat a reasonable amount of GOOD carbs. I eat 270-300g of carbs a day and my last three a1Cs were 6.2, 6.0 & 6.4%. It’s not rocket science, but the most important thing I’ve realized lately is that my control DEPENDS upon me exercising very regularly and vigorously. I need that exercise to lower my insulin resistance. Until I developed LADA, I could get away without exercise and just cut back on the feed to control my weight. My diagnosis was an (im)perfect storm, as I developed it just on the cusp of middle age, so I really needed to start exercising regularly anyway.

  8. kathy
    kathy June 14, 2012 at 4:30 am | | Reply

    It really surprises me that the majority of Type 1s are overweight or even obese. That’s not what I see in my life at all. I would be interested in seeing that data and how they define both Type 1 and overweight.

    1. Tim
      Tim June 14, 2012 at 9:58 pm | | Reply

      It’s not been my experience, either, but that may be due to the fact that there are so few T1s, and the ones we tend to see (going to conventions and to fundraisers) are those that are more serious about getting their D under control. I didn’t find out I was LADA until about a year ago (they thought I was Type 2, despite my tall, skinny somatype) when my pancreas stopped producing enough insulin to cover meals.

      Following my nutritionist’s guidelines and using Novolog, my 8.2% became 6.0% in three months. When my control is that tight, I too have problems with hypos.

    2. Mary Dexter
      Mary Dexter February 12, 2013 at 9:19 am | | Reply

      At the Adult Type 1 meetings I attend there are people of all body types, some very athletic, others more voluptuous. A lot of the shock around the statistic is that Type 1s are shown by the media as either tiny children or super-athletes, whereas Type 2 is chained to obesity. The truth is more diverse.

  9. Kathy
    Kathy June 14, 2012 at 4:49 pm | | Reply

    My A1C while adhering to ADA recommendations was 8.5. I happened to find an online Diabetes forum that encourages restricted carb intake. New A1C is 6.1. I feel better although I still have too many hypos in spite of lowering my basal rates a number of times.

  10. Eric
    Eric June 15, 2012 at 9:08 am | | Reply

    Sorry but the whole – No carb thing for A1C is not the only solution. I just had an A1C of 6.8, previously I had 7.4 and 7.2. These are decent, my doctor wants them lower but I have to admit- I eat LOTS of carbs. The problem is there are different types of carbs and carb counting is hard- You have to work at it and it is mostly trial and error.

    Now the next point I would argue is that an A1C below 7 is also not necessarily in the patients best interest. As the article states elderly have higher rates of Hypo epidemics which is FAR more dangerous than being “slightly” elevated A1C. There was a study (last year?) that also supports this fact. Eldery patients with A1C in the 7s had no difference in diabetes related “complications” than their counter parts in lower A1C ranges. What they found though is that the lower A1C ranges had higher mortality rates. DEATH. that’s not what we want. Sorry.

    1. Tim
      Tim June 15, 2012 at 7:11 pm | | Reply

      It’s about what works for YOU. There’s something in MY genetic makeup that makes it OK for me to eat the way everyone else is supposed to eat, whether it’s the food pyramid or the plate approach. My plan is to try to shoot for 6.8-7.0%, which will cut down on my lows. The most difficult thing that I have to do is get the right amount of food/insulin for when I exercise.

  11. HopeW
    HopeW June 15, 2012 at 8:15 pm | | Reply

    I, too, have never been able to figure out how to add regular exercise into my routine without my BG’s going either too low or too high.

  12. Erin
    Erin June 2, 2013 at 8:22 pm | | Reply

    I have had type 1 for 25 years (Since age 5), and have NEVER found a pattern to keep my BGs in target. I’ve tried every diet, didn’t eat carbs for months, and have never had an A1C under 7.2, and that was when I ate pasta daily.

    I was never overweight until I put on over 50 lbs in less than one month in 2006 (I was 21), and I have never been able to lose it. I was told I developed PCOS, usually found in women with pre-type 2 diabetes, making me a type 2 ! The doctors blamed my weight gain on lack of exercise and improper nutrition, which couldn’t be farther from the truth. They said I developed insulin resistance, but I had so many lows that I just don’t buy it. I have been doing a lot of library research and think my body thought I was insulin resistant because my blood sugar was extremely out of whack, and my insulin dosages varied drastically. Therefore, my body produced excess testosterone for protection, which caused me to gain so much weight in such a short time.

    I just never figured out a single pattern to adjust my basal rates appropriately, and now exercise makes me run high for 4-5 hours after. I’m obese, and even though I have evidence that I exercise and eat mostly vegetables, my endos don’t buy it. I am a teacher and am required to get finger prints annually, and have stuck my fingers so many times I no longer have prints on my right hand! Yet “endos” think I don’t take care of myself.

    I apologize for my rant, but I’m so sick of being stereotyped as a type 2, and having crappy “doctors” who think they know everything. They know nothing, and I just wish they’d admit it. Just write my insulin prescription so I can stay alive and be done with it. I take great care of my body and health, but my well-intended actions have never worked. I also think Mary Dexter nailed it by saying, “that Type 1s are shown by the media as either tiny children or super-athletes, whereas Type 2 is chained to obesity. The truth is more diverse.”

    1. Kim
      Kim June 3, 2013 at 7:51 am | | Reply

      HI Erin, I’ve been type 1 since 1992 ( i am now 33) and i moved away from my dr of 15yrs and found a new one who also said that im type 2. I was like are u kidding me? before i was on the pump and i missed a shot by 1hr, my sugar would sky rocket..some dr’s are clueless esp. the newbies. Are you on the insulin pump or shots? Insulin pump is magic and could help to control you. PCOS produces testosterone in women which can cause insulin resistence. I’ve been there and went on birth colntrol pills to control it but my sugars werent too out of control. Have you been checked for a thyroid condition? or have you tried switching insulin like novolog or humalog? Too much insulin also causes weight gain. I’m sorry you’re going thru this..i know how frustrating it can be….. What kinds of veggies are you eating? carrots and corn are high in sugar and so are all kinds of peas. Portion size is also a key. Carbs such as pasta and rice should be limited to 1/2 a cup and meats should be 5oz or less. Pasta & rice also raise sugar over a period of 4 hours. Basmati rice is a diabetics best friend.. no one knows why but it has minimal impact on sugar levels. (you still need insulin but it doesnt spike) also, they make carb control pasta…its called Dream something. if you have any questions, leave me your email address and I will be glad to help you thru my own personal experiences. Kim

  13. Douglas
    Douglas November 15, 2013 at 12:28 pm | | Reply

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