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15 Responses

  1. Jessica Apple
    Jessica Apple April 23, 2012 at 6:36 am | | Reply

    I didn’t see the article you’re referring to, but I know from my own experience that a young, thin woman can be misdiagnosed with type 2. I have LADA, but the onset was so slow, that doctors totally missed it for years.

    Thanks for encouraging accurate reporting, Amy.

  2. Elizabeth
    Elizabeth April 23, 2012 at 7:23 am | | Reply

    Interesting.

  3. Lili
    Lili April 23, 2012 at 8:56 am | | Reply

    Ugh, I was also misdiagnosed as having Type 2. My original endo wasn’t at all bothered that I was underweight, active, and on a lowish carb diet. No, he assured me it was impossible for me to have Type 1 because that was incredibly rare and he saw young, thin Type 2s all the time. Makes you wonder.

  4. Cara
    Cara April 23, 2012 at 9:22 am | | Reply

    The media never ceases to amaze me. When did it become okay to publish something with little to no research? Oh wait, apparently always. At least when it comes to diabetes.

  5. Rebecca Gill
    Rebecca Gill April 23, 2012 at 9:48 am | | Reply

    The article makes me sad. I started a group on Facebook for LADAs and MANY of the members were misdiagnosed as type 2 well before they were properly diagnosed as LADA.

    The image is even more annoying. I doubt many of us look like that as we inject our four shots a day or insert our pump devices.

  6. Natalie ._c-
    Natalie ._c- April 23, 2012 at 9:49 am | | Reply

    You have definitely outlined the salient points. I actually think ANYONE who is diagnosed at ANY age, and at ANY weight should have antibody tests, because I have seen a couple of overweight or obese people on TuDiabetes turn out to be T1 with positive antibody tests.

    I have never heard the “TOFI” term either, but I HAVE heard of the concept of metabolically obese. That would apply to people who seem slim, but in reality have little muscle mass and a high body fat percentage. So, yes, T2 CAN occur in a young, seemingly slender person, but it really doesn’t make sense to automatically assume that’s the case without antibody testing.

    Also, sometimes MODY can pop up as a spontaneous mutation, meaning that neither parent has it, which is usually the case, because it’s autosomal dominant. But MODY testing is literally NEVER done, unless the patient themself has the will to fight with the doctor and the insurance company to cover it — it’s expensive.

    And the media is already responsible for a lot of shame and reluctance to seek treatment on the part of T2s; it’s even more heartbreaking that they have found yet another inappropriate target. :-(

  7. MedicalQuack
    MedicalQuack April 23, 2012 at 9:56 am | | Reply

    Very good points here as the media and marketing are not getting things right and data and reports are spun and full of it today and like you said, the importance is “real” education for sure. I talk about that with all areas of healthcare and it’s a bit out of hand. I used to write code so I know the mechanics and I spent 25 years in outside sales, so I get that part of it too:)

    It’s interesting though and for that purpose I have featured a couple of the math and statistical folks who have come into my circle here too that are even higher authorities than me.

    If you watch the video by NYU professor Charlie Siefe on my page, about 30 minutes you will think twice about clinical trials and how results are reported. This guy gets it and his presentation at Google NY is great. Also recently another person from the web came into my email realm and he has a lot of good information and even has some great suggestions on fixing some of the reporting.

    His specialty is data mining and he has a long pharma background with all of this. Check out Stan Young at NISS, the National Institute of Statistical Sciences.

    http://www.niss.org/content/s-stanley-young

    I agree we don’t need anymore “invented” media sensationalism for sure, but it thrives and makes it hard for those who need and want information to sort all of this out. Mr. Young agrees with us too in the fact there’s a lot of “junk” out there. There are very talented programmers and coders out there way beyond my talents but again when you can visualize and recognize part of what is going on it’s even more frustrating so some of us out here are trying to get the truth and knowledge out to consumers.

  8. Bob
    Bob April 23, 2012 at 12:06 pm | | Reply

    My god, how much insulin is she “injecting?” Looks like about 50 units! Hope it’s basal!

  9. Melitta
    Melitta April 23, 2012 at 12:36 pm | | Reply

    What is really sad is that the author of this Women’s Health article actually posted on TuDiabetes.org looking for young, thin women with Type 2 diabetes. Quite a number of us on TuD responded to her and told the author that those “young thin T2s” were probably misdiagnosed Type 1s/LADAs. I even had an email correspondence with the author, and she agreed that she had heard that very same thing from many, many people. So why did she persist with this ridiculous article that spreads misinformation, and actually truly hurts people? Misdiagnosis is really dangerous.

  10. Tim
    Tim April 23, 2012 at 1:41 pm | | Reply

    It’s dismaying that selling magazines is more important than getting the facts right. Even as a Type 1 diabetic, I daily educate people around me: “So, you can’t have sugar?” Groan! Maybe we should try to get on Dr. Oz and really get the message out so we individually don’t have to work so hard. I am also concerned that young women are already inundated with a media that tells them they’re too fat and not good-looking enough. Let’s give these women a break and respect them enough to give them the facts without sensationalism, Woman’s Health!

  11. Sysy
    Sysy April 23, 2012 at 2:39 pm | | Reply

    Thanks for this article, Amy. I agree with your concerns and think this is a good example of media sensationalism that can really be damaging. It’s a shame they keep doing this.

  12. Melitta
    Melitta April 23, 2012 at 3:16 pm | | Reply

    Here is the original TuDiabetes posting from the author of this Women’s Health article:

    Hello to the TuDiabetes community.

    My name is Su and I am a writer for a National women’s magazine. I am writing a story about how women of all shapes and sizes, even those who are thin, can develop type 2 diabetes. Hopefully this story can help raise awareness about diabetes among people who consider themselves not at risk. I am looking for women to profile in my piece, particularly young women in their twenties, thirties or early forties who are not overweight and have been diagnosed with Type 2 or prediabetes. I may also include one Lada woman. Participating would involve a couple interviews. No photos are necessary. If interested, please contact me at sushma.subramanian@gmail.com.

    Here is part of my reply to her:

    Misdiagnosis and the parading of wrong information in the media only makes life worse for women who actually deserve a correct diagnosis and correct treatment. Instead, I suggest that you ask for stories from women who have been misdiagnosed as having Type 2 when they really have MODY or Type 1. By shining a light on this terrible problem, you could do a lot of good.

  13. Hannah McD
    Hannah McD April 24, 2012 at 7:58 am | | Reply

    I got this issue of the magazine in the mail–how I am receiving issues of Women’s Health, I have no idea because I certainly did not subscribe, but that’s another story.

    While I found the article cagey at best, I did have to stop and give them a tiny amount of kudos for actually explaining what Type 1 is, and that it is different from Type 2 diabetes. With all the media garbage out there that never draws a distinction, it was one tiny refreshing piece to this article.

    The rest though? Iffy at its best.

  14. Kristie Rimmele
    Kristie Rimmele April 25, 2012 at 8:12 am | | Reply

    I am 112 lb, eat very healthy, and have type 2 diabetes. It makes me angry to see the way the media slants things looking for a hard hitting headline.

    Sometimes diabetes is just something someone is genetically proned to. I had gestational diabetes in both my pregnancies. It just wore my system out.

    My brother is young, in shape, and has diabetes also. So it is NOT true that only FAT, unhealthy eating people get diabetes. Health conscious thin people get it too.

  15. Lee Ann Thill
    Lee Ann Thill April 25, 2012 at 8:14 pm | | Reply

    I think the last statement can’t be over-emphasized enough. Women’s Health, with its diet and fitness advice and cover to cover images of atypical women’s bodies is just the sort of thing that women who have concerning preoccupations with weight, fitness, and dieting like to read. Giving them a pseudo reason to justify their preoccupations is truly a disservice, and for some women, could add fuel to already dangerous fire. It’s a shame journalistic integrity was completely disregarded in their pursuit of a “good” story. I’d love to see then respond to the criticism of this article… but I suspect that’s unlikely.

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