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3 Responses

  1. Merle Gleeson
    Merle Gleeson March 3, 2012 at 7:27 pm | | Reply

    My answer to the need for support!

    The Type I Diabetes Lounge
    http://www.type1diabeteslounge.org

    The mission of Type 1 Diabetes Lounge is to enhance the lives of adults with Type 1 Diabetes by providing education, support, guidance, and inspiration.

    Fourteen years ago I founded the first support group in suburban Chicago specific to adults with t1d. We offer monthly educational and supportive programs provided by medical and technical professionals with topics such as research updates, cutting-edge technologies, management techniques, and lifestyle issues. Members find supportive peer connections in which to exchange information, feelings, ideas and creative problem solving. Additional educational conferences by renowned speakers teach skills to manage one’s diabetes while maintaining their quality of life.

    Founded as a personal endeavor in 1998, we are a unique nonprofit group serving the Chicagoland area.

    If anyone is interested in starting a local support group in their community I am happy to counsel!

  2. Mary Fairweather Dexter
    Mary Fairweather Dexter March 6, 2012 at 12:56 pm | | Reply

    I was glad to see this issue discussed. The DOC is a wonderful support system.

    However, her primary question is still unanswered: How does one learn to ask and receive support? If one grows up in a nurturing, supportive environment, asking for a bit more support comes easily. But what if during one’s formative years, a person’s requests for support have been met by neglect, or flat refusals, or belittling? Especially with an oft-invisible disease which the general public believes is somehow the patient’s fault.

    If one has learned all to well not to ask for support , how does one go about learning to do so now that one is even more vulnerable? How does one go about finding the courage?

    1. Robin
      Robin March 10, 2012 at 10:09 am | | Reply

      Mary, those are good questions. It is easier for some people to ask for and accept support online, from strangers, than from friends and family. But while I’ve no doubt that developing a network of others who are also in my boat will be wonderful, I’ve found it’s also really helpful to get friends and family on board.

      My answer is to start slow, and select one or two people whom you trust, and move on from there. You may be disappointed by some of the responses – I was! – but you may also find a surprising ally, who does not blame you or shy away from the truth. I picked a friend who is caring and non-judgmental, and who doesn’t need me to be a rock. I don’t need to tell everyone I know about my fears or stumbles, but it helps to be able to tell someone.

      All the best to all of us!

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