5 Responses

  1. Bunnyfreak
    Bunnyfreak March 20, 2012 at 9:21 am | | Reply

    It is interesting to hear the decisions behind the stop diabettes campaign. As a type 2 diabetic I personally find some of the campaign frustrating. As someone struggling to find the right balance of diet, medicine, and exercise to control my diabettes and not effect my other chronic medical condition some of the comerical spots make me frightened and make me feel like I should just give up. I don’t think this is what they are shooting for.

  2. Tim
    Tim March 20, 2012 at 7:40 pm | | Reply

    As a type 1 diabetic, I thought the Stop Diabetes campaign was not strong enough. If people really understood how many people are developing a disease they didn’t have to that kills more people than AIDS and cancer combined, they would grab torches and storm the legislature for resources to combat it. I don’t think most people know that Type 1 has been increasing at an alarming rate (by about 4% a year for the last forty years). I think I can speak for all Type 1s when I say we don’t want anyone to develop any type of diabetes.This whole country, from patients to doctors to legislators needs to get serious, person by person about combating this disease.

  3. Melitta
    Melitta March 20, 2012 at 7:51 pm | | Reply

    Unfortunately, ADA has been the worst offender when it comes to acknowledging Type 1 adults. Maybe Larry Hausner should first clean up his own house? ADA’s website says that Type 1 diabetes primarily affects children and some young adults and represents 5% of the total diabetes population. Yet all of the ADA’s peer-reviewed scientific journals (for example, “Diabetes Care”) indicate that 10% of people diagnosed with Type 2 diabetes are antibody positive, have Type 1 diabetes, and are misdiagnosed. So how can Type 1 only be 5%? Then, regarding gestational diabetes, the ADA’s website says that have gestational diabetes increases a woman’s future risk of Type 2 diabetes. But the ADA’s peer-reviewed scientific journals say that 10% of Caucasian women with gestational diabetes have autoimmune gestational diabetes, or Type 1 diabetes “revealed” by pregnancy. ADA has published a position paper on Type 2 diabetes in children, even though Type 2 diabetes affects a significantly smaller number of children than the number of adults who acquire Type 1 diabetes. Why no position paper for adult-onset Type 1 diabetes, when misdiagnosis represents such a catastrophe? Please, if you want to advocate for adults with Type 1 diabetes, first correct the misinformation that ADA spreads.

  4. Leighann of D-Mom Blog
    Leighann of D-Mom Blog March 21, 2012 at 7:33 am | | Reply

    As the parent of a child with type 1 diabetes, the “Stop Diabetes” campaign misses the mark. There was nothing we could have done to prevent the onset of diabetes in our then three-year-old. The ADA’s campaign does nothing to keep my child (or any other child) from getting it.

    If the are trying to “stop diabetes” are they spending large resources on research to prevent the onset of T1 diabetes in children?

    If they are trying to “stop diabetes” what message does that give my seven-year-old who already has it? That she’s deficient because she does? How can she be an advocate for other T1′s utilizing that slogan when it doesn’t speak to her or her situation?

    I also feel it’s a cop out to say that we can form the sentence that follows on our own. (Not that that’s being said here, but I’ve heard it said many times before.) For instance “Stop diabetes from giving my child long-term complications.”

    Don’t get me wrong, I am a big supporter of the ADA because they run our local diabetes camp. But as a d-parent, I appears that the national ADA spends 95% of their effort as a whole on programs, information, and campaigns about type 2 diabetes. The ADA needs to put the message out to the T1 community that they do advocacy work for kids with diabetes and have information about 504 plans for school, etc. available to parents. Their current “branding” turns many parents off rather than reaching them.

    Just my two cents. Like I said, I am a supporter of our local ADA chapter, but the “Stop Diabetes” campaign does nothing for me.

    1. Sarah
      Sarah March 21, 2012 at 8:36 am | | Reply

      Leighann,

      I am a 27 year old with type 1 diabetes. I was diagnosed when i was 4. The ADA has been in my life ever since then. I have to respectfully disagree with you, although I totally understand your thought process.

      “If the are trying to “stop diabetes” are they spending large resources on research to prevent the onset of T1 diabetes in children?”

      Not sure if you were asking “why” or “are they” but to that ..yes…take a look at their research information on the website…i get updates constantly about the news things happening for T1 and T2 diabetes.

      For me, Stop Diabetes doesnt just mean stopping the diagnosis of it (but it does include that) it means stopping it from running my life. stopping it from stopping me. it means stopping it YES from the long term complications and the short term fear of hypo and hyperglycemia. Diabetes is running fast and taking out people on its way. In my experience, parents of a child with type 1 actually have more of a problem dealing with it than the actual child does. yes, its scary, but its something we deal with ….im 27 and working hard to control by diabetes…its a fight. and thats why im proud to be in the fight to stop diabetes.

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