62 Responses

  1. Anne Findlay
    Anne Findlay June 15, 2011 at 3:23 pm | | Reply

    too bad. I just read a study showing how it was very helpful for people with t1 diabetes, too. maybe that is old news to you all.

  2. Lauren
    Lauren June 16, 2011 at 3:20 pm | | Reply

    I’m a T1 and I use it. I find if I take too much I do feel stomach pain, but I just keep it in really small doses and I see MAJOR improvement in my care.

    1. ginabeth
      ginabeth January 12, 2012 at 9:33 am | | Reply

      What insurance do you have? I have Humana and they will not cover Victoza for Type 1 because it’s not yet approved by the FDA for Type 1 use. I was able to use it for about 3 months via samples and then purchased one Rx ($483.00) and it was a God send for my AIC and my weight. Really made a difference. Since I can’t afford it and don’t qualify for any Rx Assistance, I had to quit. So sad. Again, what insurance provider do you use? Thanks in advance for your response

      1. David Franks
        David Franks August 4, 2012 at 7:09 pm | | Reply

        Hi, I appologize for responding so late with a reply for what insurance I use that does cover the use of Victoza with a special request slip from my doctor. The name of the company is called “Silverscript”. They have been my Medicare Part D> provider for over 4 years and I am very happy with their services, I hope this helps, I believe my doctor does have to submit a “medical neccessity” form to them each year but have been using Victoza for about 3 years this way and find no complications.

      2. Brenda
        Brenda February 22, 2013 at 7:55 am | | Reply

        Hi! I posted a comment on here a few weeks ago about my experiences with this medicine. I ended up having to stop taking it. My doctor gave me a one month sample of this medicine plus called in a Rx. Unfortunetly, I picked up the Rx before realizing I cannot take this medicine. My insurance covered it. I only had to pay a $25 copay and got 3 pens. You say you like this medicine but had to stop taking it due to cost. I wanted you to know that these 3 pens are unopened and in an unopened box in my fridge. I hate to just throw them away when it could help someone. If you are interested, I would be more than happy to send these to you in the mail. I can even place it in a special “cooler”. Just let me know. I’m not asking for any money/not even for shipping. I’m just trying to be nice because I can’t fathom the thought of throwing it away. I live in Alabama. Message me if you are interested and I will give you my email address and we can connect.

        1. janet antrim
          janet antrim February 28, 2013 at 2:12 pm |

          i would love to pay shipping call 360 868 2090

        2. melinda grayson
          melinda grayson April 23, 2014 at 8:01 am |

          would like to know if you still have them.just started mine today

  3. Natalie Sera
    Natalie Sera June 16, 2011 at 4:13 pm | | Reply

    When I read about the side-effects of all these “miracle” type 2 drugs, it makes my love/hate relationship with insulin slant a little more in the “love” direction!

  4. MED
    MED July 1, 2011 at 5:15 am | | Reply

    Its about time the FDA said something! If you read the blog “The Jury’s Still Out” on this site it is really scary how many doctors are automatically increasing patient doses to the maximum within three short weeks. There is no monitoring in many cases! I contacted the company about the .6 lowest dose and they said it is an ineffective dose and just used to get the body started on a new med. .6 works for many of us – me included!!. I don’t plan on increasing doses unless I absolutely have to. There are no follow up studies on people going off Victoza either. And those in the clinical trials were only on it for 6 months and 1 year. This info is straight from the company in writing to me. Its a great drug and does do wonders – but it seems the company cares more for the money than for the long term effects and health of the people using the drug! I for one would love to see more ongoing studies and analysis by the manufacturer – there are so many of us on Victoza now that they have their pick of participants and the opportunity for some fantastic studies.

    1. Dale
      Dale November 26, 2011 at 9:17 am | | Reply

      I wonder if the drug company has been counselled by their LAWYERS to not undermine the prescribing physician’s role in prescribing their drugs. The drug companies are somewhat (if not completely) bound by the FDA licensing as far as dosing goes.
      I’m certain they make more money if people use more of their product, but the person writing you from the drug company is not your doctor. They need to give out the same advice as the literature that ships with the drug. Let’s be fair. If the drug companies are killing people with their drug, can that be good for their bottom line?
      I’m not attacking you. In fact I agree with you! A low does of Victoza can be effective– it is for me too. I’m advocating:

      1) Talk to your doctor
      2) Dose, test, change dose, test
      3) Talk to your doctor and tell him/her what has been working for you
      4) Post your results in forums like this one.

      Power to the Patient! We have the control ultimately and diabetics can do their own testing at home. WIN WIN!
      My doctor agrees with me completely on this.

      Bottom line: My doctor, the FDA or the drug company doesn’t live in my skin. I know what works for me and I tell my doctor about it all the time. It adds to his experience and he uses that in his practice. Let’s not run to the FDA for everything.

  5. Diane
    Diane July 8, 2011 at 6:47 am | | Reply

    I called the Victoza drug manufacturer to see if Victoza was gluten free and they could not verify that is free of gluten. I was shocked to find out that the FDA approves a drug without knowing what ingredients are contained in the drug. If you are gluten sensitive or allergic, this additive can cause severe illness and side effects. If gluten is contained in the drug, it can be the cause of many of the unpleasant side effects individuals are experiencing.

  6. Carole
    Carole July 14, 2011 at 6:59 am | | Reply

    I have been on Victoza since December 2010..I have had 2 episodes of severe vomiting and upper abdominal pain with diarrhea.. I have never vomited so much in my life at one time.. My amylase is elevated some but my lipase is not (2 blood work values that are signs of pancreatitis). I have just been ill.. The gastroenterologist is very much concerned that the symptoms are from the Victoza..I am having test after test to determine the root cause and to make sure it is the Victoza.. I have called my endocrinologist and they are taking me off of the Victoza.. I have been dehydrated twice and had to receive IV fluids. There is no signs of infection or food poisoning.. The symptoms do not coincide with a virus.. People need to be cautious.. If you have had any previous issues with my stomach or intestines please let the md know before you are prescribed this drug…

  7. Paul
    Paul July 23, 2011 at 8:56 am | | Reply

    My endo started me off on Victoza in May 2011 @ .06.June @ 1.2. July 6th he increased it to 1.8. I get the feeling that I am being used by this particular endo as a guinea pig, I.e.,he is getting paid by the pharmacy to do research on human subjects. My original ( he is a government panel) who I have great respect for and confidence in sent me to this present endo because he is supposed to be the authority in the area on Byetta. I stopped going to him because I did not like his attitude and manner and I was getting too many blood tests for him and my orig endo combined. When my orig endo asked me to go back to him, I I said in May he switched me to Victoza and I have exhibited the side effects on the literature: overall devilitated feeling,extreme nausea,raspy throat, difficulty swallowing sometimes. My sugar levels have been somewhat
    Contained but is this quality of life worth it?

  8. Jan
    Jan August 14, 2011 at 9:35 am | | Reply

    My internist started me on Victoza the end of November 2010. I had nausea the first week. My A1C went from 8.4 to 6.8 in 6 weeks. I was taking it in conjunction with Janumet. The lowest my A1C has been is 6.1 since then. My Dr. switched me a couple of months ago to Metformin instead of Janumet. I was hoping that my A1C would be lower than 6 by now. I haven’t had any of the adverse symptoms so far, other than the nausea the first week.

  9. Sharon
    Sharon August 15, 2011 at 9:57 am | | Reply

    I started on Victoza at the lowest dose and had bad nausea. By the third week, I started vomiting so hard I threw up blood and had very sore ribs and muscles for two days. I vomited for hours, plus had diarrhea too. My doctor said to throw this away! It did lower my blood sugar, but I can’t live like that.

  10. Drew
    Drew September 14, 2011 at 10:17 am | | Reply

    Wow these posts need to be balanced out. I had a fantastic endo who started me on Victoza about six months ago. I had all the start up symptoms but thay have mostly gone away…I say mostly because i have to drink more water and increase fiber intake to take care of the constipation. I have slowly lost 28 lbs and my A1c which hovered at 6.4 tp 6.6 has dropped to 5.4. I am happy with the treatment and focused on a goal loss of 50 lbs for now. This drug has been very helpful. I tried the Byetta and could not get over being sick all the time, but that’s my expererience thus far.

  11. Brad
    Brad October 4, 2011 at 1:43 pm | | Reply

    Victoza is wildly expensive. I have been on Victoza using the patient assistance plan up until this summer when I enrolled in the pre-existing condition government insurance program. Enrollment automatically disqualifies me for any assistance and now I have to pay a $750 deductible plus $200 for a 9 month supply. If I buy it now, I have to pay the same $950 again in January and I just can’t afford it so I’m having to switch to Byetta. I never experienced any bad side effects from Victoza and I hope the same will be true with Byetta.

    1. David Franks
      David Franks August 4, 2012 at 7:57 pm | | Reply

      If you have Medicare part D I would try using “Silverscript” as your insurance company. With a “medical neccessity note written from your doctor each year, they will only charge you $6.50 per month for 3 pen needles including the needles. At least that’s what I;m paying Good luck.

  12. Cathy
    Cathy October 18, 2011 at 10:27 pm | | Reply

    I went on Victoza and my blood sugars were excellent, I lost weight and was doing great! Then all of a sudden I started having chest pains like a heart attack. Was taken to hospital by ambulance and admitted twice in a month. They couldn’t figure out the problem. Heart was ruled out. I suggested that it may be Victoza and was removed from it and put on Apridra. My chest pains went away (I’d been having them daily for 2-7 hr spurts). I haven’t had a pain since. This was 9 months ago. Victoza works well, but I’m convinced it caused my chest pains. They also ruled out gallbladder and everything else.

    1. Joan
      Joan October 22, 2014 at 3:53 pm | | Reply

      I’m new to victoza ( just started last week), I’ve been sick since my second shot. I was taking lantus with metforman. BG’s were low from the first shot, but, the victoza makes me very sick. On the upside I’ve lost 7lbs in a week, but can’t lift my head from the pillow. Stopping the victoza waiting to hear from the dr. I don’t think she liked me telling her I was stopping the victoza on my own.

  13. Rozmin
    Rozmin October 18, 2011 at 11:17 pm | | Reply

    I just started Victoza. Plus I am taking 4 Metformin 2000 plus Novo mix 30/70. Is it ok to mix the insulin?

  14. Dale
    Dale November 26, 2011 at 8:42 am | | Reply

    I have been taking Victoza just before bed for a week now. I am ready to step up my dose to 1.2. I have only had minor nausea and a little stomach pain related to bowl movement need – things work a little different on Victoza. I have added 2 prunes in the AM and 4 in the evening and everything is “working out” just fine now. My nausea is gone by this point and I have lost 7 pounds!
    I am planning to go up just one “click” per day above .6 and see how it goes. If my appetite control is good, I’m staying at whatever that dose might be. If it’s 1.2, fine. If it’s one click above .6 that’s fine too. The goal is to have maximum benefit on the lowest dose needed. That’s always the best course, eh? Don’t just take the Doctor’s word on dosing. We have complete control with this delivery method. It’s interesting that the pen has such fine increments instead of merely .6, 1.2, 1.8 only. Test, dose change, test, dose change, test.
    I am only borderline diabetic. My sugars don’t come down after meals quickly enough, but they do go down. My Doctor said if I lost 25 pounds my levels would be fine. I need to lose 100 pounds. I’m hoping Victoza will the key for me.
    So mark me down as a successful Victoza user. I’ll keep posting as time goes by. It can’t be a bad drug for everyone can it?
    I am not a doctor. I don’t play one on TV. I do watch TV and some doctor shows as well. So ASK YOUR DOCTOR. That’s my advice!

  15. Dale
    Dale January 12, 2012 at 11:24 am | | Reply

    I have United Healthcare insurance and my copay is $25 for 3 pens and 100 needles were free.

    Update: I am up to 1.8 with no side effects beside I am eating 4-6 prunes morning and night. Appetite is fully under control and I have lost 30 pounds so far. I gained a little over Christmas due to junk food intake and being sick and no exercise. I’m just walking the dog 20-30 minutes or 45-60 minutes on the eliptical machine just 3-4 times per week.
    No nausea if I eat proper size meals. This is really a dream come true for me.

    A friend started Byetta (spelling?) and had to quit after 4 days due to severe nausea and dead tired fatigue.

  16. keely
    keely January 26, 2012 at 11:17 pm | | Reply

    I have been on victoza for 4 months now love the drug but to expensive my insurance only cover half so for 10 days or 1 pen its 57 dollars I don’t. Qualify for assistants from the company because I make 1k more a year then their limit and I was getting sponsed by my pharmacist. Intelligence a week ago they just ran out so I am forced to stop taking it the drug companies need to realize how much they are forcing their buyers into making hard decisions either pay your morgate or buy the drugs you need to stay alive

  17. Felix
    Felix February 5, 2012 at 5:54 pm | | Reply

    Thanks everyone for their comments. I hope everyone continues to post so we can share experiences. I just took my first shot and am sitting here in dread of experiencing the nausea and vomiting mentioned. Also the possibility of pain and issues with the pancreas. My doc is considered oneof the best in the area so I am putting my faith in his knowledge. I was previously taking 1000 mg Metformin, 10 mg Glipizide, 100 mg Januvia. Wasnt doing the job but my diet was crap. A prior doc had me drop Januvia and start Lantus. Lantus was great, was close to 38 units daily, but I put on 15 lbs fast! This new docs partner (missed my appt with new doc) moved me off Lantus, added Glipizide. Bllod sugars werent great although had some good numbers. Finally met new doc, took me off Januvia, added Victoza, doubled Metformin to 1000 mg twice daily. I didnt start Victoza until now, noticed that sugars in last two tests were decent (!) I assume with doubled Metformin.

    Doc did explain both Januvia and Glipizide *add* weight but Victoza may lead to weight loss. So I am hoping this works out. Plan is to reach optimal Victoza dose and dropping Glipizide and remain on Metformin and Victoza. Will also sign in often and share my experiences. THANKS EVERYONE WHO MENTIONED PRUNES. My fiber intake has gone up from before with the typical beneficial effects but some slight constipation. Will be getting some prunes toute suite. THANKS ALL.

  18. Tricia
    Tricia February 20, 2012 at 11:32 am | | Reply

    Having read all the comments, I’m rather confused. I have been on Victoza for 10months I also take Humalog 25mix Insulin and 1000mg Metformin twice daily. Although I had
    a wt loss initially I have now began to gain wt, prob due to diet
    I am concerned about the side effects and will discuss them with my diabetic doc at my next visit in 2 wks.I have had a chest infection since the beginning of Oct. three courses of antibiotics have helped but have been left with a cough. Any chance it could be the Victoza? Thanks for all comments.

    1. kathy
      kathy March 5, 2012 at 10:13 pm | | Reply

      i have been on victoza for over six months, it completely got me off of lantus and the meal insulin. i was at 80 units of lantus and 50 units of meal insulin. i also lost 35 lbs slowly after starting victoza. little nausea in beginning, not anymore. some constipation, but regular tea helps and fiber. i have exercised and eaten healthy for years, got diabetes from my dad and having babies – gestational on my third child. victoza is a miracle drug – getting me off of insulin and letting my body produce its own, letting me lose weight, which insulin pretty much stops you from doing no matter what you do to your diet or exercise.

      1. Natalie ._c-
        Natalie ._c- March 6, 2012 at 3:24 pm | | Reply

        Hi, Kathy,
        It has been my observation that it’s NOT insulin that prevents you from losing weight, it’s STILL your diet. The diets that you see so commonly advertised are not very effective for weight loss, because they tell you to fill up on fruits and vegetables and whole grains, and those things DON’T make you full and DON’T satisfy your hunger. They just stretch your stomach, and in 2 hours, your stomach feels empty and you want more to eat. And fruits and grains are full of carbohydrates, which in themselves have no nutritional value except to put on fat. There ARE other nutrients in them, but nothing that can’t be gotten from low-carb vegetables and protein foods.

        I have been using insulin for 18 years, and have never been obese, but I WAS overweight, and didn’t lose it (although I didn’t gain, either) until I got serious about limiting carbs. And then the weight slowly melted off with no other particular effort. Admittedly, I didn’t need to lose all that much, but still, I was using insulin, keeping good control, and losing weight. So I think that it’s important for those with carb-sensitive metabolisms to concentrate on limiting carbs, not on whether they need insulin or not. Only you and your doc can decide whether you need insulin or not, but don’t be scared of it because of weight gain — insulin is NOT the cause.

        1. kathy
          kathy March 6, 2012 at 9:01 pm |

          with all due respect, the side effects listed with insulin is weight gain, and my experience is that insulin prevents weight loss and causes weight gain. i have lots of stats over 17 yrs, and clearly consistent with what the drug companies state. only once being off of insulin was the weight to be lost. while you may be different, that does not mean that i am incorrect. i have exercised and eaten healthy for years, clear less calories and carbs and more exercise, yet no weight loss, until the decrease of insulin. i have been under excellent medical care. i was only able to come off of insulin after using victoza.

  19. Felix
    Felix February 20, 2012 at 11:57 am | | Reply

    Hi I am back with more comments. Am starting my third week and at 1.8. I am so far pretty much over the initial nausea. Slight constipation but have started adding prunes to morning cereal. Have found myself unable to eat as much meat as i used to, not a bad thing. Interestingly am finding myself craving seafood and fruits more often than in the past. I have been waking up to blood sugars of around 120 very comsistently even at the initial supposedly ineffective dose as noted by another comment. Makes total sense to stay at lowest effective dose. Miving to 1.2 did not make a more noticeable drop. Will post again after two weeks and will speak to doc about ramping back to 1.2 if higher dose doesnt add any observable benefit.

  20. Kymm Type2
    Kymm Type2 March 19, 2012 at 8:53 am | | Reply

    I just started taking Victoza on Friday (3/16). Have not had issues with nausea, a few headaches… but today, I noticed when I swallow, my throat feels a bit swollen. Have noticed a VAST IMPROVEMENT in my BS #’s, and it’s only been 3 days on the drug. Will see if this throat issue improves. I am on the lowest does .06 and take Amaryl in the PM.

  21. Bas
    Bas April 7, 2012 at 8:21 pm | | Reply

    I am a type 2. I have been on 1.8 dose on Victoza for 18 months together with Metphormin 1000mg twice a day and Glimaperide 2.5 mg twice a day. My A1C has been at 6.1 over last two years. Prior to Victoza I was on Byetta. Initially after moving to Victoza I lost weight and my hunger was suppressed. About a year ago my endo stopped me from taking Gliburide and started me on Glimaperide. Since then I stated gaining weight. I exercise as before but I get cravings and have gained all the weight I lost and then some. My diet is the same. Not sure if my metabolic rate has changed. Any one else with similar experience?

  22. Debbie
    Debbie May 15, 2012 at 9:42 am | | Reply

    I added Victosa to my drug regimen (metformin and actos)almost 2 years ago. I started with the lowest dosage and increased over a few months. Everytime I increased the dosage I vomited that night. I found that there were some foods I could not eat at night as long as I was taken this drug, like peanuts and salads. I vomited for 3 months as I increased the dosage and lost 10 pounds. Since then I have gained all the weight back and added another 15 pounds to it. I still curbs my appetite, so I eat alot less, but it does not matter I am still gaining weight. I have told my doctor about this, he still tells me to eat less and exercise more. If I eat any less I would be fasting. I don’t know what to do about this. I am thinking about not taking the victosa, but my blood sugar has dropped so much I would be stupid to do so. Anyone have any suggestions? Also I was on Byetta at first and it did work for the first year than stopped working for me.

  23. Kathy
    Kathy May 15, 2012 at 3:49 pm | | Reply

    Try going off of actos, which is in the group especially for women that causes wt gain. It is also not good for the heart. I like glynase, safe for a long time n no wt gain. I use it w meteor in n victoza

  24. Jennie
    Jennie June 4, 2012 at 3:58 pm | | Reply

    Been on this for awhile. 1.8 makes me feel ill and makes me actually eat more cause I feel sick on that dose. I take this for pcos. My endo is Amazing and told me those studies w the mice and rats were getting high high doses. Even if one rat got cancer they are going to make a big deal about it. For instance that 17 month study on humans, how many humans?? A bunch!!! Everything can kill you I mean really. I could go out to eat and get mad cow and die. People just love negativity!

  25. Gutz
    Gutz June 11, 2012 at 7:30 pm | | Reply

    Really? All of the positive feeback for losing weight? Does short term weight loss success outweight the possibility of cancer or pancreas damage in the long run? I don’t follow that logic!

    1. Jennie
      Jennie June 19, 2012 at 8:49 pm | | Reply

      I actually feel much much better while I’m taking it.

  26. marina
    marina June 19, 2012 at 12:51 pm | | Reply

    Reading all the posting has been interesting. I have been on Victoza 1.8 since January 2012. I did not experience any side effects, or any of the weight loss (darn). I have always had constipation issues as I have had IBS-C. But, I also have Multiple Sclerosis ( dx’d in 03) following an exacerbation where my neurologist ordered IV steroids, I was found to have developed osteonecrosis in both hip joints, about a year later. But I am overweight, at least 100 lbs. So I opted to undergo a bariatric surgery called vertical sleeve gastrectomy. essentially this reduced your stomach to the size of a banana, restricting intake. my small and large intestine are not modified as in a bypass. Sadly, i have failed this procedure and not lost weight since Jan. 09. Am I Frustrated? YES
    supposed to see the Endo today, I can’t figure this out., Maybe it’s ALL the meds combined that are effecting me.
    ANYONE with advise????

  27. Jacqueline Jones
    Jacqueline Jones July 1, 2012 at 6:03 am | | Reply

    I’ve been taking Victoza for just two weeks. I started on the lowest dose. I had some very minor nausea. After the first dose I got majorly tired and had to take a nap. After that, I was fine. I am waking up during the night with stomach cramps. It caused constipation. I am going to take some Miralax and see if that helps. I increased my dosage yesterday as the doctor prescribed and got so tired I had to lay down and nap. I hope that doesn’t happen again today, but I woke up with those darn stomach cramps again during the early morning hours. Does anyone have any suggestions as to when is the best time to take your Victoza – - morning or evening? Any suggestions for the stomach cramps?

  28. susie smith
    susie smith July 2, 2012 at 9:02 pm | | Reply

    i take victoza at night. if you drink tea, helos with constipation, i also eat fruits and veggies. what really helped though was accupuncture, seriously. it made things normal again and more regular. you can do cheaper by gong to an accupuncture school. victoza got me off of insulin, enabling me to finally lose weight, as insulin stops that.

  29. Racermom
    Racermom July 4, 2012 at 10:29 pm | | Reply

    I have been on a low dose of Victoza for 10 days. This drug is not for me. I have hives on my face & neck. My lips are swollen. I feel like I am getting a bladder infection AND a cold. I will call my doctor tomorrow. I am NOT taking another dose of this stuff.

  30. dinycat
    dinycat July 21, 2012 at 7:58 pm | | Reply

    I have had none of the side effects listed above, except for a bit of constipation. I haven’t experienced any weight loss either. BUT, my numbers are much better and I’m able to re-introduce some foods into my diet that I haven’t been able to eat for some time. I love that!

  31. Susan
    Susan July 28, 2012 at 8:03 pm | | Reply

    I hae been on Victoza two months for type 2, as time went on I started to get injection site hives after about 24 hours. They itch like crazy. Did lose about 14# which was huge! But doc took me off and back on glimipiride. Hope weight gain doesn’t start altho I am already experiencing the change in hunger pattern and now am thinking of food as where with Victoza I could not care any less.

  32. Lynn f
    Lynn f August 16, 2012 at 8:54 am | | Reply

    I am due to start taking this tomorrow, the nurse is coming to show me how to us it, I am dread g it after reading tne comments about cancer ad most of my family have died from cancer. Will keep you informed

    1. Maggie Kelly
      Maggie Kelly April 12, 2014 at 9:05 am | | Reply

      No one can force you to start this drug. It sounded good to me until I read the side effects. I had already purchased the drug, but no way am I taking the chance of any of these scary effects. It’s your body, you are in control not anyone else. I really do not have a good feeling about taking it. So,I’m not! It’s that easy.

  33. Sheri
    Sheri August 31, 2012 at 7:37 am | | Reply

    I have been on Victoza for a month. Yes, it has decreased my appettite. I was told this would not effect your heart at all (I am on beta-blockers for tachycardia), and it seems nothing will slow my heart rate down. I have had a few episodes of waking up in the middle of the night with my heart out of control. I have also had severe stomach pain to the point they did an endoscopy and found nothing and when they held the Victoza it went away. I will tell you now that this drug definitely has an effect on the heart and the stomach.

  34. Joy
    Joy September 21, 2012 at 8:27 am | | Reply

    I have been on victoza for 2 years now. I do have occasional heartburn, tummy problems and it took till recently to get up to 1.8 dosage. I know that sounds like a long time but I have a sensitive stomach and my a1c was always good since the beginning. I am fortunate to have a Doctor who listins to me and allowed me to take my time with the dosage increase. I also had to change from taking it in the am to the pm at first, sleeping thru the side effects, that being said it’s best to take it in the am hours for full effect!

  35. Sharon
    Sharon October 20, 2012 at 2:43 pm | | Reply

    I have been on Victoza at 1.8 for a year now and initially I lost 25 lbs. My counts and AiC on it went down and I felt much better. Also take 1000mg. Metformin per day. About 2 months ago, doing nothing different than I have been, my counts stayed good but I started gaining weight back rapidly, like 7 lbs. in a 2 month time. I’m glad to know about the prine thing and constipation, I have become constipated a lot in the last few months. So I went to the endo for my visit and prior to even weighing me, he has a wacky heart test done that I never heard of before….then he weighs me and tells me that since I am gaining weight and he wants me to be “happy” he is prescribing something for “energy”. I figured it was a vitamin supplement, but when I looked the drug up online, it’s meant to keep me awake and speed up my metabolism. My adult kids told me its a street drug…ha anyone else had this happen to them with an endo? Is this guy crazy? Or is this routine treatment after a year on Victoza? I didn’t get the script filled. Kinda scared to take it.

  36. Judy
    Judy November 25, 2012 at 7:02 pm | | Reply

    I started Victoza and tried to work through the stomach cramps, nausea, tiredness, vomitting, diarrhea, heart palpatations, and just generally feeling horrible. It did cut my appetite, so much that even the smell of food or the mention of food made me sick. My sugars were great but zero quality of life. I stopped it 2 days ago and finally feeling better. The thought of losing weight is not worth the side effects of this drug, including pancreatitis and thyroid cancer. I’ll never try this again! People and doctors should really think twice before ever taking and prescribing this drug. It’s scary!

    JUNE WINDSOR January 3, 2013 at 7:49 am | | Reply

    Hi everyone,yes i started on victoza in aug 2011, along with two 15ml injections of nova mix. i lost two stone in six months, i am 11 stone now,but the weight has stopped. wondered about the 1.8,doctor said i couldnt go up any to a higher dose,work out he told me,prunes are the best for constipation.Im going to start swimming in the hope of getting the weight down a further stone,i would like to use,but the 2 stone loss is fabulous, I was very sick at first for three weeks,had to take time of work,but now im well,sugars are the best ever in ten years i have had type 2.i will carry on with victoza and novo mix.also get the swimming going.otherwise the weight will come back on.keep going every one,June.

  38. carmen
    carmen January 17, 2013 at 7:10 pm | | Reply

    I am with you. I will rather eat leaves of lettuce and jello instead of going through this nausea and being sick.

  39. Brenda
    Brenda February 9, 2013 at 7:11 pm | | Reply

    I do not have diabetes, only pre-diabetes (insulin resistence) and I’m on 1000 mg of Metformin. My doctor put me on Victoza 3 weeks ago because she felt it would help me lose weight and help my AICI levels get away from pre-diabetes. The first week I was .6, the second week I went to 1.2 and the third week I went to 1.8, as I was told to do. In that 3rd week, I had 3 episodes of SEVERE upper stomach pain. And when I say severe, I mean it felt like my upper stomach was on fire. It woke me up in the middle of the night and I had to get up and “sleep” in the recliner. Each episode increased and got worse. The 3rd one started having chills and fever. I’ve also had diarrhea. The stomach pain was so severe that after it was over, I was sore for two days after. I contacted my doctor but she didn’t say anything only to come in for an appointment but I can’t get in until next week so I stopped taking the Victoza on my own because of the warnings of the stomach pain/pancreatitis. After reading all of your comments, I realize I should not have gone up to 1.8 so quickly but it was what my doctor told me to do. I agree that doctors are passing out this drug to commonly with very little oversight. In 3 weeks I did lose 7lbs but it is NOT worth it. I was not hungry and nothing sounded good and I was terrified to eat anything because I was afraid it would start my stomach pain again. I was given a free one month sample plus a Rx and I wish more than anything I did not have the Rx filled because now I have 3 pens in the fridge and tons of needles that I will never use because I am NOT going back on that medicine. I also have an appointment with a gastroenterologist to make sure I don’t have pancreatitis or any other serious damage. BTW, if anyone wants these UNOPENED pens and UNOPENED needles, please leave me a message.

  40. PChavez
    PChavez February 21, 2013 at 12:53 pm | | Reply

    this drug made my husbands pancreas drop his levels in 2 hours on his potassium to fatal levels and i had to perform
    CPR, The drug company said they had to had 5% fatality to put that on the pamphlet. I hate this drug. if i wasnt right next to my husband he would not be here

    1. Debbie
      Debbie April 18, 2013 at 11:40 am | | Reply

      I will take the left over Victoza if you haven’t sent it out yet. I will be happy to pay for shipping as well.


  41. Kris
    Kris April 1, 2013 at 8:10 pm | | Reply

    I started Victoza a month and a half ago to treat Type 2. My A1c was previously over 9 while taking metformin and (occasionally) glyburide. Started out at 0.6 dosage and went up to 1.2 after three weeks. Had no problems the first month, very mild nausea and always felt full, but lost 13 pounds and it was worth the mild discomfort because my glucose levels were normal (first time in a long time).

    The past two or so weeks, after increasing to 1.2 dosage, have had increasingly bad stomach/abdominal cramping, not seemingly related to how much/what I ate, and what I think has been dehydration. Already drink a ton of water, and take a couple other medications that can mess with potassium levels. Called by endocrinologist and she said to stop taking the Victoza. From what I understand, it seems like 60-70% of the patients she starts on it have severe side effects relating to GI issues and can’t take it (or don’t want to) for more than a couple months. Darn it! Was working so well, but just not a choice for me for long-term.

  42. Mary Wells
    Mary Wells April 20, 2013 at 5:28 pm | | Reply

    I started Victoza 0.6 mg on Tuesday. Wednesday I had horrendous heartburn all day. It was minimal during the day on Thursday & Friday, but came back full force as soon as I went to bed. Today- Saturday, I’ve had it all day. I have a long history of GERD, which was well-controlled on Nexium & Ranitidine- both once/day. I am now taking them twice/day. I have lost 3 pounds already, but I don’t know if I can deal with this HB much longer. Is there anybody out there with GERD who can tell me if the HB went away in a week or two, like the nausea does? It makes it extremely difficult to sleep :(

  43. Lisa Kemmerer
    Lisa Kemmerer April 30, 2013 at 6:12 am | | Reply

    I was using victoza for a week and it landed me in the hospital with pancreatitis, gastroporesis, and bowel issues. Basically it shut down my entire digestive system. I have been out of the hospital now for 3 weeks and still on liquid/bratty diet and i am not that same person. This drug affected my muscles and mobility as well.

    I lost 10 pounds in 1 week however it was not worth the health issues i now have…..

  44. DC
    DC July 19, 2013 at 2:47 pm | | Reply

    I started Victoza the first of June and did not experience any side effects the first month on .6 and 1.2. But for the past two weeks I have experienced red spots at injection sites (they do not itch). I have only lost a few lbs–need to lose 50 but my BS levels have been consistently going down when I eat healthy. I also occasionally experience constipation and cramping but notice it is directly related to what I eat. My endo is on sabbatical until October and his nurse said some experience injection site reactions, but they should subside. The red spots do not bother me and they fade away after 4 or 5 days. I just don’t understand why the delay in the reaction at the injection sites–experienced nothing the first month. Has anyone been advised to stop Victosa because of the red spots? For now I am going to try a lower dose to see if that helps.

  45. Sharon
    Sharon May 22, 2014 at 12:45 pm | | Reply

    Began victoza two weeks ago. I experienced nausea the first day. However, so far I haven’t had any other side effects. My sugars have lowered and it controls my appitite. I am at the 1.2 dosage now. I have no intention of increasing it again. Just hope for good results and no problems. So far, so good…

  46. Jim
    Jim June 30, 2014 at 7:02 pm | | Reply

    I too am on Victoza and I will stay on it for the rest of my life. I do believe you owe your readers ALL the facts about this drug. Yes there are a few side affects and risks. This latest notice from the FDA is only a warning, mainly to cover their own rear ends. The one fact missing from all this debate is dosage. The lab mice in question were administered a dosage 8 times more powerful than the largest human dose of 1.8. That is nearly one full pen in a body 1/100th the size of a human.
    Readers should also note that in the 1970′s several studies were conducted on lab mice used as test subjects for various medicines. They concluded that lab mice given massive doses of almost every drug known will ALWAYS develop some form of cancer. It great that you look out for your readers, but please give them ALL the facts so that they may make an educated decision.

  47. Laurie
    Laurie August 8, 2014 at 7:09 am | | Reply

    I have been in victoza for 3 years- In a clinical trial for weight loss. The trial ends today. At first I was super tired! But no vomiting etc ( but did have constipation the first few months). I lost weight very quickly. I wasn’t hungry- always felt full and hardly ever finished any meals. I lost 22 lbs in 4months and kept it off for about a year. But then it slowly started creeping back and now I am 2 lbs heavier than when I started it! It worked well at first but then just seemed to stop . I’m nervous now that I will be totally off it… That ill gain even more ! While the initial weight loss was wonderful…. I’m glad the trial is over . Quick fixes dont really work.

  48. skol23
    skol23 October 13, 2014 at 10:16 am | | Reply

    I have been on Victoza for exactly one year now. For 11 months I was only able to take 5 clicks past 1.2 as the full dose would make me sicker than sick. However this last month we were able to slowly up the dosage to the full dose if 1.8 and I have so far been able to tolerate it. I have lost 33 pounds 28 of that in the last month since we have upped the dosage. My A1C HAS also dropped from an 8.2 to a 6.3!!!! I have ABSOLUTELY no appetite to the point I don’t even like cooking. If I eat 1000 calories a day that is alot. My morning out of bed glucose readings are now consistantly between 70-88. I originally was waking up with numbers in the 40′s but I am on Lantus before bed and we just adjusted that dosage down from 25 U to 10!!! I am still on metformin 1000mg twice a day. Before Victoza my numbers were never steady and always above 220 to 300. I was on Humalog, Lantus, and metformin. Now hopefully in another month or so I will also come off the lantus.

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