6 Responses

  1. sysy
    sysy April 13, 2011 at 7:34 am | | Reply

    I wrote about this too, today, I think it’s wonderful! However, I too worry that it will be soon forgotten since “charters” are these old sounding documents which read like a wish list to Santa Claus….

    However, like you pointed out, we can choose to back this, to “rally together” and to put this charter in the faces of our politicians, doctors, educational programs, etc, in hopes they’ll help raise the bar of how people with diabetes are treated. And we can certainly help raise the bar for treatment of those living in developing and 3rd world nations-they have a long way to go and need our help.

  2. Mike Hoskins
    Mike Hoskins April 13, 2011 at 8:29 am | | Reply

    This is great. Thank you for sharing it, Allison (and Amy)!

  3. Jamie Na
    Jamie Na April 13, 2011 at 10:37 am | | Reply

    I would like to echo – thank you for sharing.

    This seems like a “nice” document and a nice idea – but I think there is too much emphasis on the preventable aspect of diabetes, and the fact that there are more affordable options. Certainly this is true. It says:

    “Most diabetes can be prevented or delayed. Investment in prevention makes economic sense. Effective, low-cost treatments and care exist for diabetes that cannot be prevented. With early diagnosis and effective management, people with diabetes can live long, healthy and productive lives, and health systems can save on expensive complications such as kidney failure, blindness and amputations.”

    While this is true, at no point in the document does it express challenges to those who already have it – and the extraordinary costs that PWDs have to manage the disease. For example – even the test strips can cause financial hardship for people. This document doesn’t even address those who need the technology to have quality of life – ie pumps, cgms, supplies, etc.

    IMO, this document does not provide a compelling case for my governments to invest funds in the more expensive aspects – to find a cure, better and more affordable medications, or in the technologies that assist PWDs manage their diabetes.

  4. Jamie Na
    Jamie Na April 13, 2011 at 10:48 am | | Reply

    To tag onto my last comment, this document does look like a very good educational piece, especially if fleshed out with a little more info about the different D types.

  5. Melitta
    Melitta April 13, 2011 at 9:58 pm | | Reply

    The charter states that “People with diabetes have the right to early diagnosis…” Even more fundamental than that is “correct diagnosis.” Most people with adult-onset Type 1 diabetes are misdiagnosed as having Type 2 diabetes, a different disease altogether, which can have devastating impacts due to improper treatment. So I would say that the charter is simplistic and doesn’t even address the most fundamental aspect of appropriate care: correct diagnosis, correct treatment.

  6. tmana
    tmana April 24, 2011 at 2:53 pm | | Reply

    Let me point out that eleven years into the “new millenium” — ten, if we properly start the third millenium 01 Jan 2001 (since there was no “year zero”) — we are nowhere near “on track” for meeting the World Health Organization’s Millenium Development Goals, nor are they likely to be met within twice the planned timeframe. The issues? Overall costs, logistics, local politics, and resistance from multiple parties.

    There’s no reason to believe that a “Diabetes Bill of Rights” should be any different.

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