8 Responses

  1. reyna
    reyna March 18, 2011 at 7:23 am | | Reply

    Yep, In order for there to be change you have to speak up and do something. It is the only way to get things done. Thanks for the recap of the funding and agendas of JDRF and the ADA AND thanks for being there representing PWDs. As Joe’s mom I cannot express my gratitude adequately…with mere words.

  2. Bernard Farrell
    Bernard Farrell March 18, 2011 at 10:02 am | | Reply

    Allison, that for this thoughtful and informative summary. I think part of the challenge with JDRF’s mission is just the name of the organization itself. Almost no-one calls it Juvenile Diabetes these days because it’s no longer just a problem for children. JDRF needs to adapt for exactly the reasons you give. Plus we’re older and can now support their mission directly instead of just being poster kids to encourage donations.

    Thanks also for the reminder about the Promise to Remember Me Campaign. Must. Do. This.

  3. Wendy
    Wendy March 18, 2011 at 7:51 pm | | Reply

    This is a wonderful, informative post! Thanks!

    As a parent, I’m pleased to see the outreach to the adult T1 population and hope adult PWDs embrace these advocacy opportunites with the same vigor that has become commonplace among parents of CWDs.

  4. Hallie
    Hallie March 18, 2011 at 9:28 pm | | Reply

    Allison- it was wonderful meeting you in person last weekend! Don’t ever think that you, as an adult T1, are not important! Your experience, your opinion, your hopes and vision…. It’s so incredibly important to advocacy and the diabetes community! In fact, we had an experience tonight that made me think, “I wonder what the adult T1′s would tell me to do in this situation”. Not what other parents of CWD’s think…. I want to know what YOU think. Because your opinion matters. :) (i wont go into it here…) Thanks for getting involved!

  5. Maria
    Maria March 26, 2011 at 7:27 am | | Reply

    Thank you for sharing your experience in Washington, and the importance of getting involved as ambassadors of diabetes to educate and spread awareness. Those of you who have diabetes, and make the effort to take care of your self everyday are truly the role models to those who find this road more difficult. Whether you are aware of it, your lives educate people all of the time as to what it is like to live with diabetes. And those who are now in their 30s and above are a shining example of what living healthy with diabetes is all about!

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  8. john
    john November 7, 2011 at 12:35 pm | | Reply

    Its so refreshing that the FED wants to cut $ millions in funds for type 1 diabetes research but they can send $ billions to Africa for AIDS education and research… A SOCIAL DISEASE. I still have yet to hear a realistic explanantion that there aren’t more human clinical trials using islet cells (from adult stem cells) and encapsulation. To say they don’t exist is a farse. Not nearly enough is being done. What about LCT Global and their encapsulation? The pace of type 1 diabetes clinical trials is a farse and totally unacceptable.

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