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29 Responses

  1. Meri
    Meri January 7, 2011 at 6:43 am | | Reply

    The video was brilliant, as is Joanne. Her blog has brightened many gloomy days!

  2. Sysy
    Sysy January 7, 2011 at 7:40 am | | Reply

    Very wonderful video! Great post, Joanne, you have a way with words. I agree that the way we reply to people is important. I don’t like to be anything bitchy when someone gets it wrong, I instead prefer to be kind and find people are then more open to hear about how they’re wrong and in the end, we move our purpose further along. I hope to be associated with people like Joanne than those who make diabetics look bitter and mean.

  3. Heather Bernard
    Heather Bernard January 7, 2011 at 7:49 am | | Reply

    Thank you so much for a wonderful lift – I laughed and cried at the video and then I forwarded it – both to the people in my life who “get it” and to some people who don’t… I sort of wish I had the e-mail address of the woman who asked me in front of my son the day he got out of the hospital if he had “the kind of diabetes where you go blind and lose your feet”? but I’m not in touch with her anymore because although ignorance is curable stupid is forever.

    Bottom line – I feel a billion times less alone when I hear about the rest of you and I remember we’re walking through this together – thanks for being there.

    Heather – Mom to Sam who was diagnosed at 10 years old in 2008.

  4. Jen
    Jen January 7, 2011 at 8:27 am | | Reply

    So happy to see Joanne featured here! She is one of my favorite bloggers in the DOC!

    It is a huge challenge to try and sum up Type 1 and all is complexities in a few sentences- especially when someone makes a misinformed comment about it and you feel the need to make them understand how all encompassing it is. I think one of the most challenging things people say to me about my son is ” So, he looks great! Everything is under control/stable now?”

  5. Leighann of D-Mom Blog
    Leighann of D-Mom Blog January 7, 2011 at 8:32 am | | Reply

    Thank you Joanne! I always love reading your blog, both for your honesty and snark.

    The video was awesome and I have watched it many times and shown it to others. In fact I think I’ll watch it again right now :)

  6. reyna
    reyna January 7, 2011 at 8:37 am | | Reply

    Hands down the best D Video I have seen. Jo is a D-OC ROCK STAR!!! Love you and your blog Jo. Thanks for having Joanne over Amy!

    xoxo,

    The Portuguese Princess

  7. Stephanie
    Stephanie January 7, 2011 at 9:05 am | | Reply

    Joanne…..AWESOME post! I adore your writing and your video is so awesome. Even my husband is quoting it now…”poison…and cookies…made with poison.” :)

  8. colleen
    colleen January 7, 2011 at 10:08 am | | Reply

    Joanne,
    Great post and loved the video.

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  10. Lora
    Lora January 7, 2011 at 11:17 am | | Reply

    Joanne is so funny and that video is awesome. “Cookies made with poison” will forever be a classic :)

  11. Elizabeth
    Elizabeth January 7, 2011 at 12:33 pm | | Reply

    I’m going to give her the slight benefit of the doubt and assume she meant she knows what goes into CARING for diabetes… Though I can tell you that not nearly as much goes into it. Or maybe she HAS no children but it greatly attached to her cat, and she thinks it’s somehow “the same.”

    A few years ago, my cat was actually MISDIAGNOSED with diabetes! I wrote a post about it recently: http://type1at30.blogspot.com/2010/11/my-first-scare-with-diabetes.html The few days we thought that’s what was wrong was certainly tough emotionally, but NOTHING like if it were my own small child, of course!!! And, as I said, it wasn’t nearly as complicated as it is in humans. I was supposed to give her insulin when she ate (they recommended we feed her twice a day). No testing or anything, though I got a meter at the recommendation of some online diabetic pet owners, which was part of how we discovered she was misdiagnosed. Anyway, it turned out to be just an infection. Her glucose levels were slightly elevated (like 140?) as a result. If I’d known then what I know now, I NEVER would have accepted a diagnosis of diabetes based on that number plus lethargy, alone.

  12. Misty
    Misty January 7, 2011 at 1:06 pm | | Reply

    I really enjoyed reading this post from Joanne. I love her blog and the video still has me in stitches!

  13. Vanessa
    Vanessa January 7, 2011 at 3:16 pm | | Reply

    Great video. I will definitely remember some of those lines! Thanks!

  14. Melitta
    Melitta January 7, 2011 at 3:36 pm | | Reply

    Awesome! I will remember, “I just can’t eat cookies….with poison.”

  15. Sarah
    Sarah January 7, 2011 at 4:15 pm | | Reply

    Hilarious video, great post and as always Joanne you are one of the wonderful people that has helped me through this difficult first year since Isaac’s dx. Thank you for your continuous honesty and insight.

  16. Natalie Sera
    Natalie Sera January 7, 2011 at 4:45 pm | | Reply

    I’m really uplifted by your positive attitude! I think MOST of the comments PWDs take such offense to are really not intended to be offensive, but ARE ignorant. Sometimes, people are just trying to relate to you in the only way they know how. And of course, there is no one who has not made an insensitive remark at some time in their life.

    Keep on keeping on!

  17. Laura
    Laura January 7, 2011 at 5:01 pm | | Reply

    Joanne is a rock star and one of my personal heroes. She handles Elise’s diabetes like a champ and has taught me and my family so much about living with type 1 and caring for my T1 tot. Joanne was the 1st person to reach out to me when Nate was diagnosed and I am so happy to have her in my life.

    The video is the funniest thing I have ever seen — I try to watch it at least once a day for a good chuckle.

    Great post, Jo!

  18. Wendy
    Wendy January 7, 2011 at 7:05 pm | | Reply

    BRAVO, JO!!!!

    Great post. You’re AMAZING and I’m honored to share this journey with you, my friend! Keep up the great work, my friend!!!

  19. Shannon Davis
    Shannon Davis January 7, 2011 at 9:31 pm | | Reply

    Joanne!! so glad you were discovered for this and you are a perfect mom to spotlight! Thanks for all you do for us D Moms!! YOU ROCK

  20. Doug
    Doug January 8, 2011 at 7:33 am | | Reply

    At least the Cat lady was trying to relate. Her only experience with the disease was through her cat. Give her credit for trying, (even though it offended you) rather than the vast masses who cant relate and don’t try.

    I know you wont see the parallels, BUT in the same way that your experience with your daughter is MUCH different than the cat lady’s with her cat. Your experience with your Daughter is at least as different as mine with MY disease. Yet I wouldn’t belittle you for making analogies from your experience with your daughter….

  21. Cheryl Clarke
    Cheryl Clarke January 8, 2011 at 9:20 pm | | Reply

    There is an old saying “a little bit of knowledge is a dangerous thing”, I believe that this is the cause of many of the hurtful and thoughtless comments that people make. Thank you to Joanne and all the other D parents that are helping to educate these people. I have seen how difficult life can be when you have a child with diabetes and I am so proud of all you D parents because I know that it is not easy. Joanne and Fred, you are amazing parents and Elise is so blessed to have some many wonderful people to support her and her family. Keep up the great work Joanne.

  22. Joanne
    Joanne January 9, 2011 at 9:57 am | | Reply

    Doug – I have to respectfully disagree with you. As someone who is an animal lover and a mother, there is nothing that compares to the pain of having a child whose health is compromised. You have no idea what it is like to hold down a 12 month old so you can inflict pain on them, and you can’t even explain to them that it’s for their own good.

    I have lived through the grief of having to put down my 3-year old dog because she broke her back in an accident. As painful as that was, this is much, much worse. We are supposed to outlive our pets. But as parents of T1 kids, we are burdened by the fear that we could outlive our children. And that sucks.

    And to my Mom (Cheryl in the comment above)… awww, thanks!

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  24. Doug
    Doug January 11, 2011 at 5:59 am | | Reply

    Joanne

    I dont disagree with the fundamental difference between a child and a pet. I was SIMPLY trying to highlight that the woman in the OP was simply trying to relate in the way that she can.

    Trying to get all the mothers out there outside their own heads for a second. Yes you have a great responsibility and yes its tough, BUT there are other challenges as well. While you worry about what happens today to your child when you hold them down, I would say that its at least as difficult for your child to realize when they grow up that they cant take a day off. They go to bed every night wondering if they will wake up …

    “there is nothing that compares to the pain of having a child whose health is compromised.” Everyone has challenges and everyone’s challenges are important to them. Because your challenge includes the word “mother” doesn’t automatically rise it above all others. Does your concern about your child’s health automatically trump my concern about my own health ? Does it give you the license to publicly belittle another ?

    The drama associated with the pain of shots and BG tests, is increased when you feed into it. Yes sometimes its painful, but its required, and you are not doing it because you want to – you are doing it because you have to.

    My $0.02
    Doug

  25. Meri
    Meri January 11, 2011 at 8:18 am | | Reply

    The video was obviously made in fun. Joanne made it very clear in the article that she uses these instances to educate, not belittle. Jo didn’t roll her eyes at the cat lady when they were face to face. She was kind, and understanding.

    Doug, do you have children? I’m guessing no. Do you really think that we, parents of diabetics, don’t know what our children are in for in adulthood? THAT is why we worry at every single number. THAT is why we are up every night, all night. We work every hour to take the burden off our children, because we know someday we will have to pass the torch so to speak. And that KILLS us. We know we will never fully understand their journey, that is why we read and befriend other type 1 adults. We want to be ready, and prepared to support them the best way we can, any way we can.

    Bottom line, any mother of a diabetic will tell you, we wish it was us, and not our children. And that isn’t just words. That is the truth. I’m sorry you have to endure what you do. It is heartbreaking to me. I know your lot is hard. I KNOW it with all my heart.

    I also know Joanne. I have met Joanne. She has a heart of gold. It is a fun video. Period.

  26. Lora
    Lora January 11, 2011 at 8:52 am | | Reply

    Doug,
    BELIEVE ME..
    WE KNOW what it is like to live in fear of someone not waking up. I have stood beside my sleeping child JUST to see him breath.

    WE KNOW what its like not to take a day off. We live this reality everyday. We don’t sleep. We worry. We are there checking, logging, bolusing, treating lows and highs, basal testing… You name it. WE KNOW.

    May I don’t know how he really feels when his numbers are off, but I see it in his face, in his body and in his actions.

    I cry… I worry… I give EVERYTHING to take the load off of him. Don’t think that when he is an adult… this will change.

    I agree that Joanne’s video was made in MUCH NEEDED fun. It was a chance for her to make light of all the dumb comments people make. I had a doctor tell me her dog had diabetes… did I have a smart remark? NO, but I am sorry… giving your dog 1 or 2 shots a day… DOES NOT COMPARE.

  27. reyna
    reyna January 11, 2011 at 9:37 am | | Reply

    Doug,

    First off, I am sorry b/c you opened up a whole can of “D Mama” onto yourself. I think you are maybe missing the point that the video was made in fun. And, it has been widely popular in the DOC. Guess what? We all could use a laugh now and again.

    I don’t think Joanne was implying that her worries trump yours about your own health…although, in reviewing your comments it does appear that you perhaps do not have children. I know what my son is in for (as far as the “work load” of diabetes…the burden). I know this because I have been doing this for him for the past four years since his diagnosis at the age of three. Do I know how he feels when he is high? when he is low? when he needs to wait a low out to participate fully in his life? No. But, Dear Lord how I wish I did. It is hard to not know and I would take this on for him in a heart beat.

    So, I don’t think Jo was maliciously picking on the “Diabetic Cat Lady”…it was a tongue in cheek video. I think you should enjoy it for what it is and either join a D Mama for a laugh OR leave her alone.

    Sincerely,

    Reyna Maher
    (Joe’s mother and crappy pancreas, and Joanne’s Portuguese Buddy)

  28. Joanne
    Joanne January 13, 2011 at 9:35 am | | Reply

    Thank you Meri, Lora and Reyna for your responses… they said what I wanted to in a much nicer way.

    And since this is not my blog, and completely the wrong forum, I will just say to doug that we will have to agree to disagree.

  29. Maria
    Maria January 13, 2011 at 10:35 am | | Reply

    What a wonderful inside look! I’m even more impressed and respectful of your accomplishment. Great job, Nat! You are a wonderful model and example to all people, not just those living with diabetes.

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