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12 Responses

  1. Cara
    Cara October 22, 2010 at 6:57 am | | Reply

    I didn’t know about some of these things. Thanks for putting them all in one place.

  2. Irene
    Irene October 22, 2010 at 8:22 am | | Reply

    Hi’ on our Facebook page I am putting together a VERY large Video Picture-Collage with stories from parents. All entries will have a chance to win a personally signed copy of our book “Mommy, what is Type-1 Diabetes?” In which a portion from each book goes to JDRF to continue their efforts and advancements. Just thought I would share and thank you for this wonderful post.

  3. Annie
    Annie October 22, 2010 at 10:02 am | | Reply

    Thanks for sharing Sherry’s words. As a PWD, and a mother-to-be, her words were touching, and desperation for a cure for her child palpable.

  4. xim1970
    xim1970 October 22, 2010 at 10:24 am | | Reply

    It is unfortunate that this is happened to that young child, but it is something that we have to deal with every day as diabetics. I’m approaching 30 years with this disease, and I still have a fear of “not waking up”. I make sure that my blood sugar is up before I go to bed. A1C be damned…I refuse to die in my sleep to keep my A1C below 7. Tight control is good, but you still gotta live life!

  5. Michael Hoskins
    Michael Hoskins October 22, 2010 at 10:38 am | | Reply

    Thanks for this, Amy.

  6. kim
    kim October 22, 2010 at 12:39 pm | | Reply

    I live in St. louis and think the Gateway Arch would be a perfect monument to light up for diabetes awareness. (It recently was lighted in pink for breast cancer awareness). I would like to contact my local JDRF and ADA chapters to see if we can get this going. However, I am confused—blue or orange? Do they represent different things?

  7. John
    John October 22, 2010 at 8:50 pm | | Reply

    I have been reading up on dead-in-bed syndrome and it seems the belief is that it is caused by arrhythmia caused by hypoglycemia, but they aren’t sure. My question is, why does this seem to only affect the youth? And if hypoglycemia causes you to have a possibly fatal arrhythmia, how come people don’t die from them while awake?

  8. Riva
    Riva October 23, 2010 at 4:17 am | | Reply

    Type 1 is so under the radar as to what it is, and even that it exists, that it’s appalling. Not being a parent I truly can’t imagine the fear of having a child with it. With condolences, and for all parents of a type 1 child, we should remember that one life lost is too many and that dead in bed is rare, not common.

    For us t1 adults, I agree Amy let’s flaunt it: test in public, inject in public, wear your pump so someone will ask a question. For so long we’ve been habituated to hide it. Don’t, let your bravery to wake up the world be the gift you give all of us.

  9. Lisa
    Lisa October 23, 2010 at 7:30 am | | Reply

    Amy,
    This story is unbelievably tragic and unimaginable. After reading before bedtime I checked my son’s blood sugar every 2 hours last night I could not sleep. I love Sherry’s words about advocacy and making people aware of the dangers of type 1. Otherwise healthy kids ( and grown ups) with type 1 are seemingly so “normal” to the outside world it is easy to forget they are living on the edge every day.

    Amy, I am curious if you are allowed to post your opinion on this is there any one particular research organization group that you feel more strongly about in terms of being closer to finding an actual real “cure” ( not an artificial pancreas) There is so much research going in in many different areas.. I would be interested to hear your thoughts. What do you think of Denise Faustman’s research?

  10. Penny
    Penny October 23, 2010 at 10:57 am | | Reply

    As the mother of a child with T1 hearing this news literally made me cry. Cry for a child I had never met, never knew existed until she was gone. But, she and my child share a common thread and I share that thread with her parents. Riley not waking up in the morning is one of my biggest fears (even though I check him throughout the night). The first thing I do every morning when I get up is tiptoe into his room and look for his little chest to rise and fall. It is then that I breathe a sigh of relief. I’ve been doing it for 5 years now. My heart aches for this family. We need a cure NOW!! (www.faustmanlab.org)

  11. Ted
    Ted November 5, 2010 at 10:27 pm | | Reply

    Diabetes is a killer,it is dabilitating.The more I find out about it the more it scares me.Yet I’ve really learned from my fellow carriers,to stay positive.A day at atime!

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