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44 Responses

  1. NEEROG
    NEEROG September 13, 2010 at 6:31 am | | Reply

    good

  2. kdroberts
    kdroberts September 13, 2010 at 8:15 am | | Reply

    I used to get all bent out of shape regarding what type I was. I didn’t fit any profile, some people were telling me type 2, some people were saying type 1, then some were saying type 1.5. Then one day I had a moment of clarity and it hasn’t bothered me since. I realized that it really doesn’t matter what label you give it, there is a problem with my body and I need to do certain things to keep it running well. A diagnosis code is included on all my insurance claims related to diabetes but that’s just to satisfy the insurance companies and accounting departments.

    Find where the problem lies, lack of insulin, insulin resistance, something else, address that and then adapt if and when it changes. A label can often lead to unwanted things, like the animosity that is sometimes felt between the different types. Classic examples are the type 1 “you gave it to yourself, I didn’t have a choice” against type 2′s and the type 2′s “I work my butt of with a restricted diet and exercise but you just eat what you want and take insulin” against type 1′s. Maybe the solution would be to remove all type labels and have an umbrella Diabetes diagnosis with modifiers that define where specific issues lie like autoimmune, 0 insulin production, reduced insulin production, mild/moderate/severe insulin resistance, etc. That way everyone fits in and the diagnosis is fitted around you rather than trying to fit you into a diagnosis. It will only get worse the more subtypes that they find!

  3. William Lee Dubois
    William Lee Dubois September 13, 2010 at 8:25 am | | Reply

    OK, so I got you beat by a couple of years (how often do I get the chance to one-up Amy?). I was 40 when I got fast-moving adult onset Type-1. But I never considered my self LADA. Actually, I was first mistaken for T-2 as well. Then I was told I was T-1.5, then within four months of Dx I had zero insulin production and my Endo “promoted” me to a T-1.

    So I’ve had every type of diabetes except gestational.

    I keep it simple. If your immune system wipes out your beta cells you are T-1. If you have a disease of insulin resistance, even if you take insulin, then you are T-2.

    Over the last decade or so we’re seeing T-1 happening at younger and younger and older and older ages. Food for thought, but a subject for another day.

    I’ve always found the T-1 community to be perfectly welcoming to older recruits like myself. Many childhood Dx’d T-1s have told me they think that they’ve had it easier, only knowing one life rather than having to adapt to a new one.

    Bottom line, I hope I can speak as an ambassador for the T-1 community: Amy, if those LADA folks don’t want you, we’re happy to give you a home!

    ;-)

  4. Colleen
    Colleen September 13, 2010 at 9:14 am | | Reply

    I agree with William! As a childhood dxed T1 (at age 3) I definitely think I’ve had it easier than most people who were diagnosed at a later stage in life.

    Actually, it makes a little sad that you don’t feel like “one of us.” Sure you may not share all of the same stories that we have from when we were children… but our day to day lives are still the same. And we still share the same fears and the same frustrations!

    In my head at least… I see LADA as being under the big umbrella of type one. There are many ways to become type one besides your ordinary autoimmune reaction. But we all end up in the same place eventually. No beta cells. No natural insulin. No more “normal” life.

  5. Jeff
    Jeff September 13, 2010 at 9:44 am | | Reply

    Obviously we need a new classification, which I will dub “type 1.25 diabetes.” It’s reserved for people who were once considered LADA but are now considered T-1. As a late-diagnosed, fast-onset, almost-killed-me T-1 person, I understand the confusion about LADA.

  6. Michael Hoskins
    Michael Hoskins September 13, 2010 at 9:55 am | | Reply

    Thanks for this post, Amy.

    I agree with Wil, but actually simplify it in my mind even more:

    Do you take insulin and rely on it? Then you’re an Insulin-Dependent Diabetic.

    Are you not on insulin, all the time or at all? Then you’re a Non-Insulin Dependent Diabetic.

    To me, that simplies it and does away with the confusion associated with types, ages, stereotypes, and all that.

  7. Val
    Val September 13, 2010 at 9:56 am | | Reply

    Ditto Wil – though I was 36 at (wrong) diagnosis, and did make it six months until needing insulin, mostly through my ex-doctor’s incompetence and a practically zero-carb diet… I was GAD and ICA positive, and had no honeymoon once starting insulin, I guess I used that all up staying alive until I got there. I’ve just always considered myself a late-blooming Type 1, since most people don’t even know what that is, let alone what LADA is.

    Maybe we need a cool new acronym – Older Adults That Need Insulin Everyday Suddenly = “OATNIES”?? : )

  8. Sara
    Sara September 13, 2010 at 10:34 am | | Reply

    I was diagnosed with diabetes (type not specified) at age 21, no insulin. Nine months later I was in severe DKA and was declared a Type 1. I have tried to get every endo since I’ve heard of LADA to declare me one, but based off my antibodies and other lab results they won’t commit. Welcome to the club! :D

  9. Scott Strange
    Scott Strange September 13, 2010 at 10:41 am | | Reply

    Ok, now someone’s gonna have to teach you the secret T1 handshake…

    /wink

  10. marie
    marie September 13, 2010 at 11:12 am | | Reply

    I guess the reason they moved away from “juvenile-onset” and “adult-onset” diabetes was that it inaccurately suggested that the age of diagnosis determined the underlying disease process?

    I was dx’ed at 14, my dad at 25 and I have plenty of friends who were dx’ed later. If there is a difference in genetics or pathology it would make sense to draw a distinction at least for purposes of medical research. But I have never felt that type 1 was limited to people diagnosed as children. It seems most reasonable to draw the lines between diseases between the underlying causes. The trouble with this, though, is that it may change with changing research. Since the time I was diagnosed, I’ve had juvenile-onset diabetes, insulin-dependent diabetes, and now type 1.

  11. Elizabeth
    Elizabeth September 13, 2010 at 11:24 am | | Reply

    What amazing timing this post is for me. I was diagnosed with type 1 a little over four months ago (I’m 31), but I just just yesterday rediscovered a forum post of mine from over two YEARS ago in which I said I’d been playing with a spare meter and tested my blood sugar at 235 and 249, fasting. But the strips were so old, and I was unemployed and uninsured, so I wrote it off because the strips I used had been open (but recapped) for at least a year. I only vaguely remembered that incident when I was so recently diagnosed (I think I really kind of wiped it out of my brain because it scared me!).

    Now I look at this and symptoms that I now know are associated with high blood sugar, and I wonder very much if I have LADA/1.5, and if there’s ultimately any DIFFERENCE at this point because I am very much insulin dependent (though, with a very low basal rate since I still produce a tiny amount of insulin). Maybe if I’d gone to the doctor much earlier than I did, a diagnosis of 1.5 would have made a difference for a while…

    And I think people know damn little about 1.5. Sometimes I hear you start out insulin resistant, other times I hear you don’t but that type 2 meds could help you better use the limited insulin you have. And I most commonly hear that the same antibodies that cause type 1 are present but at a much lower level… but now you’ve read that it’s a “type 2 gene?” That doesn’t make sense to me at all, if antibodies are what makes a T1.5′s beta cells stop producing! From what I understand, Type 2 isn’t auto-immune at all… So why would a “type 2 gene” diabetes cause an autoimmune response?

    I’m utterly baffled by all this contradictory 1.5 information….

  12. Megan
    Megan September 13, 2010 at 1:00 pm | | Reply

    Amy, as the mom of a 6 year old, diagnosed at age 3, I would welcome you to the “juvenile” diabetes club with open arms. I’m sorry that you don’t feel that you quite fit anywhere. {{{hugs}}}

  13. riva
    riva September 13, 2010 at 1:06 pm | | Reply

    Sounds like you’ve got type 1 to me – and you fit into the type 1 adults group. I know many women who got type 1 at 48, 59, and 65. Now that should be even more push to get our type 1 adult camp going!

    I got the D at 18 and was diagnosed as t2 because of my advanced age! LOL. I had my 1 year honeymoon and then was on orals for 4 or so years while away at college and under no one’s care.

    When I got home and got a doctor he said, “You’ve got type 1 and need to be on insulin!” Yet, I never went into DKA all those years and my sugars were usually around 200 which I know because once meters came out that’s where they were. So now I’m thinking I have LADA.

    Well, LADA, DADA, who knows, who cares? We’re all here with you Amy no matter what prefix comes before your diabetes.

  14. Kassie
    Kassie September 13, 2010 at 1:31 pm | | Reply

    I was always taught that you can lose up to 95% of your ability to produce insulin before you exhibit a single symptom (95 may not be accurate but somewhere in that neighborhood). And as you approach that tipping point, you show symptoms sometimes but not others. Honeymoon periods vary widely – mine was probably 18 mos (dxd at 18), Jake’s was probably 8 mos (dxd at 11) and Ryan’s was over within 6 months (dxd at 7). Isn’t it possible that your LADA was in process for a while, and your pregnancy marked the beginning-of-the-end of insulin production? And given your role as the mom of a newborn, you could have missed symptoms as you approached/crossed over, resulting in symptoms more often associated with type 1?

    I guess this is all to say that perhaps your LADA membership is still valid, and until they know more about it, you can’t legitimately be shown the door :)

  15. Val
    Val September 13, 2010 at 3:33 pm | | Reply

    sure, I’m all for losing the “older”!

  16. Elinor
    Elinor September 13, 2010 at 4:13 pm | | Reply

    Sorry,I vote to keep the” o ” When I read “oatnies” I burst out laughing.
    Laughter is always good!!!

  17. Melitta
    Melitta September 13, 2010 at 4:24 pm | | Reply

    There’s a great new research article out whose title is “LADA is dead, long live autoimmune diabetes!” According to the Expert Committee, all autoimmune diabetes (that includes LADA) is Type 1. Recently, JDRF has made significant effort to reach out to people with adult-onset Type 1 diabetes, and this is much appreciated. JDRF’s new Adult Type 1 Toolkit is excellent. For too long, despite the fact that JDRF’s international chairperson Mary Tyler Moore was diagnosed with Type 1 at age 33, JDRF promoted the idea that Type 1 diabetes primarily affected children, despite all scientific and historical information to the contrary. This truly harmed those of us who were diagnosed as adults, as the majority of us were misdiagnosed as having Type 2 diabetes (an altogether different disease) strictly based on age not etiology. Misdiagnosis continues to this day, and those who are misdiagnosed suffer horrifically and experience early onset of complications, even death.

    JDRF still exhibits a lot of denial around adult-onset Type 1 diabetes. In two recent forums, JDRF researchers have said that latent autoimmune diabetes in adults (LADA), which by definition (Expert Committee) is Type 1 diabetes, is NOT Type 1 diabetes. On diabetesmine, JDRF stated that LADA is not the same as Type 1 diabetes because the onset is slower. Well, in general the onset of Type 1 in babies is slower than the onset of Type 1 in teenagers, so does that make it a different disease? Of course not—it’s a false argument. In the recent article on LADA in Diabetic Living, JDRF said that LADA is not Type 1 diabetes because people with LADA display genes for Type 2 diabetes. In fact, what researchers have found is that people with LADA have genes for BOTH Type 1 and Type 2 AND that many with childhood-onset Type 1 have genes for both Type 1 and Type 2. A huge portion of the population has genes for Type 2: those with Type 1 diagnosed at any age (including LADA) may have Type 2 genes. Again, that does not make autoimmune diabetes in adults a different disease than autoimmune diabetes in children.

    JDRF should rein in their researchers, who are declaring autoimmune diabetes in adults to NOT be Type 1 autoimmune diabetes despite all scientific evidence to the contrary. The lives of those with adult-onset Type 1 diabetes depend on a paradigm shift that acknowledges the true scope of Type 1 diabetes, which includes adults and children. JDRF should be at the forefront of ensuring that ALL people with Type 1 autoimmune diabetes be correctly diagnosed and be given appropriate treatment, and ultimately a cure. But the people at JDRF seem to be freaking out because those with adult-onset Type 1 diabetes/LADA far outnumber those with childhood-onset Type 1 by about 3 to 1.

  18. colleen
    colleen September 13, 2010 at 4:35 pm | | Reply

    Age 55 at diagnosis – T2, then LADA.
    Getting old is not for sissies.

  19. Cherise
    Cherise September 13, 2010 at 5:52 pm | | Reply

    Excellent post, Amy! I was thinking about doing a blog week for LADA because I have received a lot of emails asking about LADA. I wasn’t misdiagnosed with Type 2 diabetes at all. I was diagnosed with LADA from the get go. The Endo I had told me my pancreas will stop working because of the anti bodies acting my pancreas-my pancreas was still working when I was diagnosed the only difference was anti bodies.
    Here’s my definition of LADA:
    Anti Bodies, working pancreas and over the age of 20=LADA.

    *sigh*
    Type 1.5/LADA or whatever you want to call it:)

  20. Sysy Morales
    Sysy Morales September 14, 2010 at 5:53 am | | Reply

    sigh…<>

  21. Sysy Morales
    Sysy Morales September 14, 2010 at 5:54 am | | Reply

    sending you a big hug :)

  22. whimsy2
    whimsy2 September 14, 2010 at 5:59 pm | | Reply

    I suddenly became diabetic right before my 60th birthday. My doc called it type 1.5 but put me on pills. Didn’t help at all. I did some research on the internet, found an excellent online help group and with their encouragement, requested the anti-GAD antibody test (my doc had never heard of it). This test clearly showed I was type 1, and I’ve been on insulin ever since. And thanks to the internet, I learned how to dose properly so that 13 years down the line I still have no diabetic-related complications. I hope to reach life’s end with all my parts working. Or at least not damaged due to diabetes-related complications.

  23. Kendra
    Kendra September 14, 2010 at 7:26 pm | | Reply

    I didn’t know about the slow-onset aspect of LADA, either. Jeez, how many people must start out with a Type 2 diagnosis, struggle to maintain with diet and exercise for years, never feeling like they’re doing a good enough job (with plenty-o-judgment from oh, pretty much everybody), and then eventually end up on insulin 24/7 and experience the emotional fall out from that “failure”? I don’t want to think about it. I hope LADA as its own type of diabetes becomes more well-known to the public (ha!) and especially to the medical community…I’ve heard so many horror stories about people getting the brush-off as Type 2 just because of their body type or their age. Duh, people. Duh.

    I do feel your pain about being separated from the “late onset” diagnosis description, Amy. Even though I was diagnosed at 18 (thus technically a “juvenile”) I identify more with Type Is diagnosed as adults than I do with the younger crowd. I never was a “juvenile diabetic” and I can’t really speak to that experience. I would be firmly on-board with renaming all the confusing types of diabetes — I’m in agreement with those who would emphasize the autoimmune aspect of the disease (or lack thereof) when trying to make a differentiation. The time of onset just seems like hair-splittery to me.

  24. Lauren K
    Lauren K September 14, 2010 at 9:48 pm | | Reply

    Auto-immune=type 1, regardless of the age of onset. “Juvenile diabetes” is a misnomer.

    What’s most dangerous, in my view, is lumping type 1 and type 2 together, or blurring the line between the two. Type 1 diabetes and type 2 should not even have the same name or be considered equivalent in any fashion. I was in my twenties at diagnosis – but with 3 “juvenile diabetic” relatives, another first degree relative with rheumatoid arthritis, anti-GAD positive, HLA DR3/DR4. That is a classic type 1 history/presentation, and from the first day, no one used any other term to refer to it. This disease is from my genes, not my lifestyle.

    There are a lot of theories about type 1 diabetes in childhood being a long process – beta cell mass is supposedly lost over time, until insulin levels are so low that DKA becomes possible. Kids present more often with DKA for a lot of reasons. I remember my little brother, who was diagnosed as a child, being so thirsty we called him “the sponge” for YEARS before he went to the hospital with DKA. An adult would probably have sought medical attention far earlier in the course of the disease. Also, there could be other factors that cause a child’s immune attack on islet cells to be more robust than an adult’s. Either way, the underlying pathology is the same, regardless of time frame.

    And, anecdotally, the 56-year-old mother of a friend of mine was just diagnosed with type 1. She is a lifelong runner who can’t weigh more than 110 pounds. She collapsed during a half-marathon due to “dehydration” and they found out her sugars were through the roof. So age does not matter. The immune system can go awry anytime.

  25. Carol C
    Carol C September 15, 2010 at 7:45 am | | Reply

    I too was an older, rapid-onset T1. I was 60 at dx (I’m a firm believer that in my case it was the pnuemonia that was the trigger) and put on insulin right away. I’ve always thought my self a t1 as I didn’t seem to fit any of the criteria you see on-line for LADA. in fact my PCP had never even heard the term LADA but then he thought I was t2 anyway until I told him to read the notes from the endo who had thrown my care back into the PCPs lap (guess I wasn’t worthy enough for the “great man’s ” care!) besides the endo told me I was LADA as I wasn’t a “true” t1-whatever that means, when I asked if I’d qualify for a pump, so maybe I’m better off without him if that’s his attitude. Not even the pharmacist believes I’m t1, he didn’t know adults could get t1 and then he had the nerve to ask who told me I was t1-another non-believer. Besides LADA, t1.5 and like terminolgies aren’t officially recognized anyway.

  26. kdroberts
    kdroberts September 15, 2010 at 8:12 am | | Reply

    @Lauren K
    Type 2 has a very large genetic component, as far as I know there are more type 2 genes identified than type 1. There is also a lot of speculation that at least some cases of type 2 are auto-immune related, just not in the same way as type 1. Another issue is that in identical twin studies where one twin has type 1 the second twin has less than a 50% chance of also having type 1, some studies show it considerably less, which suggests a large lifestyle/environmental factor in the development of type 1.

    Personally I don’t think lifestyle is the main cause for any type of diabetes, genes are the underlying reason for it all. That would also explain the rapid growth of diabetes worldwide since the genes are spreading more and more with each generation and the people with them are staying alive longer and longer so can spread them even more than previous generations. Nothing diabetes is cut and dry and I don’t think it will really start to become clear for years. At which time I could be proven completely wrong!

  27. June S
    June S September 15, 2010 at 6:45 pm | | Reply

    There is no GOOD time to get diabetes, however I always felt fortunate that I was diagnosed at age 16. I figured it was past the birthday party and Halloween days. Type I diabetes did not ruin my childhood. I must admit that I am somewhat jealous, though, of folks with LADA. I’ve already lived with Type I for 38 years. If you’re diagnosed at age 40 with LADA, you’ll have to worry about complications much later in life. I’d consider it a blessing to be diagnosed as an adult.

  28. CarolC
    CarolC September 16, 2010 at 7:28 am | | Reply

    I had an idea for a slightly different term for those of us who are late onset t1 but don’t fit the general LADA definitions. What about RODA-Rapid Onset Diabetes in Adults?

  29. Barb
    Barb September 16, 2010 at 10:18 pm | | Reply

    I have people telling me all the time, “you could not possible have Type 1, you are too old!” People tell me I must be LADA. But, according to my doctors I am Type 1, first diagnosed as a Type 2 at age 55, never able to bring things under control, and then changed to a Type 1 a year later. I also developed thyroiditis and hepatitis, everything caused by autoimmune reasons. I get tired of trying to explain to people that YES, I am Type 1. So, I have just decided to skip the whole number-thing, and now I simply say I have insulin-dependent diabetes…end of story. And I agree with others above, we know what we have and it really doesn’t matter what we call it!!

  30. BillH
    BillH September 17, 2010 at 6:50 am | | Reply

    I was diagnosed as a T2 at 51 years old by my internist. He put on Metformin, followed by Actos. A year and a half later, I went to an Endocrinologist…nothing seemed to fit the T2 diagnosis. One GAD-antibody test later and the diagnosis was changed to LADA/T1.

    It doesn’t matter what the label says, what matters is the physiological process behind the disease. If it’s autoimmune, it’s one thing. It it’s insulin resistance, it’s another.

  31. iaustin
    iaustin September 17, 2010 at 9:53 am | | Reply

    Hello,

    Last year, I had a brief scare with Type-1 diabetes. Afterwards, I conducted extensive research about the rise of the disease amongst our youth. Multiple diabetic studies clearly indicate a direct relationship between the rise in juvenile (type 1 diabetes), High Fructose Corn Syrup (HFCS – a chemical added to extend the shelf life of food.) and hormone-injected cow’s milk.

    Look into this and think about removing these items from your childs diet.

    Also, have you heard about a vitamin called Gymnema? This vitamin can actually block 50% sugars from entering in the blood stream.

    This my be something that can help control your childs high glucose levels in the long run.

    Good Luck
    Remember the DayStar

  32. msktty
    msktty September 17, 2010 at 10:49 am | | Reply

    I was hospitalized w/ DKA @ age 49 yrs. They didn’t know what to call me. 2yrs later, my endo told me I was LADA.
    There is more information now about LADA, Type1.5 than when I was first dx’d.
    It was hard for my diabetic team to put me in a category because I overlapped several; or none at all.To further cofuse the issue I also have underactive tyroid.When my thyroid is acting up, it affects my diabetes.and since the throid controls body metabolism, whoeee!!
    It’s an interesting juggling act for the rest of my life.

  33. Stuart Jones
    Stuart Jones September 17, 2010 at 5:22 pm | | Reply

    Hi,

    I may sound a little naive but there is a long history of diabetes in my family. I have been told it can rear it’s ugly head at any age and by reading the comments, even though I have not yet been diagnosed with it could still happen, I am 51.

    I guess I just diet and exercise. Any other comments would be appreciated.

  34. Gina
    Gina September 17, 2010 at 11:51 pm | | Reply

    Hello, interesting discussion – and great information for me. I am 51 (can hardly say it), have a really big family and no one has insulin resistance type two or autoimmune type one. I have probably had post meal highs for awhile and just realizing the numbers – all over the place mostly normal fasting (90 – 130) but up to 300 post high carb. And still dropping to 40 and 50 with reactive hypo. I am thin. I have labs Monday and will ask for an anti-GAD but the dx probably has to come first.

    To continue the LADA discussion, how many out there, that were thinking or told they were LADA have siblings or family with type 1?
    I am still a little in denial and a diabetes educator for 21 years.

  35. Penny
    Penny September 19, 2010 at 9:34 am | | Reply

    I followed almost the exact same circumstances as you did. 36, in fact i was immediately put on insulin, my honeymoon period lasted less than a year.
    I call myself type 1 because anything else to folks on the outside world you end up explaining over and over again the difference, when it doesn’t really matter.

    I am dependent on insulin, I can’t live without it and I became that way when I was 36. End of story, unless of course someone has a cure, then we should talk… :)

  36. Marlene Nicholson
    Marlene Nicholson September 20, 2010 at 9:18 pm | | Reply

    I was very gratified to read your blog and the comments. I have been puzzled about this issue for a long time. I was diagnosed at 47, (am now 71). However, I had gestational diabetes when pregnant with my 2 children,38 and 35 years ago. My first child weighed 10 pounds, but I was not given a glucose tolerance test until I was 7 months pregnant with my second child. I was then told I had diabetes but only needed to have a restricted diet–for the last few months left of my pregnancy. My second child was 6 1/2 pounds–delivered by c section about 2 weeks early. I was given another glucose tolerance test by my ob a few weeks after her birth; he told me I still had diabetes and would probably need oral meds. I then went to the doc. who was supposed to be the best endo in the city. He said I didn’t have diabetes–was just high normal, and as long as I stayed thin I wouldn’t get it. He did say to cut down on food with sugar and see him twice a yr. As the yrs. went by he told me I was doing great and he was more and more convinced that I would not become diabetic so it wouldn’t hurt to allow myself occasional desserts.

    12 yrs later, after getting an aic yearly and seeing my endo twice per yr, I started feeling exhausted and my vision was blurry; I had no other symptoms. When I went in for my 6 month endo apt. my blood glucose was 420, and I was put on insulin immediately. After a few months I had a 3 month “honeymoon.”

    At the time I was diagnosed I was treated like a very strange specimen. One of the nurses called her colleagues in to “look at the thin diabetic.” My endo didn’t want to talk about how to categorize me, and didn’t even do an A1C because he told the nurse it would “very bad” so there was no point.

    I am not insulin resistant except when I am very high, so it doesn’t seem that I am a T2.

    I often wonder what would have happened if I had listened to my ob who said I was diabetic 12 yrs earlier. But I liked the endo’s diagnosis much better.

    Sorry to make this so long. But getting it off my chest is too difficult to resist, especially because there will be people reading this who can relate
    to the situation.

    Marlene

  37. Gina
    Gina September 21, 2010 at 5:55 am | | Reply

    Hello,
    There are some endocrinologists out there practicing questionable medicine. Always question your therapy, you can always go for a second opinion. You may have been experiencing reactive hypo which would equalize the post meal highs and therefore have a normal A1C. The current treatment is early insulin (in LADA) which can save the B-cell or extend the time before you are 100% without insulin which is much more difficult to treat.
    Do you have any family with diabetes (LADA, t-1, t-2)?
    Gina

  38. June S.
    June S. September 21, 2010 at 5:08 pm | | Reply

    Before my diagnosis at age 16, back in the 70′s, the only known Type I was my uncle, who was diagnosed with it at age 35. (He was one of 6 children.) Later my brother got it, and then a cousin (age 9) and then his sister (gestational, which never went away) and then a twin cousin on the other side of my family (at age 17) and later his identical twin (at age 27.) Now, many years later, my father’s sister was diagnosed in her mid-seventies, and one of my first cousins on my father’s side was diagnosed with Type I at age 50! Call it whatever you want, it’s Type I diabetes. Consider yourself LUCKY if you got it later in life. The later, the better. Then it doesn’t wreck your childhood or adolescence. Better not to get it at all, of course, but that’s not possible, as yet!

  39. ChanceOfPregnancy
    ChanceOfPregnancy September 21, 2010 at 11:11 pm | | Reply

    Surely the key is early diagnosis of the disease once it appears, rather than when you get it?

  40. Patti Evans
    Patti Evans September 25, 2010 at 4:45 am | | Reply

    I was diagnosed at 57 and told “Type 2 due to your age” despite the fact that I was rail thin and shedding weight hand over fist with BGs over 30. However ketones were minimal – but I have since discovered that if you are still producing some insulin you may not show ketones. The oral meds I was prescribed did nothing and after 3.5 weeks of feeling very ill indeed I was put on insulin. The doses increased steadily for about 9 months then levelled out and have stayed the same for the past 6 years. I am still classified as T2 but the HCPs have said (particularly since shortly following dx I was also dx with Hypothyroid) that they now think I am T1.5. Here in the UK the GAD and CPeptide tests are rarely done.

    It doesn’t bother me exceptionally, except that I know that I am forever going to be refused any carb counting eduction (have managed to teach myself and took an online course) and will never ever have a chance of a pump, purely because of a diagnosis made by a nurse with minimum training in diabetes. I am an admin with a UK diabetes forum (www.diabetes-support.org.uk) and I have to say that we see more “woolly” diagnoses and people being wrongly medicated that I like to think about in the UK.

  41. miss kitty
    miss kitty September 30, 2010 at 1:18 pm | | Reply

    I got everybody beat! I was hospitalized at age 49 w/DKA;12 hours to death (so the ER doc said). While I was hospitalized, the staff ran tests and weren’t sure if I was 1 or 2. I was immediately put on intensive insulin therapy. I was a fast learner & did great for 3 years. I crashed in the fourth year. I struggled for the next 4 yrs. I’ve been on an insulin pump for those 4 years.
    I like seeing how much insulin I have floating in my body. I’ve been accused of “insulin staking” which caused low blood glucose. The pump aldo calculates how much insulin to give; just plug in the total carbs for meals & snacks. I also like the fact that the pump doesn’t let me cheat!

  42. Marlene Nicholson
    Marlene Nicholson October 4, 2010 at 10:35 pm | | Reply

    Answer to Gina:

    There has not been any diabetes in my family that I am aware of. I am an only child so do not have an extensive family.

    I kick myself for not seeking a second opinion years ago. But my endo was literally thought to be one of the best in the country, and was the head of the endo dept of a very well respected university hospital in a big city. I believe there was a controversy at the time re: where to draw the line between high normal and diabetes (1987). My endo apparently was on the wrong side.

    Marlene

  43. Andrea Karim
    Andrea Karim December 15, 2011 at 10:09 am | | Reply

    We’re all a bunch of diabetics! Can’t we all just get along?

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