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6 Responses

  1. Khurt
    Khurt September 15, 2010 at 6:18 am | | Reply

    “because no one knows better what it’s like to live with type 1 diabetes than kids who have it.” – except for all the people with type 1 diabetes who were born before 1993 but who are no longer kids.

    In any case, an excellent program otherwise. People don’t think a disease is serious until a kid has it.

  2. reyna
    reyna September 15, 2010 at 10:06 am | | Reply

    Thank you for posting.

  3. Sysy Morales
    Sysy Morales September 15, 2010 at 12:38 pm | | Reply

    Diabetes robbed my childhood and yet I find that as a child I handled diabetes more gracefully than I do now. I find that my sister, who got diabetes at age 3 versus my age 11, has been even more elegant about it all. Children grow up fast when they deal with something like this and the Children’s Congress is a really impressive event where you see very young people act with more sincerity, grace, and maturity than many adults do. My sister was a delegate the same year as Allison Blass and I went along for the ride. I saw tears in a lot of eyes (mostly adults) and I saw a lot of hearts wrench at the site of so many children kindly smiling as they attempted to describe what their lives were like. I’ll never forget it.

  4. Mike Kondratick
    Mike Kondratick September 16, 2010 at 4:51 am | | Reply

    Thanks for helping to spread the word about Children’s Congress, Amy!

  5. Scott Strange
    Scott Strange September 16, 2010 at 6:12 am | | Reply

    @amy @khurt I blogged about this very subject http://strangelydiabetic.com/2010/07/13/an-open-letter-to-the-jdrf/ and then here are the links to the followup conversations I had with Mike Kondratick who is the Director of the JDRF Grassroots Advocacy Program

    Part I 1 http://sixuntilme.com/blog2/2010/09/guest_post_after_an_open_lette.html

    and Part 2 http://strangelydiabetic.com/2010/09/14/after-an-open-letter-the-jdrf-opens-up-%e2%80%93-part-ii/

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