15 Responses

  1. Anne
    Anne June 3, 2010 at 7:29 am | | Reply

    I often forgot how hard it had to be for my parents. Thank you, Stacey, for the gentle reminder and all the best for you and your son! (I was diagosed with Type 1 when I was 5, but still I don’t know a life without diabetes. Good luck!)

  2. Kathy
    Kathy June 3, 2010 at 9:16 am | | Reply

    Well said, Stacey. I am the mom of a now 6 year old, who was diagnosed at the age of 3. I agree with everything you said, especially about having a sense of humor! I had to laugh about the birthday cake – we had an episode recently where just as I saw the pump finish delivering the breakfast bolus, my son said “my tummy doesn’t feel well!” as he ran for the bathroom. Great, now how to get him to eat 30g of carbs when he’s got a stomach bug. Or the time when he was newly diagnosed and stuck the little round lancet cover up his nose so far we couldn’t see it, and every time we told him to blow his nose, he INhaled instead of EXhaled…

    I’ll be thinking of you in September when my son begins a full-day of first grade instead of half-day Kindergarten….

  3. Carrie
    Carrie June 3, 2010 at 9:20 am | | Reply

    It is quite a job to have a baby with T1 but you really do have to laugh at lots of things. My daughter, who was dx at 20 months, just recently got a pump. She infomed the cashier at our local Walmart ” I have a tube in my butt!” She is 3 currently but she uses words like “high, low and buzzin’ (when her pump vibrates). I total understand the birthday cake ordeal. You would think that they would eat the whole piece but sometimes they just won’t. Thank you Stacey for this post…it is very helpful to read that someone else out there is/has gone thru the exact same things!

  4. John
    John June 3, 2010 at 10:53 am | | Reply

    My encouragement to you . . .

    I was diagnosed at 28 months, in 1959. I have lived with diabetes, then, for 56 years. I don’t remember the time when I did not take insulin. I do remember trying to run away from my mother (a registered nurse) so I would not have to have that needle (twice the size of the modern disposable syringe needle) poked into me. For those who are dealing with the situation, my parents and I found a solution: I was told I absolutely had to have the shot. My mother agreed that when the syringe was ready, we would go to the couch–me with my butt in the air, she sitting next to me. She would count backward by fives from 30. If she reached 30, she would give the shot. Or, she would give it to me when I said the code word “pumpkin”. This gave me some control over the situation, and lasted until I learned to inject myself (I usually waited to the last second, but always gave the code word). You and your child have apparently worked out a solution, but others using MDI might find this useful. Incidently, I still have a strange and strong aversion to pumpkin pie.

  5. sisiay
    sisiay June 3, 2010 at 12:44 pm | | Reply

    As someone dx’d at 30, there are so many challenges specific to children that I can’t even imagine (having the person who picks the insulin dose and the person who has to eat the food not be the same person, for example). A very nice peak into a clearly challenging situation. Sounds like you’re doing a wonderful job.

  6. sooziee
    sooziee June 3, 2010 at 3:01 pm | | Reply

    I have had diabetes since two weeks before i turned four. I may not have any memories of pre-diabetes life, and I can even begin to imagine what it’s like to not question how much the milkshake will add onto my carb count, and godspeed if there’s a cure before I’m dead, I will still probably count up the carbs in my burger and fries long after said curing. But I know that like me, Benny will grow up with something other kids sometimes never get, and that is a sense of mortality and a determination to live. He will probably have a better understanding of taking care of himself and be more determined than his peers to keep himself healthy. But godspeed on that cure so we both can decide on half or the whole slice of cake (I have a huge sweet tooth so I know what my choice would be).

  7. Sysy Morales
    Sysy Morales June 3, 2010 at 6:04 pm | | Reply

    Very well written…I got diagnosed type 1 at age 11, just a few months after my sister was diagnosed at age 3. My parents found it a blessing that I could help them understand what she couldn’t express. I was too caught up in my own problems with the disease to really see things from my parent’s point of view-which you’ve brought to life here. I became a parent last year to twin babies and feel like I’m beginning to understand what you are feeling and yet don’t because you are the one with the diabetic child. I think your sense of humor is priceless and I wish all the best for your little one. Keep up the great work, mom :)

  8. Harry
    Harry June 3, 2010 at 7:07 pm | | Reply

    Great post, Stacey. I can’t imagine how difficult it would be with such a young child. Diabetes is hard enough to manage when it’s happening to you, I’m sure it’s a completely different ball game when you’re trying to control it for someone else. You and Benny are both doing an awesome job though…thanks for sharing your story!

  9. Meri
    Meri June 3, 2010 at 9:52 pm | | Reply

    This post brought back a lot of memories. My boys were diagnosed as babies. I’m glad to be to the point that they can tell me how they feel. I think that was the worst part of it all…never knowing how they were feeling. Great blog! Thank you!

  10. Wendy
    Wendy June 3, 2010 at 11:44 pm | | Reply

    My daughter was dx at the age of 24 months…she’ll be 7 soon…

    So many memories. Keep up the great work :)

  11. Larry
    Larry June 4, 2010 at 2:21 am | | Reply

    Great blog. It’s good read that your living above diabetes.

  12. Stacey
    Stacey June 4, 2010 at 5:38 am | | Reply

    I’m laughing and crying reading all these great comments! I was so excited about the chance to have a post here – and I’m thrilled that you’ve decided to put your two cents in. Thanks so much!

  13. Vanessa
    Vanessa June 4, 2010 at 7:22 am | | Reply

    My son was diagnosed just after 2 years. He is now almost 16 years old, driving (with permit), playing football and doing great. I look back now at all the milestones he achieved (giving own injections, inserting infusion sets himself, etc.) I am so proud of him and all that he has done. I honestly believe that diabetes has made my son extremely mature, responsible, empathetic and more. Although I would trade places with him in a heartbeat, he has become an amazing young man and I have no doubt that he will achieve great things. He can handle adversity and challenges better than anyone I know, which I know will take him far in life!

  14. June S.
    June S. June 4, 2010 at 1:21 pm | | Reply

    I was diagnosed in my teens. My brother, two years younger, was diagnosed two months after me. Neither of my parents has diabetes. I still remember my mother’s uncontrollable sobs when she learned that my brother also had diabetes. Bless all of you Moms of Type I toddlers. You are amazing!

  15. The poor diabetic
    The poor diabetic June 7, 2010 at 5:31 pm | | Reply

    As a type 2, diagnosed in my late teens.I can only imagine the challenges that a parent with a diabetic child must face especially for someone so young. Hopefully the foundations you are setting up now will last a lifetime

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