8 Responses

  1. Leighann of D-Mom Blog
    Leighann of D-Mom Blog February 9, 2010 at 7:11 am | | Reply

    I’m a bit of a techie and I’ve only had to deal with diabetes in the age of blogs, twitter, laptops, etc.

    I think we could do so much more with the technology available.

    It’s so archaic that I have to call our endo and recite a bunch of numbers or wait until I get to work to fax a spreadsheet. They have said that because of HIPA they cannot receive e-mails.

    Though I think that a password-sensitive e-mail address is more sensitive than some fax machine that I may or may not have dialed the right number to!

    How nice would it be to have a platform where our data is available both to us and our providers. Or being able to just message the nurse asking her to look at our latest numbers so we can adjust bolus rates or corrections.

    My gripe is that so many of us are MAC users and companies that manufacture medical devices such as blood glucose meters and insulin pumps have not created software that would easily allow us to download our data. Instead of doing what I do: log everything in pencil and then stare bleary-eyed at the computer entering it in. Gah!

    I would argue that if companies are seeing user-end results int he Health 2.0 front that either they aren’t making a product that is truly user-friendly or they don’t have a good way to track who is actually using it.

  2. Christine Michael
    Christine Michael February 9, 2010 at 7:21 am | | Reply

    A really good post, and comment too! I’m a health writer and at conferences I am always surprised/disappointed about how little faith doctors have in lifestyle measures to help people manage their weight. They tend to be much more enthusiastic about drugs and, more recently, bariatric surgery. This is in spite of evidence that lifestyle measures really can make a difference, in preventing or managing type 2 diabetes specifically.
    If doctors’ lack of belief comes across to patients, which I’m sure it does, it’s not surprising if interventions fail. So one advantage of web-based interactions might be to remove doctors’ low expectations from the process and help people feel more positive about helping themselves.

  3. saramy
    saramy February 9, 2010 at 4:03 pm | | Reply

    weight, diet and writing things down – how tedious and does it really answer anything? Maybe we have to focus on the cause rather than what to do once you find yourself sick. Like do we have any idea about the chemical composition of much of the food we eat and the real impact that food has on our endocrine system, including perhaps the radical changes that so called food might have on changing everything from how we metabolize to how the overall body reacts? Thanks for your post yesterday Amy.

    Not enough investigation has been done – rather it’s all about assuming that everyone who is fat is eating way too much. But why are people so much fatter than they were 30 years ago. I can’t believe everyone is really just eating too much — is it something else? We’re all just focused on exercise and diet, but we don’t talk nearly enough about what’s in those diets and about the addictive power of fast foods. I won’t be at all surprised if we find definitive proof that this food is just like cigarettes – chemicals and modified and re-engineered foods create chemical changes in the body and big addictions. Then maybe we can really help people instead of blaming them – and subjecting them to using tools that don’t really work and only serve to make them quilty.

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    Twitted by ellenhoenig February 10, 2010 at 8:22 am |

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  5. Susannah Fox
    Susannah Fox February 10, 2010 at 8:26 am | | Reply

    Thanks so much for forking the discussion in this direction. As always, you’re focusing on the real-world applications and implications, looking at the issues through the D-lens.

    I’m snowed in here in DC, but I’m learning as much from the conversation as I have ever learned at a conference or lecture. That’s 2.0, too.

  6. what the heck is health 2.0? and is it achievable? — free-range communication

    [...] weight, diet and writing things down: is this what you call health 2.0?, amy tenderich, diabetes mine [...]

  7. The Decision Tree: What to Expect When You’re Expecting a Long Life | e-Patients.net

    [...] key variables, like how far I run, my weight, and my cholesterol levels. And yep, I’m just writing things down, as Amy Tenderich recently wrote. That’s participatory medicine, [...]

  8. affiliate
    affiliate February 24, 2010 at 11:37 pm | | Reply

    learn to trust people when they answer what kind of diet habits and exercise they get up to

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