118 Responses

  1. Teens with Diabetes: Freedom is Their Secret Dr...

    [...] In the past few weeks, the diabetes community has suffered several tragedies in losing young people to diabetes. It is shocking and upsetting when diabetes takes the life of anyone, but somehow more so when it cuts a young life so short. Moira McCarthy Stanford is a journalist, a long-time JDRF volunteer and mom to…  [...]

  2. Maya Ramirez
    Maya Ramirez April 9, 2014 at 1:30 pm | | Reply

    I’ve had diabetes since I was 8 months old, when they removed my pancreas completely. Now I am but a few short weeks till my 21 birthday. I can relate completely the struggles of having diabetes my entire life. In a way though I am kinda happy I have had it my entire life, because I do not know anything else, literally. Since I was 10 years old, I attended several diabetes camps every summer. As I got older I would see some of the teen campers loose control of their diabetes. It really made me so sad, because I knew I wanted to live as long as I could, without complications. It wasn’t until college hit that I realized what these teens were experienced. You see so many people around you trying things and eating whatever they want, you feel the temptation. I slacked off a bit my first year of college, however I started to feel super sick due to the slacking of my management. I realized what kind of road I was heading down if I didn’t clean up my act. I knew what I wanted in life and how I pictured things would go. This self realization made me realize if I didn’t take care of myself, I wouldn’t be able to live a long prosperous life.

  3. Karen
    Karen July 11, 2014 at 8:55 pm | | Reply

    I totally understand what your going through. My stepson is 12 and was diagnosed with type 1 at a year and a half. Some days are great and others frustrating. He will check his sugar and give us a totally different number or lie and say he checked it and make up a number. Its scary because I dont want anything bad to happen to him. He is older now ans wants to be out all day with his friends and eat whatever he wants but how can we trust him is he continues to lie to us? In our head it seems so easy. Just check your sugar and cover yourself for what you eat. I feel like he lies on purpose just because he can and when he gets caught he acts like he doesnt care and says he never told us the wrong number or it must not have recorded correctly.
    We have tried checking his sugar with him, making him do it in front of us and all of that and it goes well for a short time and thrn life catches up and we slack and it goes right back to thr lies and us being angry and frustrated. Hopefully as he gets older it will get a little easier but we are just taking it a day at a time and trying to be there in his face about it all when we need to be.
    thanks for listening.

    1. em
      em August 27, 2014 at 10:43 am | | Reply

      I have diabetes myself and have since I was two and I understand part of what your step son is going through.
      I know it sounds easy to just prick your finger and then to just bolus but it is far from it,
      I’m 14 and I regularly lie to my teachers about my levels and I know that it’s wrong but I only do it when I know that I will be fine doing it, I do it because I have had this disease for over a decade and know more about it than them and siting around doesn’t help me so I lie and that way I feel like I’m that tinsy tiny bit more normal which sounds really stupid but its how I feel.
      Maybe instead of getting up in his face about the lying and from what I can see trying to pretend he doesn’t have this disease why don’t you sit him down and tell him the consequences, having poor control can lead to losing limbs, losing your eyesight and to possibly dying and I think that that approach may work better because it seems to me that he just wants to act like a normal healthy kid.
      Sorry if this doesn’t help at all

  4. Page Kimball
    Page Kimball October 23, 2014 at 5:55 pm | | Reply

    I am the mother of a 15-year-old who was diagnosed in February with type I diabetes. I am also a nurse who is in grad school to become a certified registered nurse anesthetist. I remember when young diabetic patients would come into the ER and I would always wonder why would they choose to not take care of their disease. At times I would judge the parents for their lack of control over the situation. Now I am the parent with a completely defiant, non compliant diabetic teenager and I am at a total loss at what to do. She will point blank refuse to check her blood sugar, short of holding her down and pricking her finger for her, then delivering an insulin shot into her sq tissue. I don’t know what to do. I have told her the consequences of not testing. She says I am nagging.
    I’ve never been a controlling parent. In fact when she was first diagnosed I gave her a lot of freedom to check her blood sugar and trusted that when she said she had tested it, she indeed had. Then I found out she was lying. It has become an ugly game of control. I hate this. I really do hate this.
    Does anyone have any advice or help they can offer? I am so scared for her.

  5. john brooke
    john brooke November 12, 2014 at 1:11 am | | Reply

    yes i have a daughter 13 and she is just the same . i know what you are going through. we have tried to lock up all the food so she cannot eat unless we are there . which works at home . but at school her sugar levels are all over the place.The school can only do so much to help. the way we have found helps for a will is to take all her electrical things of her and her cell phone thats herts her the most also laptop. then she cannot talk to her friends.

  6. ASL
    ASL December 2, 2014 at 5:47 pm | | Reply

    I am in the same boat. 15yo son, lies about numbers, a1c high, “forgets” to bolus, sneaks food. He has a long way to go if he wants to go away to college. His endo got onto him at last appt. I can tell, he just wants to not be T1d, and my heart is broken for him. Moira I heard you talk in person about a year ago, then I was anticipating the rebellion, now we are in it. I have been looking for and thinking about a Mini camp for teens. (he won’t go to ADA camp anymore) Kind of a Boot Camp, that would encompass fitness/nutrition/education, I haven’t been able to find one, and have thought about getting one off the ground here. We have 2 University children’s centers, neither offer anything like this or JDRF. Would love to hear from others that have worked through this:) Do we nag and control to no end, or give them a little rope…?

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