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	<title>Comments on: How to Be a Good Endo, From a Patient’s POV</title>
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	<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html</link>
	<description>A gold mine of straight talk and encouragement for people living with diabetes</description>
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		<title>By: Kathy</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-390124</link>
		<dc:creator>Kathy</dc:creator>
		<pubDate>Mon, 05 Oct 2009 23:09:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-390124</guid>
		<description>Amy &amp; Scott ~

Thank you for giving a voice to many of my concerns and those of many other people with diabetes.  I would like to find a doctor and he/she doesn&#039;t even have to be an Endo, that would treat me as a human being and not someone who is going to help him/her keep the lights on in their office.

I am so tired of the doctor looking at me and pronouncing me as &#039;non compliant&#039; or &#039;challenging&#039; just because I have multiple medical problems.  Scott, you have a gift of being able to express yourself very well.  Thank you for sharing your thoughts.</description>
		<content:encoded><![CDATA[<p>Amy &amp; Scott ~</p>
<p>Thank you for giving a voice to many of my concerns and those of many other people with diabetes.  I would like to find a doctor and he/she doesn&#8217;t even have to be an Endo, that would treat me as a human being and not someone who is going to help him/her keep the lights on in their office.</p>
<p>I am so tired of the doctor looking at me and pronouncing me as &#8216;non compliant&#8217; or &#8216;challenging&#8217; just because I have multiple medical problems.  Scott, you have a gift of being able to express yourself very well.  Thank you for sharing your thoughts.</p>
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		<title>By: MelissaBL</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-387667</link>
		<dc:creator>MelissaBL</dc:creator>
		<pubDate>Thu, 01 Oct 2009 15:28:32 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-387667</guid>
		<description>Well-said, brother, well-said.

I love my endo.  This just made me want to go hug her.  She recently went through a serious diagnosis and had a doctor with a rough bedside manner - she said it made her realize what it&#039;s like to be on the other side of the stethoscope.  Maybe more of our endos need to know what it&#039;s like to be a patient.</description>
		<content:encoded><![CDATA[<p>Well-said, brother, well-said.</p>
<p>I love my endo.  This just made me want to go hug her.  She recently went through a serious diagnosis and had a doctor with a rough bedside manner &#8211; she said it made her realize what it&#8217;s like to be on the other side of the stethoscope.  Maybe more of our endos need to know what it&#8217;s like to be a patient.</p>
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		<title>By: Kim</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-387191</link>
		<dc:creator>Kim</dc:creator>
		<pubDate>Wed, 30 Sep 2009 20:08:39 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-387191</guid>
		<description>That was awesome Scott.  Having a good endo not talked about enough and when your the parent of a child with D, it&#039;s critical.  My son was dx&#039;d at the age of 2....   16 years ago!!!   We&#039;ve been at it a long time.  Last year, I was threatened with DSS (Department of Social Services) by a young, ignorant endo at Boston Children&#039;s Hospital because my 17 yr old was non-compliant and he didn&#039;t like his numbers (or attitude lol).  Needless to say, we RAN back to Joslin....</description>
		<content:encoded><![CDATA[<p>That was awesome Scott.  Having a good endo not talked about enough and when your the parent of a child with D, it&#8217;s critical.  My son was dx&#8217;d at the age of 2&#8230;.   16 years ago!!!   We&#8217;ve been at it a long time.  Last year, I was threatened with DSS (Department of Social Services) by a young, ignorant endo at Boston Children&#8217;s Hospital because my 17 yr old was non-compliant and he didn&#8217;t like his numbers (or attitude lol).  Needless to say, we RAN back to Joslin&#8230;.</p>
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		<title>By: k2</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-387107</link>
		<dc:creator>k2</dc:creator>
		<pubDate>Wed, 30 Sep 2009 16:11:32 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-387107</guid>
		<description>EXCELLENT POST!!!!!</description>
		<content:encoded><![CDATA[<p>EXCELLENT POST!!!!!</p>
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		<title>By: Kelly Rawlings</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-386270</link>
		<dc:creator>Kelly Rawlings</dc:creator>
		<pubDate>Tue, 29 Sep 2009 04:22:05 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-386270</guid>
		<description>Nice counterpoint, Scott.

I wish the American Diabetes Association and the American Association for Diabetes Educators would use your post and that of Dr. Anne Peters as the basis for, at their respective conventions, a presention/dialogue on how to make diabetes health care visits work better for both the patients and the providers. The ADA accredits diabetes education programs. What about accrediting office visits or a system for sharing meaningful blood glucose records or an effective Q&amp;A list to quickly get to the presenting problem and establish priorities for the visit?!

Every time I visit my endo and hand over my obligatory blood glucose records, whichever nurse--and it&#039;s usually a different one each time-- says something like, &quot;You get a gold star! Most people don&#039;t bring their records.&quot; That is sad. But what&#039;s even sadder is that we don&#039;t know why, exactly. 

Could it be, in part, the ongoing frustration providers and patients have with their difficult, complex, and too-often unbalanced relationship? 

I know there are many needs when it comes to diabetes awareness. Too many people don&#039;t have access to health care. Too many don&#039;t even know they have diabetes. But let&#039;s not forget the small space represented by the yearly visit to a GP or the quarterly visit to an endo. There&#039;s room for improvement there. Perhaps patients and providers can figure out how to best help each other.</description>
		<content:encoded><![CDATA[<p>Nice counterpoint, Scott.</p>
<p>I wish the American Diabetes Association and the American Association for Diabetes Educators would use your post and that of Dr. Anne Peters as the basis for, at their respective conventions, a presention/dialogue on how to make diabetes health care visits work better for both the patients and the providers. The ADA accredits diabetes education programs. What about accrediting office visits or a system for sharing meaningful blood glucose records or an effective Q&amp;A list to quickly get to the presenting problem and establish priorities for the visit?!</p>
<p>Every time I visit my endo and hand over my obligatory blood glucose records, whichever nurse&#8211;and it&#8217;s usually a different one each time&#8211; says something like, &#8220;You get a gold star! Most people don&#8217;t bring their records.&#8221; That is sad. But what&#8217;s even sadder is that we don&#8217;t know why, exactly. </p>
<p>Could it be, in part, the ongoing frustration providers and patients have with their difficult, complex, and too-often unbalanced relationship? </p>
<p>I know there are many needs when it comes to diabetes awareness. Too many people don&#8217;t have access to health care. Too many don&#8217;t even know they have diabetes. But let&#8217;s not forget the small space represented by the yearly visit to a GP or the quarterly visit to an endo. There&#8217;s room for improvement there. Perhaps patients and providers can figure out how to best help each other.</p>
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		<title>By: Rachel</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-386113</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Mon, 28 Sep 2009 21:12:54 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-386113</guid>
		<description>awesome post, Scott.  as always :)

thank you, Amy, for choosing his voice for this one...</description>
		<content:encoded><![CDATA[<p>awesome post, Scott.  as always <img src='https://www.diabetesmine.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>thank you, Amy, for choosing his voice for this one&#8230;</p>
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		<title>By: Sara my</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-386095</link>
		<dc:creator>Sara my</dc:creator>
		<pubDate>Mon, 28 Sep 2009 19:49:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-386095</guid>
		<description>Brillian post Scott!  Thank you so very much.  Great to hear others talk about difficulties with the endos of the world.  Makes me feel more comfortable in expecting more, encouraging me to demand more and to back off from thinking I&#039;m the one who is wrong, too demanding and screwed up when I don&#039;t get the help I really need and want. Thank you!</description>
		<content:encoded><![CDATA[<p>Brillian post Scott!  Thank you so very much.  Great to hear others talk about difficulties with the endos of the world.  Makes me feel more comfortable in expecting more, encouraging me to demand more and to back off from thinking I&#8217;m the one who is wrong, too demanding and screwed up when I don&#8217;t get the help I really need and want. Thank you!</p>
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		<title>By: Lauren K</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-386089</link>
		<dc:creator>Lauren K</dc:creator>
		<pubDate>Mon, 28 Sep 2009 19:27:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-386089</guid>
		<description>George, if I understand you correctly, your endocrinologist just looked at you without consulting your chart and challenged you about being a type 1 diabetic?  He mistook you for a type 2 based on sight alone???  If that&#039;s actually what happened, you should you go, and you should be furious.  If my doctor did that to me, not only would it be the last time I&#039;d see him/her, but the medical board would hear about it.  Patients are already cowed because doctors have the education and the &quot;power&quot; in the relationship -- but in reality, the patient is the one who is in charge when it comes to their own health.  

I document everything my physician says, and if he says something even mildly inaccurate, or something with which I disagree, I call him on it.  I ask him to give me references if he talks about new research, so I can look up the articles myself.  My doctor is not my &quot;friend.&quot;  I go there for expertise, not for a buddy.</description>
		<content:encoded><![CDATA[<p>George, if I understand you correctly, your endocrinologist just looked at you without consulting your chart and challenged you about being a type 1 diabetic?  He mistook you for a type 2 based on sight alone???  If that&#8217;s actually what happened, you should you go, and you should be furious.  If my doctor did that to me, not only would it be the last time I&#8217;d see him/her, but the medical board would hear about it.  Patients are already cowed because doctors have the education and the &#8220;power&#8221; in the relationship &#8212; but in reality, the patient is the one who is in charge when it comes to their own health.  </p>
<p>I document everything my physician says, and if he says something even mildly inaccurate, or something with which I disagree, I call him on it.  I ask him to give me references if he talks about new research, so I can look up the articles myself.  My doctor is not my &#8220;friend.&#8221;  I go there for expertise, not for a buddy.</p>
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		<title>By: riva</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-386079</link>
		<dc:creator>riva</dc:creator>
		<pubDate>Mon, 28 Sep 2009 18:27:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-386079</guid>
		<description>Hey Scott, thanks for going out on a limb. My perfect endo sees nothing but me when I walk in the door. She remembers a few little things about me that we&#039;ve discussed before which makes me feel like I&#039;m a real person to her not just a bunch of missed target numbers. She spends more time looking at me than her computer screen and I love Mike&#039;s two questions - asks &quot;What&#039;s working?&quot; and &quot;What&#039;s not working?&quot; She acknowledges that living with diabetes is a bear and that it&#039;s natural to have ups and downs and get sad and crazy at times. Then she helps inspire me to continue to do my best through some thoughtful words and medical science. When I leave 30 to 40 minutes later I feel like the visit was one of the best things that happened to me that week: the connection, the &quot;being seen,&quot; and the new information I take away to make me feel recharged. In fact, I like this endo so much I can&#039;t wait till my next appointment. Now all I have to do is find her! ;)</description>
		<content:encoded><![CDATA[<p>Hey Scott, thanks for going out on a limb. My perfect endo sees nothing but me when I walk in the door. She remembers a few little things about me that we&#8217;ve discussed before which makes me feel like I&#8217;m a real person to her not just a bunch of missed target numbers. She spends more time looking at me than her computer screen and I love Mike&#8217;s two questions &#8211; asks &#8220;What&#8217;s working?&#8221; and &#8220;What&#8217;s not working?&#8221; She acknowledges that living with diabetes is a bear and that it&#8217;s natural to have ups and downs and get sad and crazy at times. Then she helps inspire me to continue to do my best through some thoughtful words and medical science. When I leave 30 to 40 minutes later I feel like the visit was one of the best things that happened to me that week: the connection, the &#8220;being seen,&#8221; and the new information I take away to make me feel recharged. In fact, I like this endo so much I can&#8217;t wait till my next appointment. Now all I have to do is find her! <img src='https://www.diabetesmine.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /> </p>
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		<title>By: Michael Ratrie</title>
		<link>http://www.diabetesmine.com/2009/09/how-to-be-a-good-endo-from-a-patient%e2%80%99s-pov.html/comment-page-1#comment-386076</link>
		<dc:creator>Michael Ratrie</dc:creator>
		<pubDate>Mon, 28 Sep 2009 18:01:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=10197#comment-386076</guid>
		<description>Amy, Scott,

Thanks for this - very timely after hearing the endo&#039;s POV. A couple (few?) points.

Under the &quot;LISTEN&quot; heading, I would hope to be asked two related questions. &quot;Since you were last here, what is working well for you? More importantly, what isn&#039;t working well?&quot;

My &quot;ideal&quot; doctor would also be prepared to discuss any new management tools (CGMs?) and techniques (still waiting to hear about standard deviation) that would apply to &quot;my diabetes&quot;.

Under the &quot;ACKNOWLEDGE&quot; heading, I want my endo to celebrate the things I am doing well and to avoid talking down to me with regard to managing the beast better, and for goodness sakes let&#039;s not make the NUMBERS BAD (since it also makes me bad)!

Thanks Again - you have given food for thought (NO BOLUS REQUIRED!)

Fair Winds,
Mike</description>
		<content:encoded><![CDATA[<p>Amy, Scott,</p>
<p>Thanks for this &#8211; very timely after hearing the endo&#8217;s POV. A couple (few?) points.</p>
<p>Under the &#8220;LISTEN&#8221; heading, I would hope to be asked two related questions. &#8220;Since you were last here, what is working well for you? More importantly, what isn&#8217;t working well?&#8221;</p>
<p>My &#8220;ideal&#8221; doctor would also be prepared to discuss any new management tools (CGMs?) and techniques (still waiting to hear about standard deviation) that would apply to &#8220;my diabetes&#8221;.</p>
<p>Under the &#8220;ACKNOWLEDGE&#8221; heading, I want my endo to celebrate the things I am doing well and to avoid talking down to me with regard to managing the beast better, and for goodness sakes let&#8217;s not make the NUMBERS BAD (since it also makes me bad)!</p>
<p>Thanks Again &#8211; you have given food for thought (NO BOLUS REQUIRED!)</p>
<p>Fair Winds,<br />
Mike</p>
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