<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
		>
<channel>
	<title>Comments on: Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma</title>
	<atom:link href="http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/feed" rel="self" type="application/rss+xml" />
	<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html</link>
	<description>A gold mine of straight talk and encouragement for people living with diabetes</description>
	<lastBuildDate>Mon, 13 Feb 2012 01:28:10 +0000</lastBuildDate>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
	<generator>http://wordpress.org/?v=</generator>
<xhtml:meta xmlns:xhtml="http://www.w3.org/1999/xhtml" name="robots" content="noindex" />
	<item>
		<title>By: sentient &#187; Archive &#187; Pharma and the patient bloggger: why and how to engage – whydot pharma</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-523720</link>
		<dc:creator>sentient &#187; Archive &#187; Pharma and the patient bloggger: why and how to engage – whydot pharma</dc:creator>
		<pubDate>Mon, 04 Oct 2010 14:25:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-523720</guid>
		<description>[...] Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need their therapies to survive and obviously pharma companies need to  sell their drugs to “survive” (as a business). [...]</description>
		<content:encoded><![CDATA[<p>[...] Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need their therapies to survive and obviously pharma companies need to  sell their drugs to “survive” (as a business). [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: &#187; What a New Era of Pharma Marketing Means to (Diabetes) Patients - DiabetesMine: the all things diabetes blog</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-358125</link>
		<dc:creator>&#187; What a New Era of Pharma Marketing Means to (Diabetes) Patients - DiabetesMine: the all things diabetes blog</dc:creator>
		<pubDate>Fri, 31 Jul 2009 13:00:18 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-358125</guid>
		<description>[...] Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma  [...]</description>
		<content:encoded><![CDATA[<p>[...] Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma  [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Pharma and the patient bloggger: why and how to engage &#8211; whydot pharma &#171; Sentient Interactive</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-357218</link>
		<dc:creator>Pharma and the patient bloggger: why and how to engage &#8211; whydot pharma &#171; Sentient Interactive</dc:creator>
		<pubDate>Wed, 29 Jul 2009 07:04:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-357218</guid>
		<description>[...] Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need their therapies to survive and obviously pharma companies need to  sell their drugs to “survive” (as a business). [...]</description>
		<content:encoded><![CDATA[<p>[...] Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need their therapies to survive and obviously pharma companies need to  sell their drugs to “survive” (as a business). [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: &#187; Patient-bloggers at BlogHer &#8216;09. - DiabetesMine: the all things diabetes blog</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-356908</link>
		<dc:creator>&#187; Patient-bloggers at BlogHer &#8216;09. - DiabetesMine: the all things diabetes blog</dc:creator>
		<pubDate>Tue, 28 Jul 2009 13:46:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-356908</guid>
		<description>[...] Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma  [...]</description>
		<content:encoded><![CDATA[<p>[...] Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma  [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Pharma and the patient bloggger: why and how to engage - whydot pharma</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-356728</link>
		<dc:creator>Pharma and the patient bloggger: why and how to engage - whydot pharma</dc:creator>
		<pubDate>Mon, 27 Jul 2009 20:48:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-356728</guid>
		<description>[...] bloggers to collaborate? What is in it for the patient? What is in it for pharma?  Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need [...]</description>
		<content:encoded><![CDATA[<p>[...] bloggers to collaborate? What is in it for the patient? What is in it for pharma?  Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Kevin McMahon</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-355354</link>
		<dc:creator>Kevin McMahon</dc:creator>
		<pubDate>Thu, 23 Jul 2009 00:59:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-355354</guid>
		<description>If you&#039;ve ever wanted to watch what happens at a large camp for kids with type 1 diabetes but haven&#039;t found the time to volunteer your time yet (hint: they need you and they operate all over the country) keep up to date on the happenings at Texas Lions Camp via the medical director&#039;s tweets at http://twitter.com/Dr_Steve_Ponder and his blog posts at http://challengediabetes.com</description>
		<content:encoded><![CDATA[<p>If you&#8217;ve ever wanted to watch what happens at a large camp for kids with type 1 diabetes but haven&#8217;t found the time to volunteer your time yet (hint: they need you and they operate all over the country) keep up to date on the happenings at Texas Lions Camp via the medical director&#8217;s tweets at <a href="http://twitter.com/Dr_Steve_Ponder" rel="nofollow">http://twitter.com/Dr_Steve_Ponder</a> and his blog posts at <a href="http://challengediabetes.com" rel="nofollow">http://challengediabetes.com</a></p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Mayank Dhingra</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-355191</link>
		<dc:creator>Mayank Dhingra</dc:creator>
		<pubDate>Wed, 22 Jul 2009 07:47:40 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-355191</guid>
		<description>Nice post and I particularly liked that chirp re-tweet cartoon :)</description>
		<content:encoded><![CDATA[<p>Nice post and I particularly liked that chirp re-tweet cartoon <img src='https://www.diabetesmine.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
]]></content:encoded>
	</item>
	<item>
		<title>By: 1001 Remarkable Pharma People to Follow on Twitter</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-355053</link>
		<dc:creator>1001 Remarkable Pharma People to Follow on Twitter</dc:creator>
		<pubDate>Tue, 21 Jul 2009 18:04:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-355053</guid>
		<description>[...]  Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma  (diabetesmine.com) [...]</description>
		<content:encoded><![CDATA[<p>[...]  Pharma on Twitter and Other Social Media: the ePatient&#8217;s Dilemma  (diabetesmine.com) [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Lee Ann Thill</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-355045</link>
		<dc:creator>Lee Ann Thill</dc:creator>
		<pubDate>Tue, 21 Jul 2009 17:13:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-355045</guid>
		<description>Honestly, about 15 years ago, when I started to really understand my relationship with health insurance and pharma companies, my perception of the relationship between me and them has often been that it&#039;s more parasitic.  I get to live and I get to pay an awfully high price to do that, and they get fat paychecks and big fancy houses.

The true nature of the relationship from a more objective standpoint is obviously more complex, but that&#039;s how it *feels*.  I&#039;m someone who&#039;s often driven more by how I feel than logic and fact (it&#039;s an admitted character flaw) so it&#039;s kind of hard to not feel a little bitter.  In light of my perception of the relationship, as skewed as that view might be, I think it&#039;s OK for us to &#039;dine on their dime&#039;.  I can&#039;t speak for the rest of the D-community, but they can&#039;t buy me because they&#039;ve already drained my pockets and to some extent, my morale.

I hope the summit and anything that comes of it ultimately empowers us rather than continues this feeling of being at their mercy (I&#039;m fairly certain I&#039;m not alone in feeling that we are), and that right there feels like a good reason to participate.  We need a paradigm shift, and I hope this sparks one.  Since they have the resources to get it started, I hope we can take advantage of the opportunity.</description>
		<content:encoded><![CDATA[<p>Honestly, about 15 years ago, when I started to really understand my relationship with health insurance and pharma companies, my perception of the relationship between me and them has often been that it&#8217;s more parasitic.  I get to live and I get to pay an awfully high price to do that, and they get fat paychecks and big fancy houses.</p>
<p>The true nature of the relationship from a more objective standpoint is obviously more complex, but that&#8217;s how it *feels*.  I&#8217;m someone who&#8217;s often driven more by how I feel than logic and fact (it&#8217;s an admitted character flaw) so it&#8217;s kind of hard to not feel a little bitter.  In light of my perception of the relationship, as skewed as that view might be, I think it&#8217;s OK for us to &#8216;dine on their dime&#8217;.  I can&#8217;t speak for the rest of the D-community, but they can&#8217;t buy me because they&#8217;ve already drained my pockets and to some extent, my morale.</p>
<p>I hope the summit and anything that comes of it ultimately empowers us rather than continues this feeling of being at their mercy (I&#8217;m fairly certain I&#8217;m not alone in feeling that we are), and that right there feels like a good reason to participate.  We need a paradigm shift, and I hope this sparks one.  Since they have the resources to get it started, I hope we can take advantage of the opportunity.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: k2</title>
		<link>http://www.diabetesmine.com/2009/07/pharma-on-twitter-and-other-social-media-the-epatients-dilemma.html/comment-page-1#comment-355022</link>
		<dc:creator>k2</dc:creator>
		<pubDate>Tue, 21 Jul 2009 14:37:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.diabetesmine.com/?p=9002#comment-355022</guid>
		<description>Amy-
Excellent post on every level!
I&#039;m a &quot;Tweep&quot; and love the social connection, but dislike the fact that I am continually bombarded with spam and advertising, especially in the &quot;you can cure your diabetes in 30 days or less&quot; arena. 

And your right, it is &quot;both a &quot;fine line/and a symbiotic relationship between patient bloggers and Pharma companies.&quot; I feel that if Pharma is willing to dialogue and listen to what real patients have to say - be it positive or negative, substantial changes can be made to benefit the patient in the long run. 

As a consumer, a patient and Patient Blogger, I respect any company who listens to what their customers/patients wants and needs are, and are also willing to hear and acknowledge both the patients likes AND dislikes. 

I think it&#039;s commendable that Roche took the Social Media initiative by the horns and am very much looking forward to the next few days of discussions! 
Kelly K</description>
		<content:encoded><![CDATA[<p>Amy-<br />
Excellent post on every level!<br />
I&#8217;m a &#8220;Tweep&#8221; and love the social connection, but dislike the fact that I am continually bombarded with spam and advertising, especially in the &#8220;you can cure your diabetes in 30 days or less&#8221; arena. </p>
<p>And your right, it is &#8220;both a &#8220;fine line/and a symbiotic relationship between patient bloggers and Pharma companies.&#8221; I feel that if Pharma is willing to dialogue and listen to what real patients have to say &#8211; be it positive or negative, substantial changes can be made to benefit the patient in the long run. </p>
<p>As a consumer, a patient and Patient Blogger, I respect any company who listens to what their customers/patients wants and needs are, and are also willing to hear and acknowledge both the patients likes AND dislikes. </p>
<p>I think it&#8217;s commendable that Roche took the Social Media initiative by the horns and am very much looking forward to the next few days of discussions!<br />
Kelly K</p>
]]></content:encoded>
	</item>
</channel>
</rss>

