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11 Responses

  1. Chris Bishop
    Chris Bishop July 21, 2009 at 7:00 am | | Reply

    Great Post Amy. I am very interested to see what comes of this summit tomorrow and Thursday. I have positive hopes but there is always that doubt factor because we are dealing with the Big Pharma. They may be throwing us a bone but we all know what their ultimate goal is:

    To make money. Lets hope that doesn’t dominate this summit. Looking forward to finally meeting you in person.

  2. k2
    k2 July 21, 2009 at 7:37 am | | Reply

    Amy-
    Excellent post on every level!
    I’m a “Tweep” and love the social connection, but dislike the fact that I am continually bombarded with spam and advertising, especially in the “you can cure your diabetes in 30 days or less” arena.

    And your right, it is “both a “fine line/and a symbiotic relationship between patient bloggers and Pharma companies.” I feel that if Pharma is willing to dialogue and listen to what real patients have to say – be it positive or negative, substantial changes can be made to benefit the patient in the long run.

    As a consumer, a patient and Patient Blogger, I respect any company who listens to what their customers/patients wants and needs are, and are also willing to hear and acknowledge both the patients likes AND dislikes.

    I think it’s commendable that Roche took the Social Media initiative by the horns and am very much looking forward to the next few days of discussions!
    Kelly K

  3. Lee Ann Thill
    Lee Ann Thill July 21, 2009 at 10:13 am | | Reply

    Honestly, about 15 years ago, when I started to really understand my relationship with health insurance and pharma companies, my perception of the relationship between me and them has often been that it’s more parasitic. I get to live and I get to pay an awfully high price to do that, and they get fat paychecks and big fancy houses.

    The true nature of the relationship from a more objective standpoint is obviously more complex, but that’s how it *feels*. I’m someone who’s often driven more by how I feel than logic and fact (it’s an admitted character flaw) so it’s kind of hard to not feel a little bitter. In light of my perception of the relationship, as skewed as that view might be, I think it’s OK for us to ‘dine on their dime’. I can’t speak for the rest of the D-community, but they can’t buy me because they’ve already drained my pockets and to some extent, my morale.

    I hope the summit and anything that comes of it ultimately empowers us rather than continues this feeling of being at their mercy (I’m fairly certain I’m not alone in feeling that we are), and that right there feels like a good reason to participate. We need a paradigm shift, and I hope this sparks one. Since they have the resources to get it started, I hope we can take advantage of the opportunity.

  4. 1001 Remarkable Pharma People to Follow on Twitter

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  5. Mayank Dhingra
    Mayank Dhingra July 22, 2009 at 12:47 am | | Reply

    Nice post and I particularly liked that chirp re-tweet cartoon :)

  6. Kevin McMahon
    Kevin McMahon July 22, 2009 at 5:59 pm | | Reply

    If you’ve ever wanted to watch what happens at a large camp for kids with type 1 diabetes but haven’t found the time to volunteer your time yet (hint: they need you and they operate all over the country) keep up to date on the happenings at Texas Lions Camp via the medical director’s tweets at http://twitter.com/Dr_Steve_Ponder and his blog posts at http://challengediabetes.com

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    [...] Recently, Amy Tenderich mentioned something that is very true: we depend on each other. People with chronic conditions need their therapies to survive and obviously pharma companies need to  sell their drugs to “survive” (as a business). [...]

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