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9 Responses

  1. tmana
    tmana April 28, 2009 at 6:43 am | | Reply

    Now, given that many doctors are too busy to know which health sites have the real deal, which sell snake oil, and which serve up unaged cow droppings (and I’ve seen some real BS mixed in with the gems on some of those “for doctors in…” portals), who will be the professionals’ equivalent of Health News Review — or the patient-and-doctor-trusted source of news and information on a specific health condition?

  2. Nikki
    Nikki April 28, 2009 at 10:04 am | | Reply

    Your blog noted the serious concern you have for medical research and cures. I encourage you to visit http://www.specterforthecure.com to see how together, we can unstrangle the cure and medical innovation with Sen. Arlen Specter’s help.

  3. Cindy Throop, MSW
    Cindy Throop, MSW April 28, 2009 at 11:23 am | | Reply

    Thanks for the great write-up. I do want to clarify that, at least in my opinion, Ix (information therapy) is not always a top-down, doctor-prescribed sort of thing. Ix involves getting the right person the right information at the right time in order to make informed medical decisions. For example…

    Diabetes runs in my family and I have always had issues with blood sugar. During the conference, I almost passed out several times. The people who were with me at these times (the right times) to help me the most were a coworker with no medical background, an MD, and a health policy wonk I know through Twitter. Each of these people helped me realize what was going on by asking questions and sharing information. It was the health policy wonk who followed up with me over the weekend to make sure I had someone keeping an eye on me, ate properly, didn’t drive, etc.

    The wonk is diabetic. She gave me exactly the right (evidence-based) information at the right times in order for me to mentally process what was going on over the course of several days. I thank her the most for making sure I am in communication with my PCP this week to get evaluated for diabetes.

    I prefer to see Ix as being consistent with the information people need as they live their lives. Most of us are lucky enough to spend only a minute fraction of our lives in an actual health care setting. Ix is also for every day life. It’s something we can help each other with, even if we don’t have MD behind our names.

  4. Margo Corbett
    Margo Corbett April 28, 2009 at 7:27 pm | | Reply

    You are so very right – “True learning comes from personal involvement” as does True empowerment. I use the same confusious saying at the beginning of my patient school. I firmly believe that patients need to go beyond capturing their info in a personal health record – they do need to do it, but more important than capturing the info is learning how to use that info when they see a healthcare provider.

    They need to learn how to help the doc connect the pieces of their story and help them think & consider alternatives. They need to have their medical record on their lap (set up in a way that they have fingertip access to their info) when they talk w/ the doc, not in a computer hoping the doc will look at it.

    Each patient/caregiver needs to be intimately knowledgeable with the details of his/her or a loved one’s health and know what information to provide and how to provide it in the right way at the right time. He/she also needs to know the right questions to ask in the right way at the right time.

    All of the systems and programs being developed because patients don’t know how to be patients will never take the place of savvy patients/caregivers. The medical system will never be fixed until patients do their part.

  5. Dr. Charles Martin
    Dr. Charles Martin April 29, 2009 at 6:50 pm | | Reply

    You are correct that personal involvement with a patient and providing him or her the detailed information they need to be healthier is a critical part of health care. That’s one of the reasons why I began my blog at http://www.dentistryfordiabetics.com/blog — to provide people with diabetes information on the links between dental health and diabetes management. We write extensively about diabetes and its impact on lives and also about the importance of good dental care and how that can aid people with diabetes in their metabolic control.

    Charles Martin, DDS
    Founder, Dentistry for Diabetics

  6. diabetesnotes
    diabetesnotes May 6, 2009 at 7:49 am | | Reply

    very good idea….nice strategy for treating illnees

  7. Social media: It’s the end of adherence as we know it - whydot pharma

    [...] the value of treatment adherence. Amy Tenderich, writer of the famous blog diabetesmine calls this treating illness with information: “Traditionally, a “prescription” meant a piece of paper that got you a vial of pills or [...]

  8. Fitness
    Fitness May 13, 2009 at 10:50 am | | Reply

    I keep fit with milk everyday.

  9. RebeccaIB35
    RebeccaIB35 February 18, 2010 at 9:01 pm | | Reply

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