42 Responses

  1. Bryan Ritchie
    Bryan Ritchie March 11, 2009 at 6:42 am | | Reply

    I’m right there with you. New statin being prescribed and I just hate it. They say Type 1s will benefit though. Just not sure…

    1. Jim
      Jim June 12, 2014 at 1:33 am | | Reply

      My dilema, aged 52 , diagnosed with type 1 diabetes, fit healthy, can’t remeber the last time I was off work. Hey ho, adjusting to taking insulin, no issues, blood sugar in check, but also prescribed statins. Body generally aches and my balance is poor compared to what it was, played a lot of golf and now find it nigh on impossible, any thoughts?

  2. ralph
    ralph March 11, 2009 at 7:00 am | | Reply

    Docs have been suggesting same to me for years. I am 64 and am nearing 60 years as a type one and I feel great . I do not like pills. I exercise lots.

  3. Rob
    Rob March 11, 2009 at 7:03 am | | Reply

    I was on Lipitor for a few years when my diet was much worse and I was erratic with my excercise regime. At that time, the statin helped but when I fixed my diet and excercise, my cholesterol went to nearly 0 and I started having some really odd neurological issues.

    I haven’t ever had a doc tell me that too little cholesterol is a problem, but apparently it is.

  4. Jules
    Jules March 11, 2009 at 7:05 am | | Reply

    I’m an adult onset Type 1′er and my doc has me on an ace inhibitor that’s been around quite awhile. It is supposed to protect the kidneys and has also shown protection against pancreatic cancer. Any one else taking Lisonopral? My cholesterol and tri-glicerides are very good by the way.

  5. Jill
    Jill March 11, 2009 at 7:28 am | | Reply

    Since I am just waiting to hear about how my father-in-law, an 80 year old T2 diabetic since the age of 50, made it through the night after quadruple bypass surgery yesterday (he was blocked 100%, 99%, and 70% with necrotic heart tissue), I am taking the risks that these statins may expose me to in order to preserve my heart health. I, too, am over 40 (midway through about now), and have low HDL (very low), high LDL, and high triglycerides, no matter how much exercise and carb counting I do.

    I am on 20 mg of Zocor, and I am on 10 mg of Lisinopril for HBP, too.

    I do take CoQ-10 (to replace the good cholesterol the statins rid my body of) and some other vitamin supplements.

    My endo said I’ll have to be on this for life.

    Although my father-in-law has lived a very long life and a good one at that, too, I want to make sure I’m doing everything possible to make sure my diabetes isn’t robbing me of my heart either.

    This diabetic is for any help I can get, medically, naturally, spiritually, and mentally!

  6. tmana
    tmana March 11, 2009 at 7:29 am | | Reply

    I’ve been hearing that statins may also be responsible for Alzheimer’s disease, or earlier onset of geriatric dementia than usual.

    There are some other interesting contradictions in medical research, including that there are severe risks if LDL drops below 50 (my doctor says she’d be concerned about anyone with LDL below 70), but there’s a school of medical thought which says PWD should never have LDL over 70.

    IMO, a healthy diet and supportive supplementation (look at reducing trans fats and saturated fats, and adding in either a fish oil capsule, flax seed, or flaxseed oil as a dietary supplement) is likely to be more helpful than taking statins.

  7. Jolie
    Jolie March 11, 2009 at 8:28 am | | Reply

    Since my Type 2 dx in October, 2002 at age 37 (which was discovered as a result of what the docs called a mild heart event…wasn’t mild to me since I ended up with 2 stents in the same 100% blocked artery), I was prescribed 10mg Crestor every other day as a precautionary measure. My cholesterol was not high at the time blockage was found, nor has it been since…except for about 4 weeks AFTER I started a low-carb plan (ala Bernstein) a few years back and again last year when I was doing a low-fat, low-sodium, ADA approved 1500 calorie diet (at which time my doc told me to start taking the Crestor every day instead of every other day). Against my GP’s wishes, I have been following a restricted carb diet since January 1, 2009. I have a cardio appt on the 25th so I’ll find out where I stand at that point. My hope is that due to the restricted carb, MDI and added exercise that I’ve been doing since the 1st, I’ll be able to get off the statin, but realistically, I don’t know if that will be possible due to my history of blockage. Really, I’m just confused and I worry, because I really don’t know what ANY of the meds I take are doing to my body.

  8. Kathleen Weaver
    Kathleen Weaver March 11, 2009 at 8:40 am | | Reply

    Sounds like denial to me.

    I’ve been on Statins forever, have never had any side effects. In fact, I’m on Vitorin (combo of Zetia / Lipidor) with best numbers ever.

    Of course, everyone on my dad’s side of the family have died of cardiovascular complications and I can’t tell you which is worse — stroke or congestive heart failure but not on willingly signing up for them.

  9. riva
    riva March 11, 2009 at 8:44 am | | Reply

    I have almost the same situation as you, Amy. My GP’s been at me for years to go on a statin because my LDL is just over 100. But then my HDL is also just over 100 and my endo said, I don’t need it.Those who go by the HDL/LDL ratio, and this is 1:1, would say I/you don’t need a statin.

    Sad to say, my excellent diet and hour of daily exercise doesn’t lower my LDL, it’s genetic. I’ve refused thus far because I don’t want to take another pill and while they’re touting statins as a medical miracle, they haven’t been around long enough to know the long-term effects.

  10. Reed
    Reed March 11, 2009 at 8:54 am | | Reply

    I was in a similar situation several years ago. My HDL was high (a good thing!), but my LDL numbers were growing. My endo and PCP strongly encouraged me to get my LDL below 100. So, a couple of years ago, I started 10mg of Lipitor. Results … HDL still high, LDL well below 100. No weight gain or other side effects. If you trust and respect your endo, I’d go for it.

  11. Anne
    Anne March 11, 2009 at 8:58 am | | Reply

    Have you made any other changes to lower your LDL already? I imagine you already have a healthy diet and exercise regularly, but perhaps there are still ways to tweak you diet that would help? Personally I would avoid taking a pill also if I could. My cholesterol profile improved when I started doing triathlons and eating oatmeal–I started both around the same time, so it’s hard to know which one should get the credit. (I guess oatmeal contains gluten, though?) I also have high HDL, almost as high as my LDL.

  12. Lora
    Lora March 11, 2009 at 9:42 am | | Reply

    My endo started me on Lipitor (not covered by insurance), and I recently switched to Lovastatin (covered). None of my cholesterol readings were terrible, but they weren’t as fantastic as my doctor would have liked, given my age (40), my family history (just about everyone has a heart issue), and my Type 1. As of my recent doctor visit about a month ago, my cholesterol is in the “excellent” range, and everyone is happy, including me, who would rather not have the same fatal heart attack my grandmother had. I watch my diet, I exercise, and no, I would rather not be taking yet another pill, but sometimes, you need a little help to make sure health stays on your side.

  13. nonegiven
    nonegiven March 11, 2009 at 10:11 am | | Reply

    I’ll never take a statin. There is no evidence they help anyone who hasn’t already been diagnosed with heart disease. Actually men between 55-65 who already have heart disease. There is now evidence they only help people who have elevated hs-CRP, and that’s marginal. There is no evidence that lowering cholesterol does anything for women.

  14. phyl247
    phyl247 March 11, 2009 at 12:24 pm | | Reply

    There are 100′s of scientific studies that have been done on AFA and our product StemEnhance. There are also 100′s of scientific papers on Adult Stem Cell therapy. I have listed quite a few on my blog that you can read at You can also find the book over at that Christian Drapeau wrote. It is called “The Stem Cell Theory of Renewal” Take a look if you would like to talk feel free to email or call me anytime 877-696-8581

  15. Brent
    Brent March 11, 2009 at 1:23 pm | | Reply

    Wow, lots of posts on this one.

    Because of my father’s heart disease, they recently (3 mos) put me on Simvastatin. I’ve had absolutely no side effects at all. The only downside is that I discovered on my last refill that one should avoid grapefruit and grapefruit products when on Simvastatin, and I love graptefruit in the morning.

    Oh well, it’s better than a myocardial infarction :)

  16. McHarris
    McHarris March 11, 2009 at 1:52 pm | | Reply

    Statins have serious side effects and I would kindly suggest that you learn more about these drugs. In many many cases there is no evidence that supports the statement they prevent heart attack. Numbers are just that! statistics manipulted in order to bemuse the general public

    information at
    and also at

    Pharmaceuticals are addictive and dangerous
    There are NO long term studies showing the cross reactions of all the various medications we have been prescribed.

  17. Jules
    Jules March 11, 2009 at 3:42 pm | | Reply

    This is off-topic but I was wondering if anyone knows why OmniPod stock has tanked lately? I’m really worried…I love my Pod and would hate to see anything happen to them.

  18. Dee
    Dee March 11, 2009 at 3:54 pm | | Reply

    In Nov. 2007 total cholesterol just over 200 for a year ratio LDL/HDL not good, type 2 since 2000, began Vytorin. 3 days later quarterly blood test,
    cholesterol cut in half and ratio fine, no side effects and stayed that way.
    Genetically high cholesterol levels, brother not diabetic, stented Nov.
    2008 so let’s applaud quarterly blood test. It was possible to lower
    cholesterol to 160 by no red meat, mostly fish, lots of veggies,
    diet and biking to work. However the current total cholesterol 128 not
    likely by diet alone. Grandpa died of Type 2 because no meds at that time.
    Grateful for the meds.

  19. pamela
    pamela March 11, 2009 at 4:25 pm | | Reply

    Statins – I think they help!
    Statins – I’d never take them!
    Wow we’re really conflicted over this one! And with good reason: there’s so much conflicting “evidence”!

    So here’s my reason for going back on statins after stopping abt 4 years ago: 1. I trust my endo (see Reed’s comment above), 2. dad (non-dbx) has heart disease, 3. No side effects when previously taken, 4. I have low HDL despite an excellent diet (lacto-ovo vegetarian, whole grains, lots of fresh produce, fish oil, CoQ10, flax) – it’s genetic.

    I asked my endo to test my hsCRP level after reading abt it HERE (possible indicator for high risk of a cardio event). She said: But you’re ALREADY at high risk! I understand that adding pills to an onerous regimen can be a drag, and scary re: liver damage & other side effects. But from my perspective, that’s not what’s gonna do me/us in. It’s the long-term impacts of living with a physically challenging/devastating illness. So I’m going to bank on statins (even though I know that Big Pharm has me/us in their pocket on this one!)

    Good luck, Amy. You can always revisit in 6 months, reviewing the impact on your labs and how you feel. I’m guessing from this thread that there are as many different perspectives on this as there are medical people & ill people.

  20. Lee Ann Thill
    Lee Ann Thill March 11, 2009 at 9:18 pm | | Reply

    I’ve been taking Lipitor for several years now without any issues. Just had labs done, and my total cholesterol was 104. I obviously have no way of knowing if it’s benefiting me beyond that, but I haven’t had problems, and at the very least, it’s brought my cholesterol down (it had been in the low 200′s prior to starting treatment), so I’m pleased with it.

    On the one hand, I’d rather not take pills if it’s not necessary, but on the other hand (as you said, there’s always another hand ;) ), for me, it’s a small price to pay if it means keeping me healthier longer. An ounce of prevention…

  21. Jim D
    Jim D March 11, 2009 at 10:24 pm | | Reply

    I’m a type-1 (for 47 years now) and I’ve been on statins for about 3 years now and have experienced some of the side effects (including some of the most recently published ones).
    I just (3 days ago) stopped taking them and am waiting to see (after the expected reversal spikes and stuff ) how it will make me feel…TBD.
    There were just too many coincidental things going on with my body that i felt it had to be at least partially caused by the statins.
    That plus the doctor could guarantee that I would live to a predetermined age (say, like 90 years old) and the statins would guarantee I’d live to be 93 years old if I took them. It wasn’t worth a decreased quality of life without some guaranteed outcome.

  22. pking
    pking March 11, 2009 at 11:10 pm | | Reply

    I’ve been taking Pravastatin (20mg) for about 1 year and haven’t had any noticeable side effects. My situation sounds relatively similar to Amy’s — nothing really bad going on, but my LDL level was creeping up above normal. I’ve been vegetarian for more than 10 years, but my diet still includes cheeses and other fatty foods. My family has a history of cardiovascular disease, which coupled with diabetes makes me feel like I’m at even higher risk. That outweighs my preference for avoiding taking pills.

    There are a few comments in this thread that sound either like trolls or people who are a couple standard deviations outside of “normal”. I’d caution anyone from taking any medical action based on info from “freewebs” or other sites of that ilk. Taking medical advice from people who aren’t doctors on the internet seems like a double negative to me.

  23. Dawn
    Dawn March 12, 2009 at 12:19 am | | Reply

    My doctor also asked me if I’d be willing to take statins, but before I said yes he said there was a simple questionaire one could fill out to gauge the statisical probability of having a stroke or heart attack, given my medical history. (I have a similar cholesteral picture to yours–high good and borderline bad). Well, it took all of 45 seconds to do this on the computer, and voila–there would be no significant advantage for me to take statins. So I don’t.

    One less medical dependency, hooray! I wonder why others haven’t heard about this from their doctors???

  24. JohnC
    JohnC March 12, 2009 at 2:16 am | | Reply

    I was put on Simvastatin and it played havoc with my blood glucose levels so my consultant took me off them. I now have a daily cholesterol reducing yogurt drink – Benecol – and that combined with (fairly regular) exercise and a (mostly) healthy diet has kept me in the normal range, so far.

  25. M
    M March 12, 2009 at 6:10 am | | Reply

    I passed on the statins – my cholesterol numbers are all good, so I don’t see the point. Frankly, I’m suspicious of a drug that is marketed so heavily to basically everyone.

  26. ChrisK
    ChrisK March 12, 2009 at 8:16 am | | Reply

    Good timing on the post. I was just at the endo yesterday and she kind of surprised me with the idea of taking a statin and ACE inhibitor. Im 29 and type 1 for 15 yrs. All of my lab work is mostly normal (very slightly out of range vitamin D and bilirubin). My total cholesterol is 130 (hdl 65, ldl 55) so no immediate need, but she mentioned that it might be good for it’s preventative qualities.

    I’m certainly open to the idea of taking more “preventative” medicine, but I’m also very skeptical of “Big Pharma.” I tried googling some of the studies showing how taking a statin would beneficial to an otherwise healthy type1 but didn’t see any direct correlation in anything I found. Maybe I’m missing something.

    As for the ACE inhibitor, i think I’ll probably avoid that one cause I already have some issues with low blood pressure and feeling faint when standing.

  27. Bill Halper
    Bill Halper March 12, 2009 at 2:13 pm | | Reply

    I basically trust my endo to balance the risks/benefits of taking Statins. I’ve been on Lipitor for a couple of years now and haven’t had any side effects; Simvastatin, on the other hand, gave me all kinds of strange muscle aches.

    Incidentally, the price for Sinvastatin varies tremendously from place to place. When I researched it a number of years ago, Walgreens was charging almost 10x Costco’s price.

  28. Sarah
    Sarah March 13, 2009 at 6:13 am | | Reply

    I recently came across your blog and have been reading along. I thought I would leave my first comment. I don’t know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.


  29. Roger Curtis
    Roger Curtis March 13, 2009 at 7:47 am | | Reply

    Hi Amy,

    I”d be very cautious – I’ve been Type 1 45 years now under pretty good control.

    My endo put me on Pravacol 10 or 20 mg maybe 4-5 years ago, then
    came up with the (bright) idea to put me on Lipitor (or later Simvatsatin) 80 mg! to get the maximum benifit about 3 years ago.

    This did drive my LDL down to a range of ~59-85, but last November I began to have trouble walking, weakness in my legs (stairs without railings = trecherous), arms, hands, mouth/jaw & a wandering eye too boot.

    I’ve been off of statins 6 weeks, and on CoQ10 (900 mg/day) for 5 weeks. If at my worst I was a 1-1.5 out of 10, I’m maybe at 3.5 now with a long way to go. (A U of Wisconsin study gives a mean recovery time of 2.3 months, standard deviation 3 mo.). I see a neurologist next wk to hopefully get a firm diagnois.

    It’s not fun at all, I’ll keep everyone posted as I know more. At the least if you are on statins take CoQ10 which may mitigate the symptoms).

  30. Dave
    Dave March 13, 2009 at 8:57 am | | Reply

    My doctor wants me on Zocor. Thinks I am crazy for not going on it.

    Here is what my research found: It leaches CQ10 out of your body. It is over promoted as to what it will do for your heart.

    Diabetics leach CQ10 as a normal part of their disease. So you should have it supplemented anyway. CQ10 turns to Ubiquinol in the body. Ubiquinol is what you should take to restore the levels in your body as it is much more effective.

    I would recommend fish oil tablets instead. Putting fish oil tablets in your diet will have almost the same effect as the statins without the side effects.

    The Doctors were told by the pharmacy industry that half the former levels of cholesterol were the guideline for taking the statins. As a result they are recommending almost everyone with high normal levels onto the statins.

    If ever there was a clear indication that the Docs are taking the money grabbing pharmacy industry too seriously this would have to be it.

    It doesn’t mean you shouldn’t listen to them. It means take everything they say with a grain of salt. What do they profit from ordering you on drugs of any kind? What is the kickback if any, if they order people that do not need these drugs on to them?

    Docs do not have the time or energy to research a lot of this stuff themselves. If you had a 50 to 60 hour work week would you? So they are by necessity at the mercy of the pharmacy industry that offers a lot of free education to the Docs. I recommend you take anything they say and research it yourself before you go on anything that they say.

    That said, we are all individuals with individual conditions and needs. No one can say what you need or do not need but you. Ultimately you are the one that has to make the decision. You are the one that will have the pain if you are wrong. I would certainly research before I let them put me on anything.

  31. mark
    mark March 13, 2009 at 10:44 am | | Reply

    I am a 48 year old Type II, diagnosed since 2006.

    I was put on Zettia and began having bouts of forgetfullness, and the inability to come up with appropriate vocabulary for the situation. Quite disturbing. I even became turned around direction-wise driving on the way home from work. I was immediately taken off the medicine and have had no such problems since.

    I am not trying to tell anyone not to take any specifice type of medicine. Medicines do not have the same effect on everyone. Even medicines that you have been taking a long time. Be aware, and do not be afraid to talk with your medical provider.

  32. Kathy
    Kathy March 13, 2009 at 1:23 pm | | Reply

    I am type 2 diagnosed in 2003. I took Crestor without a problem for 3 years. Then I awoke one morning with arms and legs that ached so bad I could barely walk and I had my husband take me to the Urgent Care clinic. The Doctor there did a bunch of blood work and couldn’t find anything ‘wrong’. The muscle pain continued for over a week during which time I was almost bedridden. Finally I got an appointment with my own Doctor and he took me off Crestor immediately. It took me almost 3 months before I did not have any more muscle pain.

    Fast forward a few years and my current doctor strongly advised me to start taking a statin again as my total cholesterol was not good. However along with the advice to take the statin drug, he also told me to take CoQ10 at the same time I take the statin. So far I have not had any muscle pains but IF I do, you can bet I will stop the statin and I will never, ever take another one.

  33. Christine
    Christine March 13, 2009 at 1:57 pm | | Reply

    After taking Lipitor for 6 years, I no longer take it. I have experienced major side effects from the drug. After running a bunch of tests two years ago (testing for MS, Lupus, PAD, Thryroid, Anemia), my endo finally suggested I stop taking Lipitor for 2 weeks. After stopping, I improved within 3 days. No muscle aches, extreme fatigue, weakness of the muscles. All gone and I was able to exercise more again. Seems the more I exercised while taking this drug, the worse the symptoms became. We tried another statin and the symptoms came back within a week. So I am permanantly off of statins. Since last January, I have lost 45+ pounds and still loosing through exercise and diet. I feel great. Am currently on Zetia to control my cholestrol. Last cholesterol/triglicerite test was fine. Hope you do better than me with this drug. And I am currently 50 years old, T1 for 20 years.

  34. Judith Catterall
    Judith Catterall March 13, 2009 at 5:53 pm | | Reply

    Be wary. Be very wary! I do not trust statins and I certainly do not trust Big Pharma where such a big money-maker is involved. If your #s are okay, don’t mess with it……

  35. Lisa
    Lisa March 13, 2009 at 6:53 pm | | Reply

    My grandmother (who is now 92-years old) got me taking Niacin several years ago. She had been on a statin drug and had tremendous weakness and dizziness as a result. She got off of the statin and started taking Niacin instead – did wonders for her. My LDL and HDL are well within limits now. BTW – the flush-free version didn’t work for us – only the timed release. It’s a much safer and cheaper alternative for both of us. Anyone else have similar results?

  36. Doug
    Doug March 14, 2009 at 8:48 pm | | Reply

    When diagnosed with Type 2, I was very much against taking a statin (based on what I read on the Internet) and worked hard to reduce my LDL with diet and exercise. Although I made some progress I could not get below 100 on LDL. I now take Simvastatin 20 mg with no problems. My doctor suggested taking 40 mg but I had done my homework and knew the strengths offered and so I asked about trying the lower dose first. He agreed. I have had none of the side effects that I had so feared and my LDL is now where it should be. (and I eat better too now!) BG control is very good, a1c of 5.1 to 5.4.

  37. Alice
    Alice March 15, 2009 at 7:29 am | | Reply

    I’m very distrustful of Statins. I’m type 1, 32 years duration and have decent cholesterol numbers without statins. (Very high HDL, borderline LDL).My Dad is a type 2 who used to take lipitor. He had a horrendous side effect . . . it broke down his muscles. He just got out of a week in the hospital because he suddenly (over the course of about 3 days) lost the ability to walk completely. His muscle breakdown had gotten to the point where the muscles were releasing a protein that had started to damage his kidneys. I can only guess that if he’s susceptible to such a reaction I would be more likely to have that same side effect as well. Lucky, after an intense week in the hospital and the removal of statins, he slowly started to regain his muscle strength and is just now, several weeks later, able to walk again without a walker – though he is still weaker than before. If you take statins, do NOT ignore any early signs of muscle pain or weakness. My dad had a bit of weakness in his legs but just thought he was getting old . . . if he’d gone a few more days, he may have compromised his kidney function beyond repair. No statins for me!

  38. Scott
    Scott March 17, 2009 at 2:20 am | | Reply

    Off topic, I know, but I wanted to respond to an earlier comment. I, too, am an adult onset Type 1′er and my doc has me on the ace inhibitor Lisonopral. My cholesterol and tri-glicerides and blood pressure were all normal when it was prescribed. Supposed to be for kidney protection according to the information sheet. I have had no known side effects.

  39. Mick
    Mick March 20, 2009 at 8:40 pm | | Reply

    So far my Doc has been making the suggestion – not insisting yet. Even though he’s not diabetic, he claims to be taking a statin himself. I have doubts about long-term safety and frankly just don’t want yet-another-pill! Your post helped reinforce my feeling that “the jury is still out”. Like some others have said, a lot has to do with genetics and while they tout the statins as miracle drugss, they haven’t been around long enough to know the long term affect.

  40. claire
    claire April 13, 2009 at 5:26 pm | | Reply

    late to this, sorry! i’ve been on pravastatin for a couple of years. similar sitch to yours: always high hdl, ldl started creeping up. i’m also asian and apparently asians are far more sensitive to statins so i asked my doc and she said that sensitivity was overhyped, but that was why she had me on a pravastatin, which is one of the least potent. my tests have been satisfactory ever since and i’ve had no apparent side effects.

    on the other hand, i’ve been gaining weight and suffering from on and off depression in the past few years. but then, there are enviromental factors, age factors, and i’m closing in on an almost certain sleep apnea diagnosis. so all of that might have nothing to do with the statins.

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