Before it’s all over I wanted to share with you this month’s JDRF Blogger Rountable, which features a set of us very vocal D-Bloggers answering topical questions each month. You guessed it — this month we talked about Diabetes Awareness efforts, and what that all means to us.
Some fave quotes from my colleagues:
Sandra Miller: “Diabetes awareness is important because it translates into a greater understanding of (and by extension, compassion for) those living with the disease; an increased willingness by schools, companies, and other organizations to make accommodations when and where needed; and a larger number of people providing more vigorous support toward finding a cure. I try to bring attention to our cause by supporting newly diagnosed families online, via phone, and in person, and by discussing (and debunking myths surrounding) the disease with anyone willing to listen. I’m also a diabetes school advocate — acting as a resource for parents as they seek 504 protection for their children with diabetes, educating parents and school officials as much as possible throughout the process.”
Gina Capone: “Honestly, being an advocate was the best thing I have ever done. It has given me so many opportunities to meet so many great people. It has given me a chance to make real differences in people’s lives. When someone thanks me for helping them, I get so emotional and sometimes I cry because I am so happy and I just can’t believe that I actually helped someone. There are other times that I can feel overwhelmed and exhausted and just need a break. When that happens I know that IT IS time to take a break. So I do it to keep my mental state of mind healthy.”
Scott Strumello: “Above all else, take your diabetes care out of the closet, and by that, I mean not hiding your testing, insulin dosages or need for a treatment for lows. By taking these things out of the view of others, it makes diabetes (and all that goes along with it) seem invisible rather than a disease which deserves to be cured. For too long, we have allowed diabetes be defined by others, and in the process, we have allowed the disease to be viewed as a nothing more than a minor inconvenience, and that needs to change if we want a cure to happen in our lifetimes.”
You can read my own responses at the Roundtable, and here’s one additional that didn’t get published this month:
“Personally, I think it’s imperative that we work on awareness not only among the general public — to gain backing for important legislation and funding for research and treatments — but also AMONG THE PATIENT COMMUNITY ITSELF.
That is to say, diabetes touches millions of lives in this country and around the world. And far too few of those people have access to or proper knowledge of all the powerful new tools that exist these days to help them live well with this disease and avoid the devastating complications. We need to work on ‘bringing them in the loop.’ That should be a major priority!”
Take 1 on diabetes awareness: That’s a wrap!
btw: I made an appearance last Tuesday evening on the Diabetes Living Today radio show. Their audience is supposedly in the millions. Anyone catch that one?
btw, again: I was also recently interviewed over at Media Bullseye HERE. Helping to raise awareness among New Media and Communications buffs, too?
** UPDATE 10:18 am **
This of course suggests another route for getting diabetes noticed on the world’s most popular search engine. Manny has already updated the online petition to be applicable for 2009, so if you haven’t done so yet, please go and sign it HERE. Thanks, All!