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13 Responses

  1. CALpumper
    CALpumper September 25, 2008 at 8:03 am | | Reply

    Love the leaflet drop idea.
    I think we should do it on November 14th.
    The envelopes should be blue.

    Or we could just stand on some busy corner in our communities and hand them out.

    Or at pharmacies or grocery stores or…….

  2. CALpumper
    CALpumper September 25, 2008 at 8:04 am | | Reply

    lol, my captcha was:

    panaman sniffin

    really? i mean….what? ha ha! had to share….

  3. Craige McKenna
    Craige McKenna September 25, 2008 at 9:09 am | | Reply

    Amy – I read this blog entry and HAD to write! I am a Type 2 and a PHD candidate focusing on diabetes. I also am amazed at how many people (and there are LOTS) that do not understand the enormity that having this disease presents! There is so much information that is out there that can help, but people do not know about it. I believe that the first step in the process is having the doctor who diagnosed the patient fully educate the patient on the impact of this disease. In a perfect world, first the doctor should totally make sure what type the person has and then explain – at length – what this particular disease is and all that is involved in correctly managing it. If the person does have the opportunity to be treated by an Endo., they should then be educated further about the disease and the regimen they will have to carry out. Second, the patient should see a CDE to be further informed about diabetes and plan a management system for their particular type and personal lifestyle. As I always say, “The more ammunition one has in their arsenal, the better equipped they are to live healthfully with diabetes.”

    Again, there are many good, professional places (i.e., http://www.diabetes.org; http://www.diabetes.com; http://www.cdc.gov/diabetes; http://www.cdc.gov/diabetes/ndep/more.htm; http://www.diabetesmonitor.com; http://www.diabetes.niddk.nih.gov; etc.)* where the diabetic can retrieve information, assistance, and guidance to help with controlling the disease and answering questions.
    Good luck to all!

    *For a more comprehensive list of diabetes-related sites, search “diabetes websites” on the Internet.

  4. Leah
    Leah September 25, 2008 at 10:09 am | | Reply

    I have been appalled over and over again by the level of knowledge of some people about their disease. While I do think that the system is not great, we cannot but all the blame on the health care providers. People do have the responsibility to educate themselves. When I was diagnosed I read everything I could get my hands on related to diabetes. I mean, come on people, this is your life!!

  5. Leeanthro
    Leeanthro September 25, 2008 at 12:13 pm | | Reply

    When my daughter was diagnosed with Type 1 this spring, the four days we spent in the hospital was mostly to educate us, the parents. We had a crash course. I can’t imagine managing it without all the knowledge we were given and books we were sent home with (and of course the online community).

    But two of my husband’s coworkers have been diagnosed with Type 2 and aren’t educating themselves. One can’t be bothered to go across town for his classes because he is annoyed that he has to drive to the clinic on the other end of town. How idiotic is that?

  6. Kelly K
    Kelly K September 25, 2008 at 4:41 pm | | Reply

    Amy –
    Knowledge is power, especially regarding diabetes. It’s amazing how many people don’t want to learn about the disease that lives within their body.
    Great post!
    k2

  7. Lauren
    Lauren September 25, 2008 at 4:41 pm | | Reply

    People have to take responsibility for their own health. If you can drive a car, you can know the basics of your disease. With the horrible health care system in this country, people have got to be pro-active.

  8. LindaB
    LindaB September 25, 2008 at 5:16 pm | | Reply

    Ignorance is not bliss in this disease. Ignoring it will not make it go away.I think it is past time for handling this with kid gloves need to stop. Education for both medical practitioners and patients should be implemented. People need to see what the risks and outcomes are. I could site so many examples where misinformation and noninformation have hurt people in my life. I am a type 1, my husband and both his parents are type 2. The misinformation and no information at all with my inlaws care astounds me. They had left the doctor one day, after being told they needed to take injections, and were not even shown how to do this, at all. They got no education, nothing. It has been very frustrating,trying to deal withn the mindset my parents have about there diabetes that was given to them from their physician, that its not a big deal, you will have no issues and heres another pill, take it you will be fine.they do not want any education, everything there doctor tells them is good enough. They do not want to educate themselves. They say they pay their doc to do this for them and hes a doctor he knows it all. We don’t need anything more.There are providers who do have the knowledge and are getting there patients what they need, but there are also ones who don’t know are treating patients anyway.There needs to be better education across the board.

  9. Phil
    Phil September 26, 2008 at 9:56 am | | Reply

    I think part of the problem is that many diabetics are treated by their GP’s who are seriously ill informed of the proper treatment of diabetes. The first step a newly diagnosed patient should take is to set up an appointment with an Endo.

  10. tmana
    tmana September 26, 2008 at 10:10 am | | Reply

    I’m sorry to say that both my mother, and my Other Half’s father, fall into LindaB’s parents’ category: “if the doctor says I’m doing fine, that’s all I need to know”.

    I never learned about self-testing until the Other Half was diagnosed as “borderline diabetic” and his health insurance company sent him a monitor and supplies and instructions for testing. The initial information both of us received (on his “borderline/prediabetic” diagnosis and my T2 diagnosis) were ADA diet sheets and, in my case, pills. (No monitor, no instructions on monitoring, and the only other complication I had was trying to manage the ADA diet in under 1000 mg sodium/day.) Sadly, I know too many people with T2 diabetes who were never taught about monitoring, never taught what to do with the numbers the devices returned, never taught about the effects of particular types of food on blood glucose levels…

    Now, I had the advantage of having had both very good, and very bad, role models for diabetes self care. Without belaboring an oft-told story, I saw two paths I could take: I could live with diabetes, or I could die from it. (I’ll take “live with it” for one-thousand, Alex!) “Living with it” requires information, knowledge, and vigilance — but it sure as hell beats the alternatives of complications and a slow, painful death.

    I also had the advantage of a professional background of included 15 years spent doing journal indexing and abstracting across many technical disciplines — so I knew where to look for information, how to find that information, and how to critically evaluate that information. This was invaluable in learning about diabetes and “Syndrome X” (aka “Metabolic Syndrome”), and learning to actively manage my own self-care.

    Months passed before I knew what a CDE was — and considering the other health issues that were diagnosed at the same time as my diabetes, I had a more realistic understanding about my own self-care than I felt a CDE could assist me with. (I hear this time and again from other diabetes-community members.)

    I must say that things are changing, if perhaps not quickly enough for all PWDs. When my Other Half was definitively diagnosed as having crossed the border to T2 last year, he was referred to a CDE almost immediately. Our medical insurance pays 100% of all our testing supplies, without limit, as well as any diabetes medications we require. OTOH, while I’d like to get my mother involved in self-testing, public documents suggest that Medicaid/Medicare will only cover enough supplies for her to test once every other day (or maybe once a day), which is not enough to establish patterns for norms and needs for improvement. Kerri Sparling writes of her continuing battle to get insurance coverage for a CGM. And fresh-food vendors continue to move out of the low-income markets where diabetes and high blood pressure risks are genetically and culturally highest.

    I’m wondering if we might need to work on developing urban outreach programs for lower-income people affected by diabetes, and physician outreach programs to update their understanding of diabetes and diabetes management. I’m wondering how to get past the pussyfooting around the financial and logistical issues such as “do I test, or do I eat?” and “Where in H*** am I supposed to find fresh broccoli around here, much less be able to afford it!”

  11. Dennis
    Dennis September 29, 2008 at 8:28 pm | | Reply

    Get the Dr.’s to do it? LOL in the real world, how long do you think it takes to really fully Trained/educate a new T1 and then follow-up?
    Try at least 2 hrs the first time and ave of 1/2 hr intervals there after..

    I don’t know too many Dr.’s that have that kind of time, do you? And CDE’s? Marginal at best.. Not to mention the costs factors.. CDE’s areound her get $125 per 1/2 hr visit..

    We are better off Getting The Books like Think like a Pancrease or Using Insulin and Having the Dr.’s office issue them to all new patients, would accomplish alot more, although not the Ultimate Solution..

    adding a Flyer on websites to go to is the other thing to do..

    There is no easy & simple soltuiion..
    Maybe betting Lilly and Nova on board to pay for the Books?
    It is in their Best Financial Interest..

    Just like them having constest to promote Pumps..

  12. Melitta
    Melitta September 30, 2008 at 1:43 pm | | Reply

    Some of this does come back to the doctors and the medical professionals who must first make a correct diagnosis (Type 1 versus Type 2). If you are an adult who acquires Type 1, you most likely will initially be misdiagnosed as having Type 2. You can then educate yourself about Type 2, but it won’t do you any good since Type 1 & 2 are two different diseases with different causes, cures, and treatments. So a very big question is, how do we get the U.S. medical community aware of the prevalence of Type 1 in adults?

  13. mollyjade
    mollyjade October 1, 2008 at 8:52 am | | Reply

    One of my friends is training to be a GP right now. I was explaining the problems with seeing GPs for diabetes (“diabetics don’t need to see endocrinologists” she kept telling me). I’m sure there are a lot of GPs who do a great job keeping up with changes in diabetes care and who treat it aggressively, but there are a lot who don’t. And the problem is, if you’re just diagnosed, how do you know which kind you have?

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