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10 Responses

  1. CALpumper
    CALpumper September 19, 2008 at 10:33 am | | Reply

    Great info Amy!
    Sounds like DC provided you with info to post for awhile.
    While you were there many people were advocating for the Americans with Disabilities Act to be signed into law by President Bush.
    This is the Last step in this Important and Vital legislation, not just for PWDs but for All Americans with a disability.

    Either way, this made me laugh:
    ‘the system helped him “seamlessly” eat cake — without a BG spike in sight’

    Why is it that people feel the need to “advertise” to PWDs with cake??!!
    How about Better Health Insurance for ALL? Or less expensive strips??
    We PWDs do not run on cake or even think about it that much!

    Well, Great info either way and funny too….

  2. Sam
    Sam September 19, 2008 at 1:33 pm | | Reply

    Great synopsis of the showcase Amy!

    It was great to meet you at the PHD showcase this week.

    It’s been said elsewhere on the internets, but it’s worth repeating here, “The cake is a lie.” I could tell the TRUE P.I., Stephanie Fonda, wasn’t too happy with the video that was produced for her project.

    I look forward to following your blog.

  3. Kevin McMahon
    Kevin McMahon September 21, 2008 at 10:12 am | | Reply

    Thanks for the heads up on this project as I was completely unaware of it. Over the next week I’ll get a better understanding of what aspects are truly new and visionary vs. what’s been in the field for years with patients not only in diabetes but also supporting people with other health issues as well and I know you’ve reported on several of these precedents here at diabetesmine previously.

    As for how well designed healthcare technology helps people with diabetes to manage, the latest results from randomized, controlled clinical trials of commercially available systems were presented this past Friday at this year’s annual Pediatric Endocrinology Society of Texas, Oklahoma, Louisiana and Arkansas held in Dallas (http://pestola.org). Warm and fuzzy focus groups and prototypes are one thing and part of the journey to a good design but real trial data from free living patients is necessary for any of this stuff to become main stream.

    The trial results included the JDRF funded CGM trial presented by Dr Bruce Buckingham of Stanford and from the Lichtenstein Diabetes Research Institute funded ADMS trial by Dr Stephen Ponder of Driscoll Children’s Hospital. I think you’ve already shared the CGM trial data so I won’t rehash that other than to say this trial intentionally excluded anyone except for the brightest and most motivated to ensure a high degree of compliance. The designers of this trial wanted to understand patient benefit in the best circumstances which is a fair starting point for something new as long as everyone understands that aspect. Also, of the three groups (adults over 25, teens and kids) only the adults experienced a reduction in A1c and it was just over a half point (-0.53) for the 6 months of usage.

    The other trial presented results at its mid-point and focused not on real-time sensor data but how to encourage free living people with diabetes to perform critical review of their blood sugar trends on a frequent basis using a standardized and easily understood color-coded report. The system used to collect data, analyze it and deliver it directly to the patient is provided by Diabetech (my company) thanks to a federally funded competitive grant awarded to the hospital in 2005 to improve healthcare for the people in rural America and also those who are racially disparaged by our current healthcare system. In fact, this trial design was an RWJF finalist in 2006 for their grant program to address racial disparities in health.

    So far it appears that making blood sugar trends self-evident and easily available to the patient (kids under 10 regardless of demographics) is showing more than a half point reduction in A1c in the treatment group (wireless GlucoMON-ADMS and automatically delivered GlucoDYNAMIX-ADMS Day over Day trend report) vs the control group receiving conventional care (patient determined: manual logbooks, PC software, web based systems, email and fax).

    Based on the data, I would add to this summary of the Project HealthDesign conference that any hope for broad based improvements in healthcare delivery systems via technology must first of all be easy for patients to use on their own (ie – ADMS) which in turn engages people to analyze their own care on a frequent basis. Secondarily, when they need advice, engaging their physician or diabetes educator is also easy and efficient for all (ie – also ADMS including the potential to integrate CGM into ADMS).

  4. Project Health Design Blog
    Project Health Design Blog September 21, 2008 at 5:58 pm |

    Apple’s next product: the iV-drip? …

    Posted September 21, 2008 by Lygeia Ricciardi At last week’s Project HealthDesign Expo, Amy Tenderich of the blog DiabetesMine gave the keynote address. Amy is known in part for her April, 2007 open letter to Steve Jobs, in which she…

  5. John@ChilmarkResearch
    John@ChilmarkResearch September 22, 2008 at 11:01 am | | Reply

    Hi Amy,
    Thanks for providing your perspective of the RWJ event last week.

    Couple of points:
    1) PHRs are not going away, they are but a subset of a broader range of applications called PHAs. One need only look at Dossia’s “utility model” to see how this all fits together. http://chilmarkresearch.com/2007/12/05/a-utility-called-dossia/

    2) Yes, wouldn’t it be grand if we could all get our data, in electronic form, from our caregivers. Unfortunately, the rosy forecast for that is just that, rosy and reality is quite a bit different as less than 20% of physicians today in the US are using an EMR. Until a value proposition s developed that makes it worthwhile for a physician to adopt an EMR, we will have to patiently wait and wait and wait.

    From my vantage point, the only way this will change is when consumers start actually choosing physicians based on their ability to communicate electronically and deliver records digitally. Most consumers just aren’t there yet.

    3) While I applaud RWJ for taking some initiative with PHD, I do fault them in their reliance on academic researchers and having no clear plan on commercialization strategies. Without that, these demonstrations are but nice little what-ifs and not about what the market will adopt and use.

  6. Academics and PHRs « Chilmark Research
    Academics and PHRs « Chilmark Research September 22, 2008 at 3:35 pm |

    [...] Diamond of Markle and of course several from RWJ), Amy Tenderich of DiabetesMine (she did her own post on the event), and of course the researchers who presented their concepts/prototypes. There was [...]

  7. Academics and PHRs: RWJ’s Project HealthDesign Rolls Out the Carpet « Chilmark Research

    [...] Diamond of Markle and of course several from RWJ), Amy Tenderich of DiabetesMine (she did her own post on the event), and of course the researchers who presented their concepts/prototypes. There was [...]

  8. Medical Check Up » Blog Archive » Grand Rounds 5:1 - In Your Own Words

    [...] to perform and support research into this disease long before it may affect me.’”Amy Tenderich, Five Things I Learned About HealthDesign: “There are so many people with diabetes (and other burdensome conditions) out there struggling [...]

  9. Scott Holmes
    Scott Holmes October 21, 2008 at 6:46 am | | Reply

    Amy:

    Interoperability can be achieved by software. Contact me, and I will give you the inside scoop. The mega vendors are copping out on the software solution.

    Also, there is a lot happening in statewide diabetes networks from a systems perspective. How do I get your e-mail address?

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