Comments on: Submit Your 2008 ADA Queries Here

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By: Melkosa

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DDR plug on great diabetes blog - Diabetes Mine | — Sat, 07 Jun 2008 17:09:37 +0000

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By: Bob Harling

Bob Harling — Sat, 07 Jun 2008 05:50:21 +0000

I was wondering if you could find info on the talking test meter please .
Thanks
Bob

By: Melitta

Melitta — Thu, 05 Jun 2008 19:34:01 +0000

Amy–Please ask the ADA people you speak with why ADA still says that Type 1 only represents 5-10% of all diabetes (when that number excludes the huge number (~10% of ALL diabetes) who have slow onset Type 1 autoimmune diabetes, and why they still say Type 1 primarily affects children and young adults. All people with autoimmune diabetes should be included in statistics addressing prevalence and incidence of Type 1 diabetes (it is not appropriate to include people with adult-onset autoimmune diabetes in figures for the numbers of Type 2 diabetics as ADA presently does).

Also, those of use diagnosed with Type 1 over a certain age are excluded from the big Type 1 clinical trials. For example, Type 1 Diabetes TrialNet excludes many Type 1 diabetics and their families based on age at diagnosis. Type 1 autoimmune diabetes is diagnosed based on epidemiology, not age; therefore, TrialNet is not truly representative of the full scope of Type 1 diabetes.

Please advocate for all of us with adult-onset Type 1, who are overlooked or ignored entirely! Thank you, Melitta

By: Big_Dave_T

Big_Dave_T — Wed, 04 Jun 2008 21:50:22 +0000

I just read a story on a Wall Street Journal website that less than one study in five of diabetes drugs focuses on outcomes that matter to the patient–for example heart disease and pain. The overwhelming number of these studies focus solely on the blood sugar numbers. So what I would want to ask is whether the ADA is going to work on changing that, since oral diabetes drugs is on the agenda.

My brother’s father-in-law is a farmer and corn is his crop. Is he benefitting from all this demand for corn? Put it this way. He’s looking to buy a $4,000 lawnmower for himself.

By: Craig Williams

Craig Williams — Wed, 04 Jun 2008 13:00:09 +0000

When will the ADA do a study evaluating the effectiveness of GCMS like they did DCCT for blood glucose monitoring? Such a study could help drive home this issue with insurance companies and end all these individual appeals to have CGMS covered on a case by case basis.

By: Lauren

Lauren — Wed, 04 Jun 2008 03:00:30 +0000

I second (or third) the test strip question! My monthly test strip expenses are the financial equivalent of leasing a Lexus. And I have Blue Cross insurance — gotta love ‘em. I get mailers all the time about “taking care of your diabetes” but they won’t pay a dime for strips or any other supplies. It’s unbelievable. I keep hoping the government will step in to help all chronically ill people afford their meds and supplies. With the current administration on its way out, I continue to hope!

By: Dave

Dave — Wed, 04 Jun 2008 02:44:46 +0000

Any news on the BCG trial that Dr. Fausterman is doing that reverses type 1 diabetics? Any new pumps or longer wearing sensors coming from Medtronics? Thanks amy!