As usual, the annual ADA Scientific Sessions Conference was exhilarating and exhausting. You have to be in awe of such a confluence of the pharmaceutical and technological advancements that enable us PWDs to live happy and productive lives.
But outside of the science and medicine, there’s something else big going on. We stand at the dawn of a new era of patient empowerment that applies “consumerism” to health and medical care in ways never seen before.
Last night, DiabetesMine was proud to host a special “thought leadership” dinner at a fine restaurant here in San Francisco bringing together diabetes industry leaders, Health 2.0 innovators, patient advocates, investors and members of the media.
Our theme was Diabetes Reloaded, which stands for redefining not only the role of technology in managing chronic diseases, but also for the newfound self-confidence and ambitions of 21st century people living with health conditions. What’s special about this new web-enabled world of healthcare? It’s proactive, technology-based, empowered, revolutionary, against all odds, and – if needed – outside the establishment.
Have a look at the video we created for this event and take a moment to reflect on how far we’ve come. I’d love to hear what you all think.
I’d like to encourage you all to capture and embed this video on your own sites or interested communities. You can do this using Vimeo, at the link above.
Or of course you can grab it off YouTube:
Now I’m off to catch some much-needed rest this morning. Getting Reloaded myself.
Love it Amy!!! You rock!
Love it!
Amy, this is absolutely amazing!!!
[...] the mastermind behind the diabetic treasure-trove, DiabetesMine, created this video, which is more than deserving of some air-time. It resonates with my previous post. There is [...]
WOW! very poweful video – the point is as poweful as the needle is sharp. Job really really well done. THANK YOU!
I suppose the video is fine, but honestly, after thirty years of type 1, I’m just wondering where the cure is already. All these bells and whistles, and the crazy things you wrote about seeing at the ADA conference a day or two ago, just prove, again and again, that there’s plenty of money to be made off of diabetes, and honestly, don’t give much incentive for much change as in a CURE. Sure, I use a pump and a blood glucose monitor today, two things that weren’t available three decades ago, but at the end of the day, I’ve still got the same disease. I hate to rain on anyone’s parade here, but where’s the incentive to really change the reality of living with an incurable disease?
Lyrehca, I soooooooooooooooooooooo agree after 41 years, it still is just insulin and insulin is not a cure. Nothing has changed for me, just different ways of delivering the stuff.
It is such a money making industry there will never be a cure, well there will be one, but it won’t be approved.
Amy still rocks.
To Lyrehca: my thoughts exactly.
I don’t think that pharma gets it yet. They can either engage us and allow us to provide deep input, or we’ll figure out alternatives. This is not as hard as it may sound. Look at what’s happened with support for Dr. Faustman’s research to date. Look at sites like sugarstats.com where folks are mashing up the data because device makers won’t let them.
The world is changing. Drug and device makers had better wake up.
[...] “James Bond” music. (I have got to learn how to embed video…) Here’s the backstory to the [...]
Lyrehca, I just posted a little rant about this very subject on another link. You are exactly right! Why, after all this time, is there no generic form of insulin??? and don’t get me started on blood test strips!!! Diabetes has to be one the top three cash cows in all of medical rip-off history. Yes, I’m mad. After 26 years of Type 1 I’m also still diabetic — and much more poor than non-diabetics. My son, now 29 has been T1 since age 7. He got a new kidney last year but he’s STILL diabetic. And we were BOTH “good” diabetics; not overweight, stuck to our diets, took our medicines, had good control. There is SOOOOOOO much money being made off of diabetics, yet we’re STILL diabetic. That is, if we’re not DEAD!
Wow…..nicely done!!!!
NICELY DONE……
Excellent!!!
[...] “James Bond” music. (I have got to learn how to embed video…) Here’s the backstory to the [...]
Everything presented was true but left one thing out. People want ACCURATE tools. The meters today do not give precise enogh information for those who want tight control. There is a huge difference between a FBG of 85 and 115. Any reading between these two numbers might be correct according to the current standards. Would we stand for thermometers that said your temperature is somewhere between 97 and 102?
[...] Amy at Diabetes Mine has a very powerful video she created on her site. Please go check it out for yourself. Diabetes Reloaded. [...]
[...] Amy at Diabetes Mine has a very powerful video she created on her site. Please go check it out for yourself. Diabetes Reloaded. [...]
I’m so glad someone mentioned Dr. Denise Faustman (Bernard Farrell, June 11th, 2008 at 8:23 am). I have met this woman and she is onto something big… Send her money! Sign up for her trials! Visit http://www.faustmanlab.org/news.html and get caught-up on her research.
My wife has had Type 1 for 15 years and three insulin pumps later, she is still trying to get to a decent Hemoglobin 1AC. She is not overweight, exercises every day and controls what she eats. Her endocrinologist says that she is just a difficult case. I do not think that diabetics are vocal enough and active enough politically. Look at the tremendous amount of money being spent on Aids and breast cancer. Diabetics need to contact their politicians and ask for more research support. The squeaking wheel gets the grease.
[...] more about her role in much of the action on the diabetes front in 2008). Amy let the powerful Diabetes Reloaded video make her [...]