Life Disrupted, The Book

For those of you who were old enough at the time to remember life before your diabetes, the term “disruption” may seem like an understatement. Diagnosis is more like a crossroads, where your life morphs from one form into another entirely.

Health writer and blogger Laurie Edwards knows all about this. Maybe even more so than us PWDs, because her life has literally been a string of disabling symptoms, invasive medical tests, IVs, casts on her limbs, and hospital stays. She’s living with multiple chronic illnesses (PCD or Primary Ciliary Dyskinesia, bronchiectasis, celiac disease, and more). Despite being “sickly” since childhood, she didn’t even have a clear diagnosis of what was wrong with her until her early 20s, and even then getting the right treatment has been a fight every step of the way.

life disrupted book

Laurie gives the term “survivor” a whole new flair in her brand new book, Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties, due out in bookstores June 24 (and available for pre-order now).

For someone who’s been through so much — who seemingly couldn’t possibly have a “normal” life — you will be amazed at her humor and insight around living a good life with chronic illness (CI). What I love is that the book is so “narrative,” stringing together Laurie’s own experiences with those of a dozen others living with other ailments, including Kerri’s comments on Type 1 diabetes.

She writes a lot about the primary imperative of finding the right doctor:
“Like a first date with someone, the first appointment with a physician tells you so much. Does the doctor look you in the eye when you tell your history? Does she ask follow-up, probing questions that show she understands the connections your are beginning to draw? These subtle cues reveal so much…”

And there are wonderful chapters on everything from Why I Dress in Layers (“Certain details reveal our medical condition whether we’re comfortable with that or not”) to Financial Friction (“So often, the choices we know we should make for our bodies’ sake are intertwined with many conflicting variables”) to Marriage By Numbers (“You just don’t see a lot of literature that addresses chronic illness in younger marriages. It’s so hard”).

I’m delighted to report that Laurie, who once believed no one would commit to loving someone with such severe CI, is now happily married to a loving and supportive partner. For this and many other reasons, hats off to her!

To wrap it up, here’s my review “blurb” in a nutshell:

“Life Disrupted is a book like no other about the top-to-bottom experience of living with chronic illness (CI). Laurie Edwards is eloquent and funny as she delves into everything from relationships with doctors and boyfriends, to ‘full disclosure’ at work, to when and where comedy is appropriate in the illness game. If you’ve experienced CI, or care for someone who has, you need to read this book.”

[Walker & Company, $10.19 on Amazon]


8 Responses

  1. CALpumper
    CALpumper April 22, 2008 at 10:23 am | | Reply

    My Hats Off to Laurie too!!!

    I think I need to read this book…..

    Thanks Amy, for a wonderful post and review of someone out there trying to get it right while simply being themselves….

  2. laurie edwards
    laurie edwards April 22, 2008 at 12:36 pm | | Reply

    Thanks so much, Amy! Coming from you, this is quite a compliment!

  3. May 3, 2008 at 7:21 pm | | Reply

    As people begin to age the gods employ corrupting tactics. They ultimately begin to look down on the children and the wisdom they recently understood:::
    They voluntarily turn their back on their opportunity to ascend and instead embrace evil.
    It’s not old people who go to heaven. Old people must come back because of the mistakes they’ve made throughout their lives. Children are the ones who have the opportunity to ascend.

    Children are discounted by adults in society. The gods corrupt people as they age, use trust-building tactics and soon adults view the children as ignorant, yet to understand the god’s system, and subsequently look down on the children. This is one of the most bitter, painful ironies the gods employ, for people consciously turn their back on and lose their opportunity to ascend::::
    Religions teach that old people to go to heaven when they die. They don’t. Old people are reincarnated. It’s the children who go to heaven, those who have a chance at immortality.
    The wisdom the gods impart to children, either through their innocence/purity or religious-based educational pursuits are the gods sharing the truth with their most favored people::::It’s the children whom the gods teach the right way for it is the children who have a chance. For example, they teach children to have faith, for understanding the god’s geographical clues hurts people by illustrating negative things, opening the door for the god’s to employ deceptive tactics.
    Old people don’t go to heaven. Old people must come back because of the mistakes they’ve made throughout their lives. It’s the children who have the opportunity to go to “heaven”. They must behave apprioriately, think correctly and be genuinely god-fearing. Their innocence and lack of desensitization ensures they have a real opportunity to achieve this goal.

    This is charecteristic of the gods methodology::::The big prize gone early, deception compels people to chase something that has already been decided. They sent this clue with boss as well. It is also a clue supporting my claim RW&B’s german is in fact Christianity’s Anti-Christ. Logic also dictates, considering the definition.
    The confusion over this multi-dimentional positioning will serve as an effective tactic, eliminating many additional disfavored in the process, for positioning states the Apocalypse to be a continuation of WorldWarII’s Aryan superrace ideals, positioned as punishment for the 5th century invastion of the Roman Empire:::John’s Fourth Reich.
    This amounts only to “nested theater”:::::Levels of positioning enables the gods to scapegoat:::::RW&B merely is the tool the gods chose to execute the final scene of their scripted theater that is human history.

    Just as they would have had me chase boss so would they have wanted me to sign on to this theater, evil by definition, and chase this role of Anti-Christ. By doing so I would have incurred evil and would have been punished, painfully “losing” Anti-Christ in the process.
    Does that mean RW&B is not the Anti-Christ?? I suspect as they would have “offered” it to me so will there be a fake Anti-Christ for those in these generations to accept as well. But it is a clone host. This is ALL clone host theater, created not as a clue to me but instead designed to be preditory on the disfavored, designed to increase indecency and further the god’s goal of justification towards The End.
    We were all merely peasants centuries ago, struggling with our disfavor, but without the enormity of temptations, real and telepathic, which exist today.

    They have shared I was positioned to some disfavored as the Second Coming of Christ, explaining all the evil surrounding me and RW&B’s placement in the “eye of The Beast” was to positon the sabotage of my candidacy (Damien Omen, Big Army Men, etc).
    The Big Lie of course is that Christianity is evil. The reverse positioning nature of Planet Earth dictates that good is demonized, as we wintessed in World War II, while evil is put on a pedistal, as we see with the Italians.
    The truth? The gods used their tools to create this and the rest of the incidents surrounding this Situation to distract the people from my message, for I speak the truth:::Only you can save you. You have to be responsible for your own relationship with the gods.

    The gods are asexual. They have no sex organs nor rectums.
    When the gods take children these individuals have the opportunity to become “god-like”. Temptations are employed and, if sucessful, these are the individuals who make up the human race’s immortals.
    I believe there are opportunities that exist for females that do no exist for males. I don’t mean to paint with a broad brush but women’s “sexual peak” may represent the transistion to “sociological males” and their “fall from grace”. Considering today’s promiscuity I question whether this is currently applicable, and is yet anther 20th century-earlier phenominah.
    I believe Purgatory is real. I think it is a temporary destination, perhaps sparsely utilized until the Apocalypse, but this will be the destination for those who “ascend” during the event. As they’ve said this planet will too be disposed of one day and it is imperative people try to avoid that destination, for there may be no escaping its fate.

  4. Bo
    Bo November 19, 2008 at 11:07 am | | Reply

    Interestingly, I had just checked her web site when I read your post. Keep up the good work.

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    runescape gold April 19, 2009 at 11:40 pm | | Reply

    In our process of growing up, we may inevitably experience when confronted with situations that don’t come up to our expectations.

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  7. Joey
    Joey August 25, 2012 at 8:25 pm | | Reply

    It’s good to see how well the book is doing on Amazon. I’ve long thought that more resources for this exact age range are direly needed, which is why I created a social network for chronically ill neuroimmune patients from ages 18-40.

    However I’ve realized over the course of this last year that the challenges faced by this age group are for the most part not unique to us. Many patients beyond the age of 40 seem to feel very much alienated, have the same challenges with romance & finances, and although removal from the primes of their lives might have happened much earlier, the wound can be equally unhealed, the scar equally raw.

  8. It's Official! | Laurie Edwards
    It's Official! | Laurie Edwards October 9, 2012 at 6:59 am |

    [...] It’s Official! Posted on April 22, 2008 by ledwards FB.Event.subscribe('edge.create', function(response) { _gaq.push(['_trackEvent','SocialSharing','Facebook - like button',unescape(String(response).replace(/+/g, " "))]); }); Amy Tenderich of has posted the first official review of Life Disrupted. Check it out here. [...]

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