So I noticed that some of you are only interested in Health 2.0 stuff if it’s all-diabetes, all-the-time. OK, then. Here are two more new sites aimed directly at us PWDs:
* WeAreDiabetic.org – yet another social support network for the diabetic community. This one has a very Flickr-ish look and feel, IMHO. It’s created by the folks at WeAre.Us, who’ve recently launched online communities for Crohns, Parkinson’s Disease, and Huntington’s Disease. Seems like you can’t view too much of the content without registering, which I haven’t done yet, to be honest.
Mainly I wonder how they will compete with our friends who’ve created such great groups at TuDiabetes, DiabetesDaily, and DiabetesTalkFest, not to mention newer communities like DiabetesFriends.net, mentioned yesterday. I’d love to hear your feedback on the many new D-communities emerging. What attracts you or turns you off? What would motivate you most to register and get involved?
* Glucosurfer.org – yet another online tool for keeping meticulous records of your blood glucose readings. This one is hosted out of Germany and is “scientifically supervised” by the Department of Diabetes Research, according to founder Holger Schmeken. You keep records on your mobile phone, and zap them to the Glucosurfer site using wireless technology. Watch this YouTube clip to see how the system works. (Never mind that accent
Once your results are transferred to the site, you can chart your glucose results in detail, and “drag” the diagrams with your mouse for copying elsewhere, just like Google Maps. Using a Google Group tool, you can also “share your diary” and post questions to the community.
Holger would love some feedback on the site and its usefulness from our largely-American community here.
Again, my question is: how will a site like this stack up against SugarStats, SweetSpot.dm, MySugarLevel, MyInsulinLog and the many other sites designed for diabetic online record-keeping? Thoughts, anyone?
btw, the reason all this Health 2.0 stuff matters, is — as insiders note — “until relatively recently, patients didn’t network.” Nor could we use the Web to actually help us improve our disease management. The fact that new technology now enables us to do these things is definitely changing the world. Or at least, transforming the experience of being a patient, in a good way.