Comments on: Living Without http://www.diabetesmine.com/2007/11/living-without.html A gold mine of straight talk and encouragement for people living with diabetes Sun, 12 Feb 2012 21:05:41 +0000 hourly 1 http://wordpress.org/?v= By: Cesar http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39473 Cesar Wed, 05 Dec 2007 18:11:55 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39473 My sis started having really bad stomach pains, her doc put her on a strict gluten free and lactose free diet. In the end she still has stomach pains but many specialists have told us is that many kids even adults have a harder time digesting certain food and it could easily be diagnosed as celiac. They get exactly what you described, stomach pains. I thought I should tell you.:) My sis started having really bad stomach pains, her doc put her on a strict gluten free and lactose free diet. In the end she still has stomach pains but many specialists have told us is that many kids even adults have a harder time digesting certain food and it could easily be diagnosed as celiac. They get exactly what you described, stomach pains.

I thought I should tell you.:)

]]> By: The Patient Connection http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39472 The Patient Connection Mon, 03 Dec 2007 19:54:57 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39472 Childhood diabetes - a new research blog – please help Hi After looking at the discussion I would like to take this opportunity to invite you to a research blog on childhood diabetes. We though that our blog is relevant to you and it would be great if you could participate. We are very interested in your thoughts so it would be great if you could have look at the blog and share your story. To have a look (and to tell us what you think) please click this link <a target="_blank" href="http://www.thepatientconnections.com/blog.asp?uid=o4pmeg" rel="nofollow">http://www.thepatientconnections.com/blog.asp?uid=o4pmeg</a> The blog is anonymous and easy to use. Instructions are given on the blog so thanks in advance for your help it is much appreciated. Best wishes Belinda The Patient Connection Belinda.shale@thepatientconnections.com Childhood diabetes – a new research blog – please help

Hi

After looking at the discussion I would like to take this opportunity to invite you to a research blog on childhood diabetes. We though that our blog is relevant to you and it would be great if you could participate.

We are very interested in your thoughts so it would be great if you could have look at the blog and share your story.

To have a look (and to tell us what you think) please click this link

http://www.thepatientconnections.com/blog.asp?uid=o4pmeg

The blog is anonymous and easy to use. Instructions are given on the blog so thanks in advance for your help it is much appreciated.

Best wishes

Belinda
The Patient Connection
Belinda.shale@thepatientconnections.com

]]> By: Andrea http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39471 Andrea Mon, 03 Dec 2007 02:47:57 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39471 Wow, Amy, my heart goes out to you and to your daughter. I hope it is going well with re-introducing wheat into her diet. Certainly many of us in this community can understand what it is to be the kid that can't have pizza or cupcakes with the rest of the class. Wow, Amy, my heart goes out to you and to your daughter. I hope it is going well with re-introducing wheat into her diet. Certainly many of us in this community can understand what it is to be the kid that can’t have pizza or cupcakes with the rest of the class.

]]> By: AmyT http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39470 AmyT Fri, 30 Nov 2007 00:04:52 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39470 You guys are the best. Thank you for all your well-wishes. And Allison: you nailed it. I'm definitely more concerned about the psychological and social burden than getting my hands on the GF foods and recipes for my daughter. Luckily, those are good supply at the moment. But the empathy of other children? Often lacking. You guys are the best. Thank you for all your well-wishes.

And Allison: you nailed it. I’m definitely more concerned about the psychological and social burden than getting my hands on the GF foods and recipes for my daughter. Luckily, those are good supply at the moment. But the empathy of other children? Often lacking.

]]> By: Scott K. Johnson http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39469 Scott K. Johnson Thu, 29 Nov 2007 22:49:17 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39469 Hey Amy, Just wanted to drop a quick note that I'm thinking of you and your family as you work through this. Hey Amy,

Just wanted to drop a quick note that I’m thinking of you and your family as you work through this.

]]> By: Rosalind http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39468 Rosalind Thu, 29 Nov 2007 20:44:01 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39468 I've lived with autoimmune diseases that have left me temporarily blind, unable to raise my head from bed, raging high fevers, out of control bowel and bladder....I sound like a real sob story. But I don't feel it. HOWEVER, when our daughter (age 12 developed a chronic illness, I was completely thrown. My world was up-ended and I felt more upset than I'd ever been. No doubt about it -- it's much harder to deal with anything that happens to your kid. My experience is that kids have enormous capacity to normalize anything -- as long as they don't fear it. We have to make it ok for us so we can make it ok for them. I’ve lived with autoimmune diseases that have left me temporarily blind, unable to raise my head from bed, raging high fevers, out of control bowel and bladder….I sound like a real sob story. But I don’t feel it. HOWEVER, when our daughter (age 12 developed a chronic illness, I was completely thrown. My world was up-ended and I felt more upset than I’d ever been. No doubt about it — it’s much harder to deal with anything that happens to your kid. My experience is that kids have enormous capacity to normalize anything — as long as they don’t fear it. We have to make it ok for us so we can make it ok for them.

]]> By: Catherine http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39467 Catherine Thu, 29 Nov 2007 16:38:46 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39467 Poor thing - this won't be easy for her but at the minimum, at least you already know what is and isn't gluten-free. It took a good year for me to really get a handle on it. Poor thing – this won’t be easy for her but at the minimum, at least you already know what is and isn’t gluten-free. It took a good year for me to really get a handle on it.

]]> By: Patrick http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39466 Patrick Thu, 29 Nov 2007 15:07:41 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39466 Note to Allison: Don't worry...I'm overly sensitive and I should think before I write. Note to Amy: Let us know if you come down to LA...especially if you go to Disneyland again...we are season passholders and would love to see you guys again. My best to BT & the family Note to Allison:

Don’t worry…I’m overly sensitive and I should think before I write.

Note to Amy:

Let us know if you come down to LA…especially if you go to Disneyland again…we are season passholders and would love to see you guys again. My best to BT & the family

]]> By: Brad http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39465 Brad Thu, 29 Nov 2007 14:52:01 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39465 I just can't imagine having a child with both T1 and CD. God bless my mother and wife who deal with both diseases with me (38 years T1 and 18 years CD). It's a good thing your doctor recognized the connection. Many are still resistant to go down the Celiac path. If your daughter's troubles persist, strongly encourage your doctor to pursue some of the other diagnostic procedures. I just can’t imagine having a child with both T1 and CD. God bless my mother and wife who deal with both diseases with me (38 years T1 and 18 years CD).

It’s a good thing your doctor recognized the connection. Many are still resistant to go down the Celiac path. If your daughter’s troubles persist, strongly encourage your doctor to pursue some of the other diagnostic procedures.

]]> By: Allison Blass http://www.diabetesmine.com/2007/11/living-without.html/comment-page-1#comment-39464 Allison Blass Thu, 29 Nov 2007 14:38:35 +0000 http://diabetesmine.dreamhosters.com/2007/11/28/living-without/#comment-39464 Message to Patrick: I'm sorry I offended you! I did not intend that. I was trying to discreetly refer to the couple of people that were just talking about recipes, and my thought was just that it wasn't so much the food that was hard as children's attitudes towards food... I re-read your comments and totally agree with you. :-) I suppose that's what happens when you don't want to single anyone out. You end up insulting everyone! Sorry, Allison Message to Patrick:

I’m sorry I offended you! I did not intend that. I was trying to discreetly refer to the couple of people that were just talking about recipes, and my thought was just that it wasn’t so much the food that was hard as children’s attitudes towards food… I re-read your comments and totally agree with you. :-) I suppose that’s what happens when you don’t want to single anyone out. You end up insulting everyone!

Sorry,
Allison

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