Diabetes Lifeline: How to Fight Back?

Lifesaver Please welcome, today at DiabetesMine, a new community category I’m calling Diabetes Lifeline.  Maybe not the most original name, but if the shoe fits…  The idea is that I get quite a few emails from people all over asking for help with various diabetes-related predicaments, in many cases how to stage an intervention for a friend or loved one going horribly awry with their diabetes.  And guess what?  I don’t have all the answers.  I’m not even a medical professional, just another struggling PWD myself. 

So today I’d like to kick off the new “Lifeline” Category, where I can periodically post some of these calls for help and you, Dear Reader, can offer your help and insights by commenting below.  You people have helped me so much… coming at this thing from every angle and every walk of life.  So here’s your chance to reach out and help somebody else — or maybe share your own biggest concerns with the community.

Our inaugural post comes from the Hall family, Christine, Curtis, and Brandin, et al:

I think that there are a number of things that over the last year I have had brewing inside about regarding diabetes and the effects its having on my family’s lives. Now I am starting to voice my thoughts. Currently I am in school to become a therapist, so I know the importance of getting out those feelings now more than ever! I am assuming that you are in the US so things maybe a little different there, but I was wondering if you have any suggestions for me on what measures or actions I can take to save my uncle…

I have started a diabetes blog with my son and am posting my problem. But I need some expert direction and wish to ask you if you have any suggestions … because it is such an emotional issue for me and I need a little straight talk so to speak. He is being evicted after 20 years of living in a bachelor apartment and is going blind now. His rent is low due to the length of time there and the landlords can’t legally raise it, so they want it for their own personal use. I guess with the diabetes came panic and anxiety issues and he can’t function well outside of his own comfort zone.

This adds to the problem ten-fold. He can’t understand and function to move on and I certainly feel it is unfair to ask someone who is so disabled to move for their own personal gain. Is there any recourse for those who are disabled?  Do you have any suggestions?

DM) Are you more concerned about the legal situation (rights of disabled people – need a lawyer, etc.), or simply the fact that your uncle is unable to care for himself any more (i.e. need a full-time caregiver)?I think my biggest concern with my uncle is that after living a hermit lifestyle, becoming increasingly disabled that the impact of taking him from his environment would be devasting to him. He is certainly climatized, and I know that they do not want this apartment for themselves. It is just because with him in it as long as he has been, has not allowed them to have the rent $ that they wish. We are seeking legal help with this so hopefully we will get lucky.

 

DM) Other than the eviction per se, how exactly is diabetes disturbing your family’s emotional life?

Just to further my fury, my brother-in-law told us on the weekend that when taking his driver’s examination, the tester literally declared that he would fail him regardless of his skill… just because he was diabetic. Of course action was taken.

My son was also discrimminated with his diabetes at work. I find this so frustrating and I know that I am not alone. In fact, for such a long time, his teachers were screaming about his behaviours, insisting I medicate him on ADD meds and oh my God so many other things. All the while, he was experiencing highs and lows and all the symptoms that go along with it. He was predisposed to Type 1 and when he finally got it and treatment, he changed completely. How many kids out there are being treated poorly because of their blood glucose levels fluctuating, and are they being labelled as mine was?

DM) So it’s the discrimination issue that’s eating at you most?

Yes, I would be so grateful for insight. I will sign on to your blog and look forward to hearing what others think and if discrimination is on their list of peeves as well… Sometimes it’s hard to see straight when someone you love is being victimized.

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6 Responses

  1. Keith
    Keith April 30, 2007 at 9:25 am | | Reply

    The discrimination issue is the main reason I have always played the diabetes card close to my chest. I wish we lived in a perfect world where everyone is treated equal, but the truth is we don’t. I’m self-employed so the workplace is a little less of an issue for me, but whenever I interview I make sure my pump is quietly tucked away underneath my suit jacket and behind my cell phone. On an everyday basis, I wear my pump on my belt so it is there for the astute to see and I never mind talking to anyone who asks me about it or has D questions. I carry out all other aspects of diabetes life, including testing, relatively discretely.

    In jr high & high school I hid my diabetes and only let my closest friends know. It wasn’t until years later that I found out that my mom was discretely notifying all my teachers and school authorites of my condition… as she should. I do think that fluctuating bG levels have a great deal to do with childrens’ behavior and their ability to be good students. I think research is just beginning to reveal the devastating effects of uncontrolled diabetes on fact retention and long term productivity.

  2. sebthiam
    sebthiam February 6, 2008 at 3:08 am | | Reply

    Diabetes lifeline is a great idea, many are devastated after finding out that the insurance companies abandoned them after having diabetes. I have friends who have given up hope but with limited assistance they are back on track.

    More positive posts of those who have managed and reduce their blood glucose without nasty side effects.

    My niece died of Diabetes at age of 30 and some friends too.

    It is a serious problem but not all are negative news. There are hope too.

    Here is one from my friend Carmen,

    I was diagnosed with severe diabetes in year 2002. I was given Glucophage and have been taking that regularly ever since. However, much to any disappointment my sugar level has not improved much. In 2005, I was diagnosed with cataract as a result of my diabetes. My renal functions also gone down dramatically and it affected my cholesterol and uric acid readings. I was advised to go on Dbethics from a family friend and took it on good faith for the past 4 months. To my surprise, my insulin levels stabilized and I feel much better now. I don’t feel lethargic and sick like I used to. Thank you, Dbethics.
    (Carmen Thompson, UK)

  3. sebthiam
    sebthiam February 6, 2008 at 3:15 am | | Reply

    Simon Ho says there is hope…

    I was diagnosed with diabetes when I was 15 years old. My body weighed 98 kgs at that time and was very obese. From then on, I tried all ways to loose weight and live an active lifestyle to keep my blood sugar down. Though my condition improved after that, I could not bring down the sugar level to a normal range. It was amazing to see that this recovered significantly after taking Dbethics for 9 months.

  4. sebthiam
    sebthiam February 13, 2008 at 7:49 am | | Reply

    My mother had very high blood sugar level for a long time and she was advised to be on insulin. However, she didn’t want to go on insulin injections for the fear of side effects. Thus her general health deteriorated. A friend introduced Dbethics. When she started consuming, she felt many changes to her health. Because her blood glucose level at 450mg was so dangerously high, she took 3 packets of Dbethics everyday and after few weeks, her sugar level dropped and is now normal.
    (Sebastian Calabrese, Italy).

    More testimonies at http://www.springwell.biz ;
    http://www.dbethics.com

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