Come Forth and De-Lurk

Weeeelll, hello.  Somehow I managed to miss national de-lurking week last week (must’ve had my head up my… blog).  So now, a belated invitation for all of you who come here to look but not touch, to please reach out and touch that keyboard! 

Delurking_is_delightful

Let me know who you are, at least, where you come from, and what’s your connection to The Big D.  That would be diabetes, for any of you newbies.  But if you’re here at DiabetesMine, you surely know that already.  ‘Cause this blog is about DIABETES, just to clear that up.

Yes, I do have a life.  I have three beautiful and precocious children and a wonderful partner and good friends and hobbies and travel and all that stuff that fills the other wedges of life’s pie.  I’ve got fun friends. I like to cook.  Heck, sometimes I even make my own granola.

But my shtick over here is this: I’ve got the ‘betes and a lot to say about it.  So if you’re reading this, and haven’t done so before, talk to me just a little, will ya?  That means please click down there on the word “comments” and say hello.  Yes, YOU.

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65 Responses

  1. Vivian
    Vivian January 23, 2007 at 7:06 am | | Reply

    Hi Amy, I am not a lurker, although I read your blog daily, I have commented before. Just wanted to say hello and tell you that I think you do an awesome job. Thanks for all you do.
    Viv

  2. BP Mantak
    BP Mantak January 23, 2007 at 7:07 am | | Reply

    Hey there
    I am 34 and a Type 1 for 2.5 years. Diagnosed 6 months after getting married, moving further from the coast of NC than I ever thought and setting up my home office as a graphic designer. I believe I came across your blog after searching for reviews on the Omnipod system. I can’t tell you how much I appreciate your smart, well written blog. I have had such a hard time finding “youngish” women with the same interests and concerns as me. It is nice to come to a place where I can learn information that helps deal with the every day life (and my every day for that matter) and feel that I am not alone in my thoughts about Diabetes. I especially appreciate your comments on becoming a “pumper” as the community calls it. I am really having to struggle to wrap my brain around the concept and it is so wonderful to read that someone else feels the same!

  3. justme
    justme January 23, 2007 at 7:08 am | | Reply

    De-lurking.. Not sure if I have posted before. I have had the big D for about 10 months. Enjoy reading your blog! And looking forward to reading the book!

  4. Carol the OALM
    Carol the OALM January 23, 2007 at 7:18 am | | Reply

    hi amy. i’ve posted before and once i connected you with “the happiness project”!! my daughter was dx at 8 on jan 26, 2005 (second anniv. approaching!) i am a single mom of four. your site is a fabulous place to get real info on a cross section of topics. i always recommend it, with six until me, as the portal to enter the diabetes online community. thanks for all you do. carol

  5. Thibault
    Thibault January 23, 2007 at 7:36 am | | Reply

    Hi Amy,
    I’ve been reading your blog daily for quite a while now, and I just wanted to say that I really enjoy it. It really motivates me to keep my diabetes under control :)
    Thanks for all you do
    Tib

  6. Suzanne
    Suzanne January 23, 2007 at 7:45 am | | Reply

    BP Mantak – I can relate! I just turned 33, and I was diagnosed with type 1 in November of ’04, just over two years ago. I also just got engaged. It is very refreshing to encounter other “youngish” (as you say) women out there who were diagnosed in their 30s with this disease. We’re not as rare as I was initially led to believe.

    Amy, you inspire me and keep me laughing. Thanks for ALL that you do for the diabetes community.

  7. Journeywoman
    Journeywoman January 23, 2007 at 7:46 am | | Reply

    Hi.

    I’ve been reading you for quite a while. My husband has Type 1 diabetes, and I learn a lot from you.

  8. Val
    Val January 23, 2007 at 8:05 am | | Reply

    Hi Amy -
    I have commented before, but I’ve been in lurking mode for quite a while. I still read.

    BP Mantak and Suzanne – I’m another one – dx’d at 36.

  9. Martin
    Martin January 23, 2007 at 8:24 am | | Reply

    Hi, I’m from Argentina. I am 24 and have Type 1 since 18.
    I read your blog often… I have to say that sometimes it’s difficult to read you because your casual way of writting… dammit, a lot of words are not in the dictionary! that’s ok, it’s what i like about your blog… i learn about Diabetes and english (well… american) expressions.
    I am fighting this little problem with Lantus and Lispro insulin. You also make me think about pumper, I’m concerned about estetic issues about it.. besides i don’t really know if my medical insurance will cover it. Forget about that Omnipod here, we are in the ice age… they’d probably think it’s for playing MP3 or something (thank god i have lantus covered).
    Well… keep the good work Amy!
    Here we’d say: Tu blog es una masa! (means great)

    saluditos

  10. Adjoa
    Adjoa January 23, 2007 at 8:29 am | | Reply

    Hi Amy,

    Been ready your blog since the very first post and am still here just like my diabetes. Ok I am going back to lurking.

  11. Molly
    Molly January 23, 2007 at 8:33 am | | Reply

    Amy-
    I have posted before, I think.

    Just stopping in to say hi. I’ve had Type 1 for the last 31 years. Pumping for the last 14 years. And…I have a diabetes alert service dog, Dixie, that is trained to alert me when I’m low or dropping. :-) (Dixie says WOOF!)

  12. Kathy
    Kathy January 23, 2007 at 8:35 am | | Reply

    Hi Amy,

    My 9 yo daughter has type 1. I’ve been reading your blog for probably a year or so and really appreciate all that you do, the research, the frank commentary, etc. Thanks and keep up the great work!

  13. Alana
    Alana January 23, 2007 at 8:46 am | | Reply

    I visit often. My 11 y.o. son has t1, he uses a Cozmo. I prefer to work behind the scenes agitating for: health care reform, stem cell research funding, education about t1, etc. My hope for the future is that either you and Kerri are still blogging when my son is old enough to benefit directly OR there is a cure that he can benefit from. What you write about resonates with me….

  14. Tim Welch
    Tim Welch January 23, 2007 at 8:57 am | | Reply

    Hi, I’m Tim from Orlando, FL. My connection to the D is by way of my wife. She has been diabetic for for seven years. We found out just a month before we got married and lucky enough to have an aggressive doctor that got her a pump with in six months. As many of you know the first years are hard and I ended up being the household expert for it all at first. We were lucky enough to get hooked up with a support group and have been going monthly for 6 years. She has been doing great and we just had our son 2 monthes ago.
    Your site has been great and inspired me to create a site for our support group as well (www.orlandopumpers.com). Keep it up, I read it daily even if there is nothing new I dig through the archives.

    Thanks for it all

    Tim

  15. shawn
    shawn January 23, 2007 at 9:14 am | | Reply

    i read your blog every day, and i have posted a couple of times, and sent you a few emails about the omni-pod problems i had
    i was dx’d, as a type one, when i was 44
    one year later, i was on the pod, and 4 months later on a cozmo, which i like better, tubing and all

  16. Monika
    Monika January 23, 2007 at 9:40 am | | Reply

    Howdy Amy,

    Monika here….I’d put down my type but as of two weeks ago there is some debate as to what type I am. Apparently my body looked like a t2 but once I lost weight it stopped acting like a t2 so more tests are in order. But I’m here…and I read your blog daily.

  17. Maureen
    Maureen January 23, 2007 at 9:43 am | | Reply

    Hi! I’ve commented once or twice, so I thought I’d introduce myself. My youngest son was diagnosed type 1 just after his 7th birthday, he’s 11 now. We did MDI for a year and then started pumping. Casey plays Ice Hockey, Baseball, Basketball etc..doesn’t let anything get in his way.
    Found your blog through Dr Manny on FOX NEWS CHANNEL and have been reading you ever since..The best thing we as parents of type 1′s can do is be well informed!

  18. Emily
    Emily January 23, 2007 at 9:59 am | | Reply

    My name is Emily and I’m a lurker. I guess getting over the denial is the first step, right? I’ve been reading this blog for ages and never said a word. I’m fairly new to this diabetic world. I was diagnosed with Type 2 two years ago- nothing was right, pills made me sick, was either 600 or 20 all day long, blah blah blah… FINALLY my doctor said, “Hmmm, perhaps we should see if you’re Type 1″ and voila! there it was. I mean, I was 19 when I was diagnosed, granted I was overweight, but…does that mean I must be Type 2? (Apparently…) In any event, now I’m Type 1 and 22 and struggling pretty much everyday. I just started pumping 4 months ago and will never turn back. I still am so frustrated by what I call the “mystery highs” where I have no clue what I ate or what I did, as well as the middle of the night lows that make me feel like I’m a zombie.
    I absolutely love reading this blog because I don’t feel as alone. I have the greatest support at home. My mom’s diabetic, Type 2, but it’s different. My fiance would move a mountain to make me feel better but he has no clue how I feel. It’s a relief to read someone frustrated with the little crap that makes life as a diabetic so different. Thanks to you Amy for doing all this and for all of those who comment. You guys are great!

  19. Tom
    Tom January 23, 2007 at 10:19 am | | Reply

    Ok Amy:

    No lurking here: I was diagnosed with the “betes” April 13, 2004. I am Type 2 … your blog is quite informative. I appreciate your efforts in informing us about the “betes”. I am glad your blog has been recognized with several awards… Ammy please keep up the good work …Thank you for your efforts …

    Tom Woolworth

  20. Molly
    Molly January 23, 2007 at 10:29 am | | Reply

    Hi, I’m 24, type 1 for 21 years. I really love the fact that your blog emphasizes that the patient is best advocate for his own health.

  21. Richard
    Richard January 23, 2007 at 10:37 am | | Reply

    Hi, Just found your blog via Medgadget, did you know you got a special mention in the medical Weblog Awards? http://www.medgadget.com/archives/2007/01/2006_medical_we.html

    Oh yeah, type II for almost 2 years

    Cheers

    R

  22. Michael Park
    Michael Park January 23, 2007 at 10:46 am | | Reply

    I guess I’ve been commenting for a while, but never introduced myself.
    I’m Michael Park, from Winnipeg, Canada. I’m 23 and been Type 1 for 17 years now. Your blog served as my introduction to the online community. Thank you for that.
    I guess right now, I’m at the point of being a Born Again Diabetic. After being diabetic so long, I fell into a trap of thinking that as long as I don’t see complications, I must be doing well enough. Finally, I’ve realized that that isn’t enough. Now I’m hoping to make the changes that will benefit me in the longer run!
    Keep up the great blogging!

  23. Megan
    Megan January 23, 2007 at 11:15 am | | Reply

    I read.

  24. Ray VW
    Ray VW January 23, 2007 at 11:21 am | | Reply

    Hello Amy!

    Been reading you since the start of the new year. My doctor thinks it’s time for me to start pumping, and found your site as a result. I’m married, 48 yo living in Seattle, type one since age 30. Hoping to become a “cyborg” if I can come up with the $$$.

  25. Brent
    Brent January 23, 2007 at 11:36 am | | Reply

    Thanks so much, Amy, for your blog. I’ve been reading it nearly every day for months, as well as Insulin Pumpers, and several other d-bloggers. But yours is always the first I check.

    Our now 15 yo daughter was diagnosed T1 last February, and on the pump May 1. Now I’m desperately looking forward to CGMS to even better help her keep control; currently testing 12+ times a day.

    Yes, Amy, you are brave, despite what you may think. Everyone who just keeps moving forward when faced with this crap has to be brave; it can’t all be denial. I don’t know how my daughter moves forward every day if not for being brave and being optimistic that if she (and we) just keeps doing what she’s supposed to do, she’ll be OK. Bravery and faith in yourself.

    Thanks again for everything I’ve learned from you!

    Brent

  26. Jennifer
    Jennifer January 23, 2007 at 1:28 pm | | Reply

    Hi Amy, I’ve posted before, I’m 26 and was dx in Dec of 04. I suffered with chronic low blood sugar for years until being dx with Lupus and put on massive doses of prednisone which managed to ruin my pancreas and liver. Not to mention the weight gain. Your blog is great and I appreciate all the info about inhaled insulin as I want to go that road should the time come when the avandia stops working!

  27. Jennifer
    Jennifer January 23, 2007 at 1:33 pm | | Reply

    I’ve just found your blog, so I haven’t been able to read a lot of it.

    I was diagnosed with type 1 diabetes when I was 9 years old. I’m 21 years old now. My family has never had health insurance, so I have been suffering with inadequate health care at the County Clinic in Chicago, IL. They were either stupid or didn’t care, but when I was 9 years old I would always write down fake numbers that were good, while my Alc told otherwise. I was sick of the poor treatment, long lines and waits. Thus,by the time I was old enough to dictate things on my own, I stopped going to the clinic altogether.

    I’m in college now, and still without health insurance. I’ve been trying to get on track and take care of myself like I should, but with so many years of not doing so or getting adequate help I feel like it is worthless. Right now I trying to stay motivated and for once in my life be in control of my diabetes, but this always changes like the weather. I hope finding others will help me stay motivated.

  28. Annie
    Annie January 23, 2007 at 1:50 pm | | Reply

    Hi! I’m Annie and have been a Type 1 for 6 months. I am 44 and from CT. I love the information on this blog but more important to me is the support I feel from others like me. I agree with the posts that say no one but another PWD really understands what it is like to live with diabetes on a day to day basis. I would like to take this opportunity to toot my horn—my HbA1C at diagnosis was 9.8, at three months it was 6.0 and at 6 months (and now on a pump) I am at 5.4!!! No one else really appreciates what that means and the hard work it takes to get there. Thanks for all your great work Amy!

  29. Christian Küchler
    Christian Küchler January 23, 2007 at 2:14 pm | | Reply

    Hi Amy, hi Ex-Lurkers,
    my name is Chris and I am a german reader, wonder if there are others :-) ?
    Having diabetes type1 since I’m 19 (just finished school), now I’m 28 and still struggling a lot with it. I think about pumping since a while, so I’m really interested about your upcoming experiences.
    Wanted to thank you for your great blog and seeing that others don’t 24/7 do a great job at coping with this s*@# and can let it out! :-)

    Viele liebe gruesse aus berlin
    chris

  30. cindy
    cindy January 23, 2007 at 2:40 pm | | Reply

    Hi Amy! Yes, I’ll admit, I’m an avid lurker, although, I have posted once or twice. I am 39 years old and was diagnosed Type 1 4 months ago. What a ride! In the beginning, I was very shaken and overwhelmed but in a short few months I am feeling more confident about how to live with this. I had my first A1C last week since diagnosis and it was 6.0. Wow – I felt good about that! I really enjoyed your rant about bravery! That is so how I feel about it! I am not brave nor do I think I handle things with that much grace and great appearance either! My job is to JUST DO IT. Besides, no one said grace was a requirement.

    Anyway – thanks for being here – I really enjoy reading your blog!

    Cindy

    P.S. – If they do make a t-shirt that says “Yes, I CAN eat that!” I would really love one!

  31. Adam Kaye
    Adam Kaye January 23, 2007 at 4:57 pm | | Reply

    Hey Amy! I’ve posted a few times before, but never introduced myself. My name’s Adam, I’m 24 years old, and I’m a third year medical student in CT (and no, I’m pretty sure I’m not going into endocrinology…I get that one a lot). I more or less diagnosed myself with Type 1 a little over a year ago after a lecture on the presenting signs of the big D…no kidding. A fasting glucose of 250 from my primary care doc sealed the deal. I’m currently on the Omnipod, started in June, and loving it!
    I absolutely love your blog, keep up the great stuff!
    Adam

  32. BP Mantak
    BP Mantak January 23, 2007 at 5:09 pm | | Reply

    Suzanne and Val-So good to hear I’m not alone! I never see anyone my age in the Endo’s office!
    Adam-this may not be the appropriate place but would you be willing to share your experience with the Omnipod or if you have somewhere send a link?
    Amy thanks so much for this blog! I am always nervous to post but reading gives me such a boost!
    Betsy
    I’m sorry-what exactly is a lurker? Not up on my buzz words…

  33. Elaine
    Elaine January 23, 2007 at 6:34 pm | | Reply

    Hi – I lurk because I don’t have much time to comment but after such a post request here I am. My now 5 year old was dx last year and I now lurk on the blogs for info, humor and plain good sense about the big D. Thank you for your wonderful blog. :)
    E.

  34. Troy
    Troy January 23, 2007 at 8:56 pm | | Reply

    Rookie Lurker. I live in Ontario, Canada. 18 years old when self diagnosed. 22 years as Type 1, who went to the pump and monitoring system in June. I have two kids (7 & 3) who don’t know about my diabetes and supportive and understanding wife. The pump has somewhat made me come ‘out of the closet’, since I’ve hidden the fact from most people. I was stopped once from doing what I wanted and haven’t looked back since. I work as a Captain with Municipal Fire Services (part-time) and as a Captain with a Nuclear Powerplant. I competed in the Firefighter Combat Challenge and still play hockey. New technology, hopes of cures, my family, Charles H Best Clinic in Whitby, and this site keep me going. I enjoy your sense of humour and the information/stories you provide.

  35. Jenny
    Jenny January 23, 2007 at 8:57 pm | | Reply

    My name is Jenny! I am a lurker for sure! I check your posts almost daily, but never post! I just bought your book, too. My son, now 11, was diagnosed with type 1 when he was 10 years old. He wears the MM 522 with sensor. You are doing us all a very valuable service by continuing to write about your experiences and what is going on in the diabetes world. Thank you!

  36. Steve
    Steve January 23, 2007 at 9:54 pm | | Reply

    I’ve been diagnosed for 5 years now as a type 2. But I know now that I’ve had this at least since I was a teenager, only never recognized it. My level of physical activity kept things under control well enough until I got old enough and sedentary enough that things caught up with me. My doctor says I am his best controlled diabetic, but it doesn’t always feel that way. And I sure as …. stuff… feel diabetic fatigue. I live in northern Minnesota in an extremely rural setting. My nearest care provider is 30 miles away, as is the nearest grocery store.

  37. Kim
    Kim January 24, 2007 at 5:49 am | | Reply

    I’ve commented before, but I read a lot more days than I comment. I’m Kim, Type 2 from Colorado. Diagnosed Hypoglycemic at 19, gestational diabetes at 40, Type 2 at 42. I probably couldn’t have ever passed a glucose tolerance test. I have several Type 1 friends and it sure is a very different disease, but I still get a lot of great info from your blog – love your writing.

  38. Phil
    Phil January 24, 2007 at 6:35 am | | Reply

    Hi, I’m a lurker from Manchester, UK.
    Type 1 for about 6 years, trying to weave my way through MDI with Detemir and Humalog. A great knowledgeable GP – his brother has been type 1 since a child.
    Just waiting for the next generation of continuous monitors to bring the costs down to where I might be able to afford it!

    Keep blogging.
    Phil

  39. Morgan
    Morgan January 24, 2007 at 8:32 am | | Reply

    Hi Amy, I’ve been a lurker around here for over a year. I’m in Novato, CA, T1, eight years, pump for seven years (Minimed 715,) Dx’d at 25 so I guess I’m LADA. Been using the Dexcom for a while now and I really like it. Last A1c 5.5 so I guess it’s working. I hope you get a pump soon, it’s quite an improvement. And don’t obsess about the Omni, having a little tubing is not a problem at all. Keep up the good work…

  40. Emily
    Emily January 24, 2007 at 9:22 am | | Reply

    I have been reading your blog for about two weeks since I found a link through Diabetes O.C.listing of insulin pumpers. I am 23 and was diagnosed with type 1 at eleven. I am currently on MDI and have good A1c’s but bounce around a fair bit and am considering a pump as a part of my “rededication to my health” campaign, now that I have finished college. I appreciate both the informative and humorous aspects of your blog.

  41. Kristen
    Kristen January 24, 2007 at 10:34 am | | Reply

    Hi Amy,
    Lurking diabetes educator here. I don’t have the big D, but I see patients all day long that do! Unfortunately, it’s sometimes easy for us educators to “get preachy” about taking care of yourself. I value your blog and the comments of others to truly put life with diabetes in perspective. I get great info to pass on to my patients, and reading about daily struggles definitely makes me a more compassionate provider to my patients. Thanks for helping those that want to help PWD!

  42. ROB
    ROB January 24, 2007 at 12:49 pm | | Reply

    Hi –

    I am definitely a lurker. I have Type I for 34 years, now. I am 48 years old, and scared to death. I recently discovered that my Creatinine was 2.0 and my BUN is 35. That translates into working with 50% of my kidney function.

    I have an appointment with the Kidney Doctor at Joslin Clinic. Hopefully she can shed some light on this.

  43. Kate
    Kate January 24, 2007 at 1:55 pm | | Reply

    Hi Amy,
    I read your blog almost daily- it keep sme up to date on some of the cutting edge stuff in the diabetes world. And I love how you share your life and the lives of your readers with us. You deserve your OC award! Keep up the great blogging:)

  44. Lili
    Lili January 24, 2007 at 2:53 pm | | Reply

    Hi! I’m Lili and I was diagnosed with Type 2 two years ago at age 27. Things just kept getting steadily worse until finally they admitted this year it wasn’t Type 2. I had long suspected that. I went on insulin 7 months ago and started pumping two weeks ago.

    Love your blog!

  45. Lori
    Lori January 24, 2007 at 4:27 pm | | Reply

    I don’t read every day, but check in often to see what new information you’ve found. My connection to D is that my 16.5 yo son has Type 1, diagnosed 3 years ago. He is extremely insulin resistant and uses a pump & metformin. I love that you are always out there looking for the latest information. Thanks for all you do!

  46. john
    john January 24, 2007 at 4:36 pm | | Reply

    41 year old type 1 since age 6. Doing the Lantus/Novolog 4 shot/day thing. A1C = 7.8. I keep looking for the freestyle navigator. The Omnipod got me interested in a pump. I think I’m going to try and get a Cozmore.

  47. Tesney
    Tesney January 24, 2007 at 5:42 pm | | Reply

    I’m 29, diagnosed with T1 about 6 months ago…3 months after the birth of my first child. I had gestational diabetes during pregnancy, BG returned to normal immediately after his birth and was normal at 6 week check-up. I gradually started feeling the symptoms of D and checked my BG–564! I’ve been on the pump for about 3 months and am still struggling with acceptance of my diabetes. Stumbled upon your blog from About.com when searching for Type 1 info. I’m loving it so far…

  48. Vicki Abbott
    Vicki Abbott January 24, 2007 at 9:27 pm | | Reply

    Hi, Amy, I’ve contributed a few times…Vicki here, senior citizen (70 this year) diagnosed with type 1 nearly 10 years ago. Not pumping but I do MDI with great A1Cs (under 6.2) for at least the last 8 years. My goal is to die with all my parts working nicely. So far so good (except for my teeth, which are going . Oh – great column! I love the mostly upbeat. We need more of that.

  49. Jennifer
    Jennifer January 24, 2007 at 10:17 pm | | Reply

    Hi there! I’m a day late but still wanted to say hello! Somehow I seem to date diabetics – as is the case with my boyfriend now who is type who-the-heck-knows (yah i wish the doctor could figure it out.)

    Your blog is great and so helpful! Thanks for all you do!

  50. Tink
    Tink January 25, 2007 at 11:18 am | | Reply

    Hi Amy,

    Posting a bit late here, but just wanted to say I really enjoy your blog and please keep up the good work!

    I’m type 1 for over 30 yeaars now and been pumping for 6+ years. For me anyway, pumping is the way to go!

    Thanks again…

    P.S. A sidenote to RayVW–I’m from Seattle too–we have a pump group in Fife if your interested in coming to talk to other pumpers. Or insulin-pumpers.org is a great place to find out about and talk to other pumpers. Good Luck!

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