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	<title>Comments on: Talk to Me on D-Blog Day</title>
	<atom:link href="http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/feed" rel="self" type="application/rss+xml" />
	<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html</link>
	<description>A gold mine of straight talk and encouragement for people living with diabetes</description>
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		<title>By: Michael Park</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34707</link>
		<dc:creator>Michael Park</dc:creator>
		<pubDate>Fri, 10 Nov 2006 01:35:24 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34707</guid>
		<description>I&#039;m here for all the aforementioned reasons, because you serve as a marvellous middle(wo)man for those of us who kindly appreciate the ready access to current information.
I am type one since age 6(now 23).
What I like most is your style of presentation and all the links to all that crazy stuff!
Most interesting topics are those which I relate to, or really anything you have an interest in (that&#039;s what shows best).
In terms of info-gap, I don&#039;t think there really is one... your healthcare team always has a wealth of knowledge... what is really missing is the personal KNOWledge that only a diabetic can have, once we get over that, we can really use the healthcare team to our full advantage!
In terms of filling that gap, I feel that it&#039;s like any medical condition, you need to take in an absorb any and all info and find out how it applies to you.  Some people commented here that they don&#039;t like endos who try and control their control- those endos are only there becase there is a large population of diabetics who actually want that(unfortunately)...
D-gripe - WOW! hows about getting the letter from the DMV 2 days after my appointment with my endo saying I need to get the form signed within 2 months- who out there actually can get an appointment in less than a few months?!?
Alas, I love this blog and I thank you for your dedication...
oh, and the thing that keeps me coming back and reading is your passion!
</description>
		<content:encoded><![CDATA[<p>I&#8217;m here for all the aforementioned reasons, because you serve as a marvellous middle(wo)man for those of us who kindly appreciate the ready access to current information.<br />
I am type one since age 6(now 23).<br />
What I like most is your style of presentation and all the links to all that crazy stuff!<br />
Most interesting topics are those which I relate to, or really anything you have an interest in (that&#8217;s what shows best).<br />
In terms of info-gap, I don&#8217;t think there really is one&#8230; your healthcare team always has a wealth of knowledge&#8230; what is really missing is the personal KNOWledge that only a diabetic can have, once we get over that, we can really use the healthcare team to our full advantage!<br />
In terms of filling that gap, I feel that it&#8217;s like any medical condition, you need to take in an absorb any and all info and find out how it applies to you.  Some people commented here that they don&#8217;t like endos who try and control their control- those endos are only there becase there is a large population of diabetics who actually want that(unfortunately)&#8230;<br />
D-gripe &#8211; WOW! hows about getting the letter from the DMV 2 days after my appointment with my endo saying I need to get the form signed within 2 months- who out there actually can get an appointment in less than a few months?!?<br />
Alas, I love this blog and I thank you for your dedication&#8230;<br />
oh, and the thing that keeps me coming back and reading is your passion!</p>
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	<item>
		<title>By: Elinor</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34706</link>
		<dc:creator>Elinor</dc:creator>
		<pubDate>Fri, 18 Nov 2005 03:40:36 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34706</guid>
		<description>I would definitely like a T-shirt!!  Size large, please.
</description>
		<content:encoded><![CDATA[<p>I would definitely like a T-shirt!!  Size large, please.</p>
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		<title>By: B.M.</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34705</link>
		<dc:creator>B.M.</dc:creator>
		<pubDate>Sat, 12 Nov 2005 03:01:23 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34705</guid>
		<description>* Why are you here?  You learn a little / laugh a little?

It&#039;s easy for me to &quot;forget&quot; I have diabetes, and continue my bad habits.  I go to your blog to see how others handle their condition, and to keep it in the forefront of my mind to take good care of myself

* Are you Type 1, Type 2, or a parent or partner?

Type 2

* If you check back often, what do you like best?

Info on new treatments

* What topics interest you most?

New oral meds

* Where do you find the biggest &quot;information gap&quot; between medical providers and patients?

Mostly okay.  My worst experience was the podiatrist screaming at me about high A1C numbers before getting any information about what I was doing to handle it.

* What helps you fill that gap?

N/A

* What&#039;s your biggest daily D-gripe that seems like it could easily be solved?

Can&#039;t think of one, really.  I have sympathy for those who have to have refrigerated medication, though.  That must be a real hassle!  Hopefully, I&#039;ll never have to find out.

Anyway, I enjoy the light-heartedness of your blog.  I wouldn&#039;t mind hearing more about your regular life, not just your D-life -- like when you wrote about your trip to Europe.  That was fun and informative.  But even if you don&#039;t change a thing, I&#039;ll be a regular reader.


</description>
		<content:encoded><![CDATA[<p>* Why are you here?  You learn a little / laugh a little?</p>
<p>It&#8217;s easy for me to &#8220;forget&#8221; I have diabetes, and continue my bad habits.  I go to your blog to see how others handle their condition, and to keep it in the forefront of my mind to take good care of myself</p>
<p>* Are you Type 1, Type 2, or a parent or partner?</p>
<p>Type 2</p>
<p>* If you check back often, what do you like best?</p>
<p>Info on new treatments</p>
<p>* What topics interest you most?</p>
<p>New oral meds</p>
<p>* Where do you find the biggest &#8220;information gap&#8221; between medical providers and patients?</p>
<p>Mostly okay.  My worst experience was the podiatrist screaming at me about high A1C numbers before getting any information about what I was doing to handle it.</p>
<p>* What helps you fill that gap?</p>
<p>N/A</p>
<p>* What&#8217;s your biggest daily D-gripe that seems like it could easily be solved?</p>
<p>Can&#8217;t think of one, really.  I have sympathy for those who have to have refrigerated medication, though.  That must be a real hassle!  Hopefully, I&#8217;ll never have to find out.</p>
<p>Anyway, I enjoy the light-heartedness of your blog.  I wouldn&#8217;t mind hearing more about your regular life, not just your D-life &#8212; like when you wrote about your trip to Europe.  That was fun and informative.  But even if you don&#8217;t change a thing, I&#8217;ll be a regular reader.</p>
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		<title>By: Scott K. Johnson</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34704</link>
		<dc:creator>Scott K. Johnson</dc:creator>
		<pubDate>Fri, 11 Nov 2005 00:02:32 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34704</guid>
		<description>Wow!  Lot&#039;s of comments - that&#039;s great!

Here&#039;s my thoughts on the questions you ask:

- Why are you here?

I like the personal touch in most of the posts.  I really get a lot out of people&#039;s &quot;story&quot; and life experiences while dealing with diabetes.

- Are you Type 1, Type 2, or a parent or partner?

I am Type 1.  Diagnosed at the age of 5 in 1980.  That makes me about 30 years old with 25 years of diabetes under my belt.

- If you check back often, what do you like best?

Everything new.  All the new stories &amp; experiences.  I just wish I had the time to keep up on everything you (and the rest of the O.C.) posts!  I&#039;d love to be able to comment on everything I read.  Just can&#039;t manage it though.

- What topics interest you most?

Nothing special, again, I like to read about your unique experiences dealing with life.

- Where do you find the biggest &quot;information gap&quot; between medical providers and patients?

Tough question.  My struggles are mostly with my personal discipline and behavioral eating.  I do wish that the doctors had more time to spend with us.  It&#039;s always very rushed.

- What helps you fill that gap?

Being organized when I go in to the appt.  Maybe having a list of questions or concerns ready, etc.

- What&#039;s your biggest daily D-gripe that seems like it could easily be solved?

While in my humble opinion I don&#039;t feel like it&#039;s easily solved, motivation is my biggest gripe.  It takes constant and consistant attention, continued diligence and lots of &quot;energy&quot; to keep everything under control every day.  Sure, when things are running smoothly they roll right along.  But when life gets going along with that is when things get interesting.  It&#039;s also something that is not as simple as a daily task that you can do and cross it off your list for the day - but rather multiple mental visits throughout the day.  Maybe my attention span is short, but I have trouble staying focused on that all day every day.

- And: anybody interested in a DiabetesMine.com T-shirt?

Yes - but I&#039;m always broke.  Damn gadget addiction.

Great work Amy - please keep it up.  You are making a difference in many lives and you are appreciated for it!


</description>
		<content:encoded><![CDATA[<p>Wow!  Lot&#8217;s of comments &#8211; that&#8217;s great!</p>
<p>Here&#8217;s my thoughts on the questions you ask:</p>
<p>- Why are you here?</p>
<p>I like the personal touch in most of the posts.  I really get a lot out of people&#8217;s &#8220;story&#8221; and life experiences while dealing with diabetes.</p>
<p>- Are you Type 1, Type 2, or a parent or partner?</p>
<p>I am Type 1.  Diagnosed at the age of 5 in 1980.  That makes me about 30 years old with 25 years of diabetes under my belt.</p>
<p>- If you check back often, what do you like best?</p>
<p>Everything new.  All the new stories &#038; experiences.  I just wish I had the time to keep up on everything you (and the rest of the O.C.) posts!  I&#8217;d love to be able to comment on everything I read.  Just can&#8217;t manage it though.</p>
<p>- What topics interest you most?</p>
<p>Nothing special, again, I like to read about your unique experiences dealing with life.</p>
<p>- Where do you find the biggest &#8220;information gap&#8221; between medical providers and patients?</p>
<p>Tough question.  My struggles are mostly with my personal discipline and behavioral eating.  I do wish that the doctors had more time to spend with us.  It&#8217;s always very rushed.</p>
<p>- What helps you fill that gap?</p>
<p>Being organized when I go in to the appt.  Maybe having a list of questions or concerns ready, etc.</p>
<p>- What&#8217;s your biggest daily D-gripe that seems like it could easily be solved?</p>
<p>While in my humble opinion I don&#8217;t feel like it&#8217;s easily solved, motivation is my biggest gripe.  It takes constant and consistant attention, continued diligence and lots of &#8220;energy&#8221; to keep everything under control every day.  Sure, when things are running smoothly they roll right along.  But when life gets going along with that is when things get interesting.  It&#8217;s also something that is not as simple as a daily task that you can do and cross it off your list for the day &#8211; but rather multiple mental visits throughout the day.  Maybe my attention span is short, but I have trouble staying focused on that all day every day.</p>
<p>- And: anybody interested in a DiabetesMine.com T-shirt?</p>
<p>Yes &#8211; but I&#8217;m always broke.  Damn gadget addiction.</p>
<p>Great work Amy &#8211; please keep it up.  You are making a difference in many lives and you are appreciated for it!</p>
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		<title>By: Misty</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34703</link>
		<dc:creator>Misty</dc:creator>
		<pubDate>Thu, 10 Nov 2005 18:42:22 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34703</guid>
		<description>* Why are you here?  You learn a little / laugh a little? A little of both :) Reading about fellow diabetics helps me &quot;keep it real&quot;.

* Are you Type 1, Type 2, or a parent or partner? Type 2, dx&#039;ed in 2005. I&#039;m the 4th generation of Type II on my mother&#039;s side.

* If you check back often, what do you like best? Personal stories of how you handle diabetes in your life, or your take on news items.

* What topics interest you most? Anything goes......

* Where do you find the biggest &quot;information gap&quot; between medical providers and patients? Oh boy. Don&#039;t get me started. I&#039;m a military dependent. During the diagnosis process, I saw 3 different doctors, all of whom had 3 different ideas of how my Type II should be handled, especially given the genetic factor at play. It was at that point I decided I&#039;d better get extremely well educated on this so I could have a major voice in decisions, treatment, etc.

* What helps you fill that gap? Keeping current on new info, and constantly reading and learning about diabetes.

* What&#039;s your biggest daily D-gripe that seems like it could easily be solved? Good question :)


</description>
		<content:encoded><![CDATA[<p>* Why are you here?  You learn a little / laugh a little? A little of both <img src='https://www.diabetesmine.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  Reading about fellow diabetics helps me &#8220;keep it real&#8221;.</p>
<p>* Are you Type 1, Type 2, or a parent or partner? Type 2, dx&#8217;ed in 2005. I&#8217;m the 4th generation of Type II on my mother&#8217;s side.</p>
<p>* If you check back often, what do you like best? Personal stories of how you handle diabetes in your life, or your take on news items.</p>
<p>* What topics interest you most? Anything goes&#8230;&#8230;</p>
<p>* Where do you find the biggest &#8220;information gap&#8221; between medical providers and patients? Oh boy. Don&#8217;t get me started. I&#8217;m a military dependent. During the diagnosis process, I saw 3 different doctors, all of whom had 3 different ideas of how my Type II should be handled, especially given the genetic factor at play. It was at that point I decided I&#8217;d better get extremely well educated on this so I could have a major voice in decisions, treatment, etc.</p>
<p>* What helps you fill that gap? Keeping current on new info, and constantly reading and learning about diabetes.</p>
<p>* What&#8217;s your biggest daily D-gripe that seems like it could easily be solved? Good question <img src='https://www.diabetesmine.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>By: Anon</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34702</link>
		<dc:creator>Anon</dc:creator>
		<pubDate>Thu, 10 Nov 2005 17:16:31 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34702</guid>
		<description>Generally, I find you overly chipper and somewhat annoying.  It&#039;s not your fault, I know... I don&#039;t think you&#039;ve experienced the long-long term nature of diabetes.

Diabetes was an entirely different disease before rapid-acting insulin and lantus... with strict meal plans, rigidity, anything containing sugar on the forbidden list, and blood tests that took as much as *five minutes* (and required a &quot;hanging drop of blood&quot; the size of a piece of corn).  No one even talked about post-prandials 10 years ago -- controlling them was inconceivable.  Living well with diabetes was a *huge* challenge back then.

You represent the new, &quot;light-hearted&quot; diabetes... but not the diabetes I&#039;ve dealt with most of my life.
</description>
		<content:encoded><![CDATA[<p>Generally, I find you overly chipper and somewhat annoying.  It&#8217;s not your fault, I know&#8230; I don&#8217;t think you&#8217;ve experienced the long-long term nature of diabetes.</p>
<p>Diabetes was an entirely different disease before rapid-acting insulin and lantus&#8230; with strict meal plans, rigidity, anything containing sugar on the forbidden list, and blood tests that took as much as *five minutes* (and required a &#8220;hanging drop of blood&#8221; the size of a piece of corn).  No one even talked about post-prandials 10 years ago &#8212; controlling them was inconceivable.  Living well with diabetes was a *huge* challenge back then.</p>
<p>You represent the new, &#8220;light-hearted&#8221; diabetes&#8230; but not the diabetes I&#8217;ve dealt with most of my life.</p>
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		<title>By: Millie</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34701</link>
		<dc:creator>Millie</dc:creator>
		<pubDate>Thu, 10 Nov 2005 16:36:35 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34701</guid>
		<description>Amy,
Your&#039;s was the first website I found about diabetes.  You have a light in the darkness.
I was diagnosed as Type 2 February 2005.  I have been more than a little intimidated by the frustration I have read coming from the Type 1&#039;s.  That&#039;s why I have not ever responded to anyone&#039;s blog.  But I wanted you to know that your efforts are appreciated.  Thank you very much.
</description>
		<content:encoded><![CDATA[<p>Amy,<br />
Your&#8217;s was the first website I found about diabetes.  You have a light in the darkness.<br />
I was diagnosed as Type 2 February 2005.  I have been more than a little intimidated by the frustration I have read coming from the Type 1&#8242;s.  That&#8217;s why I have not ever responded to anyone&#8217;s blog.  But I wanted you to know that your efforts are appreciated.  Thank you very much.</p>
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	<item>
		<title>By: Andrea (yet another)</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34700</link>
		<dc:creator>Andrea (yet another)</dc:creator>
		<pubDate>Thu, 10 Nov 2005 15:16:20 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34700</guid>
		<description>Hey Amy...

Wow, you have received a lot of feedback and comments.  That&#039;s wonderful. Sorry I couldn&#039;t post yesterday, but it was a very hectic day for me at work and otherwise, but I&#039;m glad that I could today.

Why are you here?
I love your site...I try to visit it when I can.  I think you have a lot of interesting things to share with the reader and I find it both informative and something I can relate to, on a personal note.

Are you Type 1, Type 2, or a parent or partner?

I&#039;m also Type 1. I was dx&#039;ed about 3 years ago.  In ways, it seems like it was yesterday, but in other ways it seems like I have dealt with this forever...if that makes any sense.
- Where do you find the biggest &quot;information gap&quot; between medical providers and patients?

I find my current Endocrinologist to be pretty knowledgable about this disease.  However, as far as personality- he leaves a lot to be desired.  Sometimes I think he comes across as arrogant and he tends to talk &quot;down&quot; to me...which I hate.  I think it&#039;s a common thing among doctors, sadly, and I think it makes a big difference in patients feeling comfortable and at ease at being able to discuss their feelings and issues they worry about.

- What helps you fill that gap?

I think trying to be as honest as possible with my doctor helps-letting him know how I feel and what I struggle with.  I am actually seeing another (new) doctor in the practice at my next appt.- he supposedly reminds people of my ex-Endo.  I&#039;m looking forward to meeting him.

- What&#039;s your biggest daily D-gripe that seems like it could easily be solved?

I have to agree with others about the infusion sets.  There&#039;s got to be a way to make them so they don&#039;t kink as easily.  Also, perhaps there&#039;s an easier way to make injecting the sets/or regular inections better, so they hurt less.


Just wanted to add a big THANK-YOU for all the work you do on your blog.  I can tell you put a lot of effort and energy into it.  Know that we appreciate it and I hope to read (and learn) alot more from you  :)
</description>
		<content:encoded><![CDATA[<p>Hey Amy&#8230;</p>
<p>Wow, you have received a lot of feedback and comments.  That&#8217;s wonderful. Sorry I couldn&#8217;t post yesterday, but it was a very hectic day for me at work and otherwise, but I&#8217;m glad that I could today.</p>
<p>Why are you here?<br />
I love your site&#8230;I try to visit it when I can.  I think you have a lot of interesting things to share with the reader and I find it both informative and something I can relate to, on a personal note.</p>
<p>Are you Type 1, Type 2, or a parent or partner?</p>
<p>I&#8217;m also Type 1. I was dx&#8217;ed about 3 years ago.  In ways, it seems like it was yesterday, but in other ways it seems like I have dealt with this forever&#8230;if that makes any sense.<br />
- Where do you find the biggest &#8220;information gap&#8221; between medical providers and patients?</p>
<p>I find my current Endocrinologist to be pretty knowledgable about this disease.  However, as far as personality- he leaves a lot to be desired.  Sometimes I think he comes across as arrogant and he tends to talk &#8220;down&#8221; to me&#8230;which I hate.  I think it&#8217;s a common thing among doctors, sadly, and I think it makes a big difference in patients feeling comfortable and at ease at being able to discuss their feelings and issues they worry about.</p>
<p>- What helps you fill that gap?</p>
<p>I think trying to be as honest as possible with my doctor helps-letting him know how I feel and what I struggle with.  I am actually seeing another (new) doctor in the practice at my next appt.- he supposedly reminds people of my ex-Endo.  I&#8217;m looking forward to meeting him.</p>
<p>- What&#8217;s your biggest daily D-gripe that seems like it could easily be solved?</p>
<p>I have to agree with others about the infusion sets.  There&#8217;s got to be a way to make them so they don&#8217;t kink as easily.  Also, perhaps there&#8217;s an easier way to make injecting the sets/or regular inections better, so they hurt less.</p>
<p>Just wanted to add a big THANK-YOU for all the work you do on your blog.  I can tell you put a lot of effort and energy into it.  Know that we appreciate it and I hope to read (and learn) alot more from you  <img src='https://www.diabetesmine.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>By: iamwho</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34699</link>
		<dc:creator>iamwho</dc:creator>
		<pubDate>Thu, 10 Nov 2005 04:34:41 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34699</guid>
		<description>I read this blog from another perspective- I am an Aussie 2nd year medical student (we have an undergraduate program so I&#039;ve still got 4 years to go).
Last year we had a session where we meet some teenagers with diabetes and they talked and we asked questions, then we all injected &quot;insulin&quot; into ourselves.
That started off my interest with diabetes, and I now think I want to become an endocrinologist.
</description>
		<content:encoded><![CDATA[<p>I read this blog from another perspective- I am an Aussie 2nd year medical student (we have an undergraduate program so I&#8217;ve still got 4 years to go).<br />
Last year we had a session where we meet some teenagers with diabetes and they talked and we asked questions, then we all injected &#8220;insulin&#8221; into ourselves.<br />
That started off my interest with diabetes, and I now think I want to become an endocrinologist.</p>
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		<title>By: Nick</title>
		<link>http://www.diabetesmine.com/2005/11/talk_to_me_on_d.html/comment-page-1#comment-34698</link>
		<dc:creator>Nick</dc:creator>
		<pubDate>Thu, 10 Nov 2005 02:56:01 +0000</pubDate>
		<guid isPermaLink="false">http://diabetesmine.dreamhosters.com/2005/11/09/talk-to-me-on-d-blog-day/#comment-34698</guid>
		<description>Oh, I forgot to mention what I most like.   I like your personal stories best.   You know, how you manage not just this hormone deficiency but your child and all else that life hurls at you from day to day.

C&#039;est la vie!
</description>
		<content:encoded><![CDATA[<p>Oh, I forgot to mention what I most like.   I like your personal stories best.   You know, how you manage not just this hormone deficiency but your child and all else that life hurls at you from day to day.</p>
<p>C&#8217;est la vie!</p>
]]></content:encoded>
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