Carnival of Compassion No. 3: Reaching Out

Sobeltheoffering_4Welcome to the Greatest Show on Earth! The newly launched Carnival of Compassion (edition No. 3 here), the definitive showcase of how insta-publishing technology is allowing people with all variety of afflictions to reach out, share, inform and care for one another.

According to the Wall St. Journal, no one officially tracks patient blogs, but “there are ‘hundreds of thousands’ of people blogging about illnesses, caring for parents, dealing with end-of-life issues and pregnancy,” estimates David Sifry, founder of blog search engine Technorati.

“Hundreds of thousands”?! Where are you all? As this weekly roundup is a new endeavor, I decided that rather than wait on submissions, I’d follow the spirit of “reach out” and go out looking myself. This rather long post summarizes what I found. Hopefully just learning that each other’s blogs exist will provide some comfort — and motivation to keep up the good work.

As a visual accompaniment, I proudly present the original artwork of one Elizabeth Sobel, fellow diabetic and artist who sought me out and kindly thanked me for “putting myself out there.” Her work reflects the innate human need to reach out…

* Patient Blogs
MY LIFE WITH CF (cystic fibrosis) — Jakarah is married with two kids and living with CF. He is Not Going to Lousiana this month.

ENDOMETRIOSIS AND ME — how endometriosis punched a whole right through one woman’s life. Lately she’s been Doing Some Research.

CHRONIC BABE — Jenni Prokopy provides an online community for younger women with chronic health issues. Read about Foxy Boxy Cute Pillboxes this week.

INFERTILITY IS FUNNY — a sometimes humorous, sometimes heartbreaking attempt to handle the realities of infertility. Click here if you Want to Know What It’s Really Like. Sobelthesupplicantsm

AVA INFERTILITY — Ava Hope is another young woman struggling with infertility for several years. She notes that Seeing the Specialist is always trying.

KELLI’S MIGRAINE DAILY — asks the seminal question: “What Is It?

A CLUSTERHEAD’S LIFE — reports how migraines and epilepsy can leave you The Same, Yet Changed.

* Medical Advances & Technology
PROSTATE CANCER WATCH — this independently run blog helps you keep up to date with all the prostate cancer news. This week, read about the fall of one of the most promising and novel drugs, Avastin.

LUPUS NEWSLOG — an incredibly thorough place to learn about this “autoimmune disease model.” Currently Reaching Through the Wreckage of recent hurricanes.

MEDGADGET — my favorite “crossover blog” keeps the medical and scientific professions (and the rest of us) up to date on emerging medical technologies. Exciting news for us PWDs (people with diabetes): a new Prototype Subcutaneous Glucose Sensor will be displayed at the NYC MoMa this month.

* Caregiver Blogs
ASK DUTCHY — offering practical ideas and advice for assisting the elderly with Alzheimer’s disease, Dementia, Parkinson’s, disability, and general long-term care. Are you ready to Make the Tough Choices?

SCHIZOPHRENIA.COM — how one wife copes with her husband’s mental illness. On Paranoia.

Sobelthecollector_1* New Additions
SWEET AS CANDICE: My Life with T1 Diabetes — Candice has had Type 1 diabetes for 19 years, blogging since July. Lately she’s musing over Fragmentation of the Patient, which we know all too well!

DEAF SURVIVORS BLOG — a(n) heroic new blog by Mike McConnell in New Mexico, with the mission “to help deaf and hard of hearing people find each other and provide emergency info after catastrophic events such as Hurricane Katrina.” Mike on the need for Visual Access to Emergency Information: what FEMA, the Federal Government, and a host of other agencies need to do, fast.

Like my grandma used to say: if you got together with a group of people in a big circle, and everybody laid out their troubles in the middle, you’d take one look around, GRAB YOUR OWN AND RUN! (the perverse moral being that some comfort lies in knowing that others are at least as bad off as we are…)

Finally, I dedicate this post to our readers: all the NON-BLOGGING patients and caregivers out there. Rest assured that you are not alone, as you can very well see!

(NOTE TO BLOGGERS: Co<3 is still SEEKING A HOST for next week’s Carnival. Sign up HERE)

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11 Responses

  1. Cancer NewsWatch
    Cancer NewsWatch October 2, 2005 at 2:48 pm | | Reply

    Carnival of Compassion #3

    The third edition of the Carnival of Compassion is up over at Diabetes Mine, and I have to say that Amy has done an incredible job. Since the carnival is still new, submissions are coming in rather slowly, so Amy went out and rounded up a bunch of gre…

  2. Cary
    Cary October 2, 2005 at 3:17 pm | | Reply

    Wow…great job Amy! I’m amazed by the sheer number of posts, and the quality : )

  3. Blog Carnival
    Blog Carnival October 3, 2005 at 7:47 am | | Reply

    Blog Carnival index: Carnival of Compassion No. 3: Reaching Out

    CARNIVAL OF COMPASSION is now up at Diabetes Mine!

  4. Kerri.
    Kerri. October 3, 2005 at 10:03 pm | | Reply

    Amy, I just tried to email the “Ringmaster” of the Carnival and it bounced back as undeliverable. Can you provide me with a link?

  5. McConnell
    McConnell October 4, 2005 at 9:08 am | | Reply

    Visual Access to Emergency Information: what FEMA, the Federal Government, and a host of other agencies need to do, fast.

    Wrong link to the Deaf Survivors blog under “Visual Access to Emergency Information.”

    McConnell

  6. McConnell
    McConnell October 4, 2005 at 9:13 am | | Reply

    Oh, btw, thanks for the comments about Deaf Survivors blog.

    McConnell

  7. AmyT
    AmyT October 4, 2005 at 11:11 am | | Reply

    OK, the “visual access” link is fixed.

    And you can reach the host of this Carnival at dhanoad@yahoo.com.

    Thanks all!

  8. Bill Braithwaite
    Bill Braithwaite October 4, 2005 at 5:41 pm | | Reply

    Hi Amy!

    I just read about an exciting new drug treatment for Diabetic Neuropathy.

    It in clinical trials in the US by Eisai Company.

    More info can be read in their Press Release see http://www.eisai.com

    Hope this may be of help to any of your readers.

    Cheers!! Billy ;) )

  9. The Daily Headache
    The Daily Headache October 4, 2005 at 11:12 pm | | Reply

    Carnival of Compassion #3

    The third edition of Carnival of Compassion is available on Diabetes Mine. (In case you missed last week’s description, the Carnival of Compassion is a weekly roundup of patient blogs. Each week, a different blog hosts a collection of the

  10. Accidental Verbosity
    Accidental Verbosity October 9, 2005 at 10:31 am | | Reply

    Carnival Catchup

    I have been neglecting to link carnivals as they have come out lately; almost like a blogging burnout symptom. Heres where Ill do some catching up on the recent week or two, as best I can identify them. The September 26 Carnival of the C…

  11. Carnival of Compassion #3 - The Daily Headache

    [...] third edition of Carnival of Compassion is available on Diabetes [...]

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